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Experiences with
Interferon beta-1a
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Am I nuts? Hoping to find a cure....
Hello All, I've followed many of the posts on this site for a few months now, but I've been somewhat reluctant to participate. Some of this reluctance comes from dealing with the emotions of so many men and their families being effected by this insidious cancer and my own situation. Some of my reluctance
Hello All, I've followed many of the posts on this site for a few months now, but I've been somewhat reluctant to participate. Some of this reluctance comes from dealing with the emotions of so many men and their families being effected by this insidious cancer and my own situation. Some of my reluctance
Hairlessness
in
Advanced Prostate Cancer
6 years ago
15 Anti-Inflammatory Foods You Should Be Eating
[u]
15 Anti-Inflammatory Foods You Should Be Eating
[/u] By Shereen Lehman, MS | Reviewed by Grant Hughes, MD Updated November 28, 2017 Inflammation is your immune system's reaction to irritation, injury, or infection. It's a normal response (and actually a good thing), and it's a natural part
[u]
15 Anti-Inflammatory Foods You Should Be Eating
[/u] By Shereen Lehman, MS | Reviewed by Grant Hughes, MD Updated November 28, 2017 Inflammation is your immune system's reaction to irritation, injury, or infection. It's a normal response (and actually a good thing), and it's a natural part
BadHare
in
Healthy Eating
6 years ago
Video re progression
Interferon appears only drug that might slow progression but some people can have severe side effects. Ropeginterferon, which hopefully will be available next year, is better tolerated and (I thought) more efficacious. They say the focus is on finding better drugs for MF rather than slowing progression
Interferon appears only drug that might slow progression but some people can have severe side effects. Ropeginterferon, which hopefully will be available next year, is better tolerated and (I thought) more efficacious. They say the focus is on finding better drugs for MF rather than slowing progression
Paul123456
in
MPN Voice
6 years ago
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Interferon injection sites
Could anybody advise where I am able to inject my Interferon? I am currently doing it into my stomach but I am injecting every other day at present and my skin looks a little red despite rotating sites? Can I give it in my thighs or anywhere else there is some skin? I have tried asking a haematologist
Could anybody advise where I am able to inject my Interferon? I am currently doing it into my stomach but I am injecting every other day at present and my skin looks a little red despite rotating sites? Can I give it in my thighs or anywhere else there is some skin? I have tried asking a haematologist
Poppy112
in
MPN Voice
6 years ago
Lilly1958
Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but from September 2017 , I have PV too, start with venosection monthly and interferon weakly ,only my Hct was 48 and my Hem. Put me on drugs first time after. 26 years, before I Was only on cardia aspirin , but I was 34,
Hi, my name is Lilly, I live in Melbourne , and have MPN ET for 26 years, but from September 2017 , I have PV too, start with venosection monthly and interferon weakly ,only my Hct was 48 and my Hem. Put me on drugs first time after. 26 years, before I Was only on cardia aspirin , but I was 34,
Lilly1958
in
MPN Voice
6 years ago
Links to latest research
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting. I’ve run out of time to find the link re Graft Host rejection advances, will do so later. Best Paul (Hope all the links open!) Replacing Chemo/Radiation in SCT’s https://med.stanford.edu
I thought it would be easier if I grouped all the links I’ve posted into one thread. Imo it’s all encouraging and uplifting. I’ve run out of time to find the link re Graft Host rejection advances, will do so later. Best Paul (Hope all the links open!) Replacing Chemo/Radiation in SCT’s https://med.stanford.edu
Paul123456
in
MPN Voice
6 years ago
PSA & the Sun
New Australian study [1]. "PSA levels and possibly prostate cancer risk may vary with sun sensitivity and sun exposure, the effects of which might be modified by androgen levels." The study seems to have started on the premise that: "Melanoma and prostate cancer may share risk factors." "There is growing
New Australian study [1]. "PSA levels and possibly prostate cancer risk may vary with sun sensitivity and sun exposure, the effects of which might be modified by androgen levels." The study seems to have started on the premise that: "Melanoma and prostate cancer may share risk factors." "There is growing
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Newbie
Hi I'm just new here, I've been diagnosed with ET nearly 12 months ago. I was 47 when first diagnosed now 48. I was put on interferon 3 times a week then increased to daily but didn't respond to it and then side effects were not good. I've just swapped to Hydrea 2 a day and I'm going ok but very tired
Hi I'm just new here, I've been diagnosed with ET nearly 12 months ago. I was 47 when first diagnosed now 48. I was put on interferon 3 times a week then increased to daily but didn't respond to it and then side effects were not good. I've just swapped to Hydrea 2 a day and I'm going ok but very tired
Jlards
in
MPN Voice
6 years ago
Alcohol intolerance. Is alcohol dehydrogenase causing our continued issues even after b12 injections?
I posted previously in regards to having issues with being able to drink any amount of alcohol without feeling like I got run over by a truck. Several others posted they also have this issue. I've been doing some research and alcohol dehydrogenase seems to pop up in several of the articles. https
I posted previously in regards to having issues with being able to drink any amount of alcohol without feeling like I got run over by a truck. Several others posted they also have this issue. I've been doing some research and alcohol dehydrogenase seems to pop up in several of the articles. https
KimberinUS
in
Pernicious Anaemia Society
6 years ago
A very confused update
Hi all I posted on here recently regarding starting medication and Interferon in particular for my PV. Just to recap, I went for my usual 3 monthly clinic in January and my usual consultant was on long term sick, so I saw her replacement who said she thought I should be on medication, which very much
Hi all I posted on here recently regarding starting medication and Interferon in particular for my PV. Just to recap, I went for my usual 3 monthly clinic in January and my usual consultant was on long term sick, so I saw her replacement who said she thought I should be on medication, which very much
PT99
in
MPN Voice
6 years ago
MPort
Hi I have PV since 05. Went on interferon late 06. So fatigued glad to retire. It took a few years to get used to PV, venesections and interferon and then i stableised. Now on low dose Pegasys and lead the best active life I can. Fitbit keeps me focused. I try to keep abreast of information and
Hi I have PV since 05. Went on interferon late 06. So fatigued glad to retire. It took a few years to get used to PV, venesections and interferon and then i stableised. Now on low dose Pegasys and lead the best active life I can. Fitbit keeps me focused. I try to keep abreast of information and
MPort
in
MPN Voice
6 years ago
10 Warming Foods That Can Improve Your Digestion
[u]10 Warming Foods That Can Improve Your Digestion[/u]
When we’re feeling under the weather, warming foods are comforting and easy on our digestive system. Think of the cozy ‘chicken’ soup we crave when we have a cold or the steaming pot of ginger tea to clear our sinuses. Consuming hot foods during
[u]10 Warming Foods That Can Improve Your Digestion[/u]
When we’re feeling under the weather, warming foods are comforting and easy on our digestive system. Think of the cozy ‘chicken’ soup we crave when we have a cold or the steaming pot of ginger tea to clear our sinuses. Consuming hot foods during
BadHare
in
Healthy Eating
6 years ago
Hi everyone,
Hi everyone, great to find this supportive and informative forum! I'm starting Maviret in 2 weeks time. Could be up to 16 weeks as I have type 3a and have had treatment before. (Although I'm hoping for the 8 treatment). I'm waiting to find out if I'll be taking riberveron too. I've had the virus for
Hi everyone, great to find this supportive and informative forum! I'm starting Maviret in 2 weeks time. Could be up to 16 weeks as I have type 3a and have had treatment before. (Although I'm hoping for the 8 treatment). I'm waiting to find out if I'll be taking riberveron too. I've had the virus for
Hidden
in
Hepatitis C Trust
6 years ago
Exasperated
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
I hv been diagnosed for 13 years. Am 52 years old female from India. Due to the cost, have never been on interferons. Had brain lesions when diagnosed. Now had an active lesion in cervical cord, and was administered solumedrol. Present issues are am diagnosed with angina and am on ivabrad 5mg twice and
Zapped
in
My MSAA Community
6 years ago
Hospital appointment
Just after some advice went to my follow up haematology appointment today and my platelets were 519, 3 weeks ago they were 552. At diagnosis of PV in December they were over 1000. I am currently on interferon Alpha and have no problems with this. However my haematologist this morning was very negative
Just after some advice went to my follow up haematology appointment today and my platelets were 519, 3 weeks ago they were 552. At diagnosis of PV in December they were over 1000. I am currently on interferon Alpha and have no problems with this. However my haematologist this morning was very negative
Poppy112
in
MPN Voice
6 years ago
Update
Diagnosed some 4 years ago. HCT was 0.612 Platelets 1162, regular venesection, Hydro, aspirin, all came down ok.. About three or 4 months ago, migrating to interferon, reduction in hydro from 5x1000mg plus 2x 500mg a week, HCT went up slightly, so venesection x 3, another last week... So at the moment
Diagnosed some 4 years ago. HCT was 0.612 Platelets 1162, regular venesection, Hydro, aspirin, all came down ok.. About three or 4 months ago, migrating to interferon, reduction in hydro from 5x1000mg plus 2x 500mg a week, HCT went up slightly, so venesection x 3, another last week... So at the moment
shiftzz
in
MPN Voice
6 years ago
Overactive Bladder - Tolterodine stories?
Hi! I have always been that person who is constantly needing a wee break. I have spoken to my doctors about it before, but its really starting to get in the way of my sleep, needing to get up at least 4 times in the night. They prescribed my Tolterodine Tartrate today and I'd like some opinions? I have
Hi! I have always been that person who is constantly needing a wee break. I have spoken to my doctors about it before, but its really starting to get in the way of my sleep, needing to get up at least 4 times in the night. They prescribed my Tolterodine Tartrate today and I'd like some opinions? I have
Rochyne
in
Bladder Health UK
6 years ago
Interferon for MPN's video - take a look
https://www.patientpower.info/video/the-pros-and-cons-of-interferon-as-an-mpn-treatment?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=MPN020718&utm_content=fa1bb560c5
https://www.patientpower.info/video/the-pros-and-cons-of-interferon-as-an-mpn-treatment?autoplay=1&utm_source=health-topic-alert&utm_medium=email&utm_campaign=MPN020718&utm_content=fa1bb560c5
Jocko
in
MPN Voice
6 years ago
Melanoma Recurrence after 10 Years
Hi everyone, my name is Corey, I'm 31, and have recently found a recurrence of melanoma after almost 10 years NED. In 2008, I had a WLE of a mole removed from my left calf, as well as SLN (which tested positive) and 20 lymph nodes (not positive). I was stage IIIA at this point, and completed the year
Hi everyone, my name is Corey, I'm 31, and have recently found a recurrence of melanoma after almost 10 years NED. In 2008, I had a WLE of a mole removed from my left calf, as well as SLN (which tested positive) and 20 lymph nodes (not positive). I was stage IIIA at this point, and completed the year
coreyanneluck
in
Young Adults with Melanoma
6 years ago
First dose of Interferon
Well, last night I had my first injection of Interferon Roferon A, which was interesting. I took it about 6pm and within an hour was very achey, which led to what can best be described asfull on flu/fever/nausea by 10pm. I took some paracetamol and by the early hours started to feel better. Today I feel
Well, last night I had my first injection of Interferon Roferon A, which was interesting. I took it about 6pm and within an hour was very achey, which led to what can best be described asfull on flu/fever/nausea by 10pm. I took some paracetamol and by the early hours started to feel better. Today I feel
PT99
in
MPN Voice
6 years ago
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