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Interferon beta-1a
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A nasty inconvenience or a monster, you choose
G'day I hope your nights sleep was good and your day is going well. I feel today you may be in need of a slight explanation. Twenty years ago I went to my first ever ms group meeting, I was 29 very newly diagnosed ad quite frankly terrified. I went into the lunch and saw a room full of ladies in wheelchairs
G'day I hope your nights sleep was good and your day is going well. I feel today you may be in need of a slight explanation. Twenty years ago I went to my first ever ms group meeting, I was 29 very newly diagnosed ad quite frankly terrified. I went into the lunch and saw a room full of ladies in wheelchairs
RoyceNewton
in
My MSAA Community
6 years ago
VonWillebrand and Pegasys Interferon
Hi Everyone, I recently saw a specialist in NYC. At the appointment they said I should remain on my baby aspirin a day and wouldn't need treatment until I was older for my ET (CALR+) (I am 41) This week they called back saying that my Von Willbrand factor was on the low end and wanted to start treatment
Hi Everyone, I recently saw a specialist in NYC. At the appointment they said I should remain on my baby aspirin a day and wouldn't need treatment until I was older for my ET (CALR+) (I am 41) This week they called back saying that my Von Willbrand factor was on the low end and wanted to start treatment
2017S
in
MPN Voice
6 years ago
EMA approval for ropeginterferon alpha2b?
Hi, I found a article dated 11/06 on businesswire.com with the headline : AOP Orphan Announces Progress of its European Marketing Authorization Procedure of Ropeginterferon alfa-2b The article mentions that The EUropean Medical Agency will make a final decision on whether Ropeg can be marketed in the
Hi, I found a article dated 11/06 on businesswire.com with the headline : AOP Orphan Announces Progress of its European Marketing Authorization Procedure of Ropeginterferon alfa-2b The article mentions that The EUropean Medical Agency will make a final decision on whether Ropeg can be marketed in the
JohnSC
in
MPN Voice
6 years ago
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Hydroxy intolerant - Pegylated Interferon next?
I am just wondering if I should try Pegylated Interferon because I have been so debilitated by the hydroxy and fed up of my haema telling me it's nothing to do with the drug or the condition. I'm ET and JAK2 and intolerant to many drugs associated with blood, except clopidogrel, which I have been taking
I am just wondering if I should try Pegylated Interferon because I have been so debilitated by the hydroxy and fed up of my haema telling me it's nothing to do with the drug or the condition. I'm ET and JAK2 and intolerant to many drugs associated with blood, except clopidogrel, which I have been taking
JackLina
in
MPN Voice
6 years ago
My TSH is apparently in the abnormal range at 0.24. Does this mean i am being over medicated?
I became hypothyroid after receiving treatement for hep C in 2009. The interferon injections, which boost the body's immune system to kill of the virus, unfortunately also attacked my thyroid. I thought i felt so ill due to the treatment, but when they finally checked my thyroid, my TSH was 86.1! I was
I became hypothyroid after receiving treatement for hep C in 2009. The interferon injections, which boost the body's immune system to kill of the virus, unfortunately also attacked my thyroid. I thought i felt so ill due to the treatment, but when they finally checked my thyroid, my TSH was 86.1! I was
Hidden
in
Thyroid UK
6 years ago
Dr's give me no hope. I need help!
I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for Dr. Everson at UCH CO. 5 rounds of interferon A, pegalated interferon and riboviran and betaseron and my genotype 2 didn't respond. Dr. Everson chose Epclusa for
I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for Dr. Everson at UCH CO. 5 rounds of interferon A, pegalated interferon and riboviran and betaseron and my genotype 2 didn't respond. Dr. Everson chose Epclusa for
TaraRae
in
Hughes Syndrome APS Forum
6 years ago
Lilly1958
Hi my MPN friend, lot happening from my last 3-4 month. I have Et for 26 years only on aspirin and platets was 400-500, but after holidej (long flight) my hct go up to 48 and put me on venosection for8 month , was bad and put me on interferon weakly (only 5 weaks) and my old hemo. Told me I have PV
Hi my MPN friend, lot happening from my last 3-4 month. I have Et for 26 years only on aspirin and platets was 400-500, but after holidej (long flight) my hct go up to 48 and put me on venosection for8 month , was bad and put me on interferon weakly (only 5 weaks) and my old hemo. Told me I have PV
Lilly1958
in
MPN Voice
6 years ago
Interferon vs viral drugs - side effects/ experiences/impact on every day life
Hi all My consultant asked me to choose if I wish to start injections (interferons) or tablets (viral drugs). Information online is overwhelming. I would like to hear some real life experiences and how you coped with the side-effects/ changes you had to make to your life-style etc. Thank you
Hi all My consultant asked me to choose if I wish to start injections (interferons) or tablets (viral drugs). Information online is overwhelming. I would like to hear some real life experiences and how you coped with the side-effects/ changes you had to make to your life-style etc. Thank you
Hidden
in
Hepatitis B Trust
6 years ago
severe fibrosis of the liver And Hep c
Hi All, I have hep c since 2002 which I have treated abroad with interferon and rivferon and they told it was gone but it’s been found again 4 months ago last month I had my fibroscan and it’s shows I have Sever liver fibrosis so they jumped me up the que and Dut to start my Hep C 12 weeks treatment
Hi All, I have hep c since 2002 which I have treated abroad with interferon and rivferon and they told it was gone but it’s been found again 4 months ago last month I had my fibroscan and it’s shows I have Sever liver fibrosis so they jumped me up the que and Dut to start my Hep C 12 weeks treatment
Yousafk
in
Hepatitis C Trust
6 years ago
Ramblings on Pre-PMF and early stage MF
There have been multiple threads recently on Pre-PMF and early stage MF. My very limited understanding is that Pre-MF can be hard to distinguish, even via BMB, from ET. My original BMB was plain ET, a second BMB 15 months later produced one dx of ET and another of PV/MPN-U (I had two cores taken, sent
There have been multiple threads recently on Pre-PMF and early stage MF. My very limited understanding is that Pre-MF can be hard to distinguish, even via BMB, from ET. My original BMB was plain ET, a second BMB 15 months later produced one dx of ET and another of PV/MPN-U (I had two cores taken, sent
Paul123456
in
MPN Voice
6 years ago
Help needed pls
I have been diagnosed with ET Jak+ 3 months ago. I have been taking Hydro for 3 months ( 500g once a day) and now my platelets gone down from 1200 to 600. Which is one good news. My doc told me to stop chemo to see how quick the platelets with rise again. And when they do I will have interferon injection
I have been diagnosed with ET Jak+ 3 months ago. I have been taking Hydro for 3 months ( 500g once a day) and now my platelets gone down from 1200 to 600. Which is one good news. My doc told me to stop chemo to see how quick the platelets with rise again. And when they do I will have interferon injection
Elab
in
MPN Voice
6 years ago
Travel with Interferon plus other things
I was diagnosed with CALR ET two years ago and was on Hydroxrea and the last 6 weeks have been on Pegasys. I have a couple of queries: When you travel with the injections and they need to be kept cool how have you done this? Someone suggested a small car fridge, someone else said a cool bag with ice
I was diagnosed with CALR ET two years ago and was on Hydroxrea and the last 6 weeks have been on Pegasys. I have a couple of queries: When you travel with the injections and they need to be kept cool how have you done this? Someone suggested a small car fridge, someone else said a cool bag with ice
AnitaJ
in
MPN Voice
6 years ago
First Treatment of Peg
Hey guys! So I had my first jab yesterday 45mcg, platelets at 1072. I had no initial reaction to the interferon jab, and after 30 mins of sitting in the clinic I left feeling nicely stoned. Within about 20 mins I was really hot but this subsided and I reached home in good form. I’ve had some side effects
Hey guys! So I had my first jab yesterday 45mcg, platelets at 1072. I had no initial reaction to the interferon jab, and after 30 mins of sitting in the clinic I left feeling nicely stoned. Within about 20 mins I was really hot but this subsided and I reached home in good form. I’ve had some side effects
Mackydee123
in
MPN Voice
6 years ago
Interferon alpha /babies
My partner is 35 and on interferon alpha 3 times a week , he is prv,et, jak2 pos . Does anyone know about fathering babies whilst on injections as this was never mentioned to us when he was diagnosed and we are now wanting to try for another baby
My partner is 35 and on interferon alpha 3 times a week , he is prv,et, jak2 pos . Does anyone know about fathering babies whilst on injections as this was never mentioned to us when he was diagnosed and we are now wanting to try for another baby
Brook04
in
MPN Voice
6 years ago
Ropeginterferon
Interesting Presentation by Dr Verstovsek on the 24 months results for Ropeginterferon versus HU. Results have been known for several months but this Presentation fills in the detail. Looks very promising and the three year results now eagerly anticipated. At end year 2, Ropeg (after a slow start) has
Interesting Presentation by Dr Verstovsek on the 24 months results for Ropeginterferon versus HU. Results have been known for several months but this Presentation fills in the detail. Looks very promising and the three year results now eagerly anticipated. At end year 2, Ropeg (after a slow start) has
Paul123456
in
MPN Voice
6 years ago
I'm new here, Interferon and ear ringing (ototoxicity)?
Hi, I'm a 32yo ET patient from Germany and found this group a couple of days ago. I was diagnosed five years ago with 1,9 mil platelets which are controlled by anagrelide (2mg) quite well since then. As some research points to superiority of Interferon in terms of disease progression I've tried Pegintron
Hi, I'm a 32yo ET patient from Germany and found this group a couple of days ago. I was diagnosed five years ago with 1,9 mil platelets which are controlled by anagrelide (2mg) quite well since then. As some research points to superiority of Interferon in terms of disease progression I've tried Pegintron
adiummy
in
MPN Voice
6 years ago
Feeling Rubbish
Hi sorry to moan, diagnosed with PV JAK2 positive last year and have now been on interferon Alpha Roferon for 5mths. I started out on 3x weekly injections but this was increased to 4times weekly 2months ago. Steadily since then and particularly in the last 2weeks I have felt awful, very fatigued, horrible
Hi sorry to moan, diagnosed with PV JAK2 positive last year and have now been on interferon Alpha Roferon for 5mths. I started out on 3x weekly injections but this was increased to 4times weekly 2months ago. Steadily since then and particularly in the last 2weeks I have felt awful, very fatigued, horrible
Poppy112
in
MPN Voice
6 years ago
Thyroid issues
Hi Everyone, I am Ro from the USA! I have hypothyroid Take spirulina I take 6 500mg tabs. It is a superfood containing iron, magnesium, b12, Spirulina is the richest beta carotene food, with a full spectrum of ten mixed carotenoids. It contains vitamins k, D, protien, good for everything truly amazing
Hi Everyone, I am Ro from the USA! I have hypothyroid Take spirulina I take 6 500mg tabs. It is a superfood containing iron, magnesium, b12, Spirulina is the richest beta carotene food, with a full spectrum of ten mixed carotenoids. It contains vitamins k, D, protien, good for everything truly amazing
Roann3
in
Thyroid UK
6 years ago
Peg Interferon Injection technique
Hi everyone, I inject Peg Interferon weekly into my stomach. As instructed I alternate my injection [i] [/i]and select a site approx 2 inches to the side and below my belly button. Twice in the last 3 injections I have clear fluid on my stomach which I am assuming is the Interferon coming out of the
Hi everyone, I inject Peg Interferon weekly into my stomach. As instructed I alternate my injection [i] [/i]and select a site approx 2 inches to the side and below my belly button. Twice in the last 3 injections I have clear fluid on my stomach which I am assuming is the Interferon coming out of the
Jocko
in
MPN Voice
6 years ago
Peg interferon
Hi all Quick question. Those of you on peg interferon, how long and on what dose did you start to see results in platelet reduction? Cheers Joe
Hi all Quick question. Those of you on peg interferon, how long and on what dose did you start to see results in platelet reduction? Cheers Joe
Joerp
in
MPN Voice
6 years ago
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