Travel with Interferon plus other things

[AnitaJ]

I was diagnosed with CALR ET two years ago and was on Hydroxrea and the last 6 weeks have been on Pegasys. I have a couple of queries:

When you travel with the injections and they need to be kept cool how have you done this? Someone suggested a small car fridge, someone else said a cool bag with ice block. The risks of the latter is that they freeze against an ice block.

The other thing isn't that I'm experiencing a metallic taste in my mouth and wonder if this is normal. My disease has just been reduced from 90mcg weekly to every 10 days.

Many thanks for taking the time to read this.

[Cecilie]

Hi AnitaJ, I got a small cool bag from Amazon and travelled with it in my hand luggage. Did not have any problems and the syringe was kept cool until I arrived. You should bring a letter from your doctor just in case.

Kind regards, Cecilie

[AnitaJ in reply to Cecilie]

Thank you for such a prompt response Cecilie. It's amazing that a cool bag was sufficient for a long trip, but glad it was. Thanks for you support with this.

[crapaud]

I travelled with a small cool 'padded envelope' that I got from my chemists which in turn I placed in a cool bag.

Always kept my prescription at hand when travelling.

If I remember rightly Pegasys has to be at room temperature when used.

Gary

[AnitaJ]

Thank you. That sound like a good extra layer. I'll look into it.

[Malaika]

I have used the Frio which are suggested for insulin. I have used them for both Insulin and Interferon with great success. They can be found on Amazon. best wishes Malaika

[AnitaJ in reply to Malaika]

That's great Malaika. I've checked this out and will buy one. Thank you everyone for being so helpful.