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Interferon
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Feeling Rubbish
Very keen to stay on
Interferon
as still quite young in PV terms and want all options open for the future. Any advice would be gratefully appreciated Jen
Very keen to stay on
Interferon
as still quite young in PV terms and want all options open for the future. Any advice would be gratefully appreciated Jen
Poppy112
in
MPN Voice
6 years ago
Peg Interferon Injection technique
Hi everyone, I inject Peg
Interferon
weekly into my stomach. As instructed I alternate my injection [i] [/i]and select a site approx 2 inches to the side and below my belly button.
Hi everyone, I inject Peg
Interferon
weekly into my stomach. As instructed I alternate my injection [i] [/i]and select a site approx 2 inches to the side and below my belly button.
Jocko
in
MPN Voice
6 years ago
Interferon/Pegasys
pid=205&lang=en&sid=1206 Too many to watch all of them but the third from the bottom, Panel Discussion with Dr Verstovsek, was excellent If you are on
Interferon
/Peginteferon or thinking about starting, I’d strongly recommend you watch.
pid=205&lang=en&sid=1206 Too many to watch all of them but the third from the bottom, Panel Discussion with Dr Verstovsek, was excellent If you are on
Interferon
/Peginteferon or thinking about starting, I’d strongly recommend you watch.
Paul123456
in
MPN Voice
6 years ago
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Peg interferon
Those of you on peg
interferon
, how long and on what dose did you start to see results in platelet reduction? Cheers Joe
Those of you on peg
interferon
, how long and on what dose did you start to see results in platelet reduction? Cheers Joe
Joerp
in
MPN Voice
6 years ago
Update
I phoned the nurse regarding treatment and she put our minds at ease by telling us that the letter reads
interferon
free medication, which means they won’t be giving that but epclusa, feeling scared but going in on Tuesday to hopefully get treatment, hope it works as thoughts keep going through my head
I phoned the nurse regarding treatment and she put our minds at ease by telling us that the letter reads
interferon
free medication, which means they won’t be giving that but epclusa, feeling scared but going in on Tuesday to hopefully get treatment, hope it works as thoughts keep going through my head
Surjy
in
Hepatitis C Trust
6 years ago
Pegasys blood results
Pegasys/
Interferon
really split opinions into those who swear by it and those who suffer unpleasant side effects. So far I’m delighted with it. As others have said, anyone starting Pegasys should, if possible, try a low dose and increase as necessary. Need to build up tolerance.
Pegasys/
Interferon
really split opinions into those who swear by it and those who suffer unpleasant side effects. So far I’m delighted with it. As others have said, anyone starting Pegasys should, if possible, try a low dose and increase as necessary. Need to build up tolerance.
Paul123456
in
MPN Voice
6 years ago
Hep c medicine
Hello, new on here and worried about my husband who has hep c, we received a letter today that the nhs have approved
interferon
medication, is this given on its own or with something else, I don’t know what to expect and worried about side effects, is this an old version of treatment, anyone help please
Hello, new on here and worried about my husband who has hep c, we received a letter today that the nhs have approved
interferon
medication, is this given on its own or with something else, I don’t know what to expect and worried about side effects, is this an old version of treatment, anyone help please
Surjy
in
Hepatitis C Trust
6 years ago
Medications that can affect thyroid function
Those are: lithium, amiodarone, fluoride, HRT/estrogen, Proton Pump Inhibitors,
Interferon
, Accutane, Iodine (excess), Botox. I have previously heard that beta-blockers also disrupt thyroid, but that was not mentioned. https://thyroidpharmacist.com/articles/9-medications-toxic-thyroid/
Those are: lithium, amiodarone, fluoride, HRT/estrogen, Proton Pump Inhibitors,
Interferon
, Accutane, Iodine (excess), Botox. I have previously heard that beta-blockers also disrupt thyroid, but that was not mentioned. https://thyroidpharmacist.com/articles/9-medications-toxic-thyroid/
Eddie83
in
Thyroid UK
6 years ago
Interferon and itchy toes
Hi all, this might be a daft question but I'll ask it anyway :) I've just started
interferon
(pegasys) and I have horribly itchy middle toes on both feet. I trained as a podiatrist but can't really decide what it is.
Hi all, this might be a daft question but I'll ask it anyway :) I've just started
interferon
(pegasys) and I have horribly itchy middle toes on both feet. I trained as a podiatrist but can't really decide what it is.
hansyhand
in
MPN Voice
6 years ago
Interferon vs pegInterferon
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
Hi all Can I please ask if anyone has moved away from normal to pegInterferon as a result of side effects and in particular, after feeling depressed? If so, did it help? Thanks Pete
PT99
in
MPN Voice
6 years ago
PV and repeated infections
Is
Interferon
better? My haemo is lovely and very knowledgeable and will probably say the my present drug is achieving the required results. But I get very fed up, and my poor GP must want to run when she sees me coming through the door YET AGAIN!
Is
Interferon
better? My haemo is lovely and very knowledgeable and will probably say the my present drug is achieving the required results. But I get very fed up, and my poor GP must want to run when she sees me coming through the door YET AGAIN!
Splb3317
in
MPN Voice
6 years ago
Useful Presentation if you have PV
Discusses progression risk and treatment options, including possible impact of
Interferon
on progression. Interestingly, there is some evidence to suggest that Pruritus may slow progression!
Discusses progression risk and treatment options, including possible impact of
Interferon
on progression. Interestingly, there is some evidence to suggest that Pruritus may slow progression!
Paul123456
in
MPN Voice
6 years ago
Interesting transcript interview with Dr Silver
He is very pro early
Interferon
if you don’t get that from interview! In other Presentations, he has said he expects a progression stopping drug will be discovered within 5 years. Outright cure will take longer. https://mpnforum.com/dr-richard-t-silver-the-long-view/
He is very pro early
Interferon
if you don’t get that from interview! In other Presentations, he has said he expects a progression stopping drug will be discovered within 5 years. Outright cure will take longer. https://mpnforum.com/dr-richard-t-silver-the-long-view/
Paul123456
in
MPN Voice
6 years ago
Am I nuts? Hoping to find a cure....
The new Oncologist is optimistic that the
Interferon
will keep the PSA stable without Lupron or other ADT treatments. So far it seems there are zero side-effects with the low-dose
interferon
.
The new Oncologist is optimistic that the
Interferon
will keep the PSA stable without Lupron or other ADT treatments. So far it seems there are zero side-effects with the low-dose
interferon
.
Hairlessness
in
Advanced Prostate Cancer
6 years ago
Interferon injection sites
Could anybody advise where I am able to inject my
Interferon
? I am currently doing it into my stomach but I am injecting every other day at present and my skin looks a little red despite rotating sites? Can I give it in my thighs or anywhere else there is some skin?
Could anybody advise where I am able to inject my
Interferon
? I am currently doing it into my stomach but I am injecting every other day at present and my skin looks a little red despite rotating sites? Can I give it in my thighs or anywhere else there is some skin?
Poppy112
in
MPN Voice
6 years ago
Links to latest research
Replacing Chemo/Radiation in SCT’s https://med.stanford.edu/news/all-news/2018/02/using-antibody-for-bubble-boy-disease-shows-early-promise.html Metformin Trial https://www.nature.com/articles/s41419-017-0256-4 Pros and cons of
Interferon
https://www.patientpower.info/video/the-pros-and-cons-of-
interferon
-as-an-mpn-treatment
Replacing Chemo/Radiation in SCT’s https://med.stanford.edu/news/all-news/2018/02/using-antibody-for-bubble-boy-disease-shows-early-promise.html Metformin Trial https://www.nature.com/articles/s41419-017-0256-4 Pros and cons of
Interferon
https://www.patientpower.info/video/the-pros-and-cons-of-
interferon
-as-an-mpn-treatment
Paul123456
in
MPN Voice
6 years ago
Lilly1958
Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but from September 2017 , I have PV too, start with venosection monthly and
interferon
weakly ,only my Hct was 48 and my Hem.
Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but from September 2017 , I have PV too, start with venosection monthly and
interferon
weakly ,only my Hct was 48 and my Hem.
Lilly1958
in
MPN Voice
6 years ago
Video re progression
Interferon
appears only drug that might slow progression but some people can have severe side effects. Ropeginterferon, which hopefully will be available next year, is better tolerated and (I thought) more efficacious.
Interferon
appears only drug that might slow progression but some people can have severe side effects. Ropeginterferon, which hopefully will be available next year, is better tolerated and (I thought) more efficacious.
Paul123456
in
MPN Voice
6 years ago
A very confused update
Hi all I posted on here recently regarding starting medication and
Interferon
in particular for my PV.
Hi all I posted on here recently regarding starting medication and
Interferon
in particular for my PV.
PT99
in
MPN Voice
6 years ago
MPort
Went on
interferon
late 06. So fatigued glad to retire. It took a few years to get used to PV, venesections and
interferon
and then i stableised. Now on low dose Pegasys and lead the best active life I can. Fitbit keeps me focused. I try to keep abreast of information and ideas.
Went on
interferon
late 06. So fatigued glad to retire. It took a few years to get used to PV, venesections and
interferon
and then i stableised. Now on low dose Pegasys and lead the best active life I can. Fitbit keeps me focused. I try to keep abreast of information and ideas.
MPort
in
MPN Voice
6 years ago
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