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Interferon beta-1a
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Does interferon slow progression of et?
I have heard a few people say interferon slows down progression of et? Does anyone know is this true? My haemo is leaving me on no meds only aspirin which am happy about but if I have a chance to slow down progression I'd rather take it
I have heard a few people say interferon slows down progression of et? Does anyone know is this true? My haemo is leaving me on no meds only aspirin which am happy about but if I have a chance to slow down progression I'd rather take it
Irishgal12
in
MPN Voice
4 years ago
PV and dreadful itching
Hi everyone, I am 4 weeks into having interferon injections, I had my last one last week, I had a blood test yesterday and see the haematologist tomorrow, and I imagine my dose of 90 will be increased as I am itching like crazy. Has anyone else experienced this while on interferon.....and what can I
Hi everyone, I am 4 weeks into having interferon injections, I had my last one last week, I had a blood test yesterday and see the haematologist tomorrow, and I imagine my dose of 90 will be increased as I am itching like crazy. Has anyone else experienced this while on interferon.....and what can I
Yvette49
in
MPN Voice
4 years ago
Is anyone else like WTF?
I’m very recently diagnosed ET with JAK2 mutation having been tested since I had a TIA (side note, had an MI 4yrs ago which may or may not be related). On a twice daily baby aspirin and eliquis, and starting pegasys soon. How life altering was this for you - particularly mentally? I consider myself and
I’m very recently diagnosed ET with JAK2 mutation having been tested since I had a TIA (side note, had an MI 4yrs ago which may or may not be related). On a twice daily baby aspirin and eliquis, and starting pegasys soon. How life altering was this for you - particularly mentally? I consider myself and
JT_Marlin
in
MPN Voice
4 years ago
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Aspirin and peg interferon
Quick question Iam Et jac positive on peg interferon every other week 45dose. When I was diagnosed my hemo suggested aspirin every day before I even started peg interferon. Was just wondering if I still need aspirin alongside my injection
Quick question Iam Et jac positive on peg interferon every other week 45dose. When I was diagnosed my hemo suggested aspirin every day before I even started peg interferon. Was just wondering if I still need aspirin alongside my injection
Elab
in
MPN Voice
4 years ago
Post 585 Take your time 8 Jan 2020
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
RoyceNewton
in
My MSAA Community
4 years ago
Post 582 Medicines 3 Jan 2020
What are your expectations when "YOU" take a medicine? Any medicine not merely Disease-Modifying Therapy (DMT). Ask yourself again, this time really think about your answer. I take my medicines and with the exception of aspirins, my expectatio nare very low. I do not count on medicine doing very much
What are your expectations when "YOU" take a medicine? Any medicine not merely Disease-Modifying Therapy (DMT). Ask yourself again, this time really think about your answer. I take my medicines and with the exception of aspirins, my expectatio nare very low. I do not count on medicine doing very much
RoyceNewton
in
My MSAA Community
4 years ago
Recommendation on Haematologist in London
Hi, I am travelling to London for some work and plan to see any good Haematologist for ET. I am male, 36 years of age and its been 2 years since diagnosed with ET. Would like to have any recommendations on good haematologist (private practices) for ET in London. I want 2nd opinion on starting Interferon
Hi, I am travelling to London for some work and plan to see any good Haematologist for ET. I am male, 36 years of age and its been 2 years since diagnosed with ET. Would like to have any recommendations on good haematologist (private practices) for ET in London. I want 2nd opinion on starting Interferon
MrThara
in
MPN Voice
4 years ago
Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports
JANUARY 17, 2020 BY JOANA CARVALHO Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports Excessive production of type I interferon (IFN-I) — a molecule that mediates immune and inflammatory responses — in people with systemic lupus erythematosus (SLE) may be caused by small fragments of
JANUARY 17, 2020 BY JOANA CARVALHO Lupus Flares May Be Linked to Damage to Mitochondria, Study Reports Excessive production of type I interferon (IFN-I) — a molecule that mediates immune and inflammatory responses — in people with systemic lupus erythematosus (SLE) may be caused by small fragments of
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
New treatment options
https://www.targetedonc.com/news/expert-highlights-benefits-of-fedratinib-in-subgroup-of-patients-with-myelofibrosis Mesa: It’s an exciting time in MPNs without a doubt. I would break it down into 2 advances. The first is in patients with ET and PV. At this meeting, there continues to be further updates
https://www.targetedonc.com/news/expert-highlights-benefits-of-fedratinib-in-subgroup-of-patients-with-myelofibrosis Mesa: It’s an exciting time in MPNs without a doubt. I would break it down into 2 advances. The first is in patients with ET and PV. At this meeting, there continues to be further updates
Paul123456
in
MPN Voice
4 years ago
Positive Results on Anifrolumab for Lupus Published in New England Journal of Medicine
December 18, 2019 The Lupus Research Alliance (LRA) welcomes additional positive results published today in the New England Journal of Medicine online edition from AstraZeneca’s Phase 3 TULIP-2 trial studying the investigational biologic anifrolumab as a treatment for systemic lupus erythematosus (SLE
December 18, 2019 The Lupus Research Alliance (LRA) welcomes additional positive results published today in the New England Journal of Medicine online edition from AstraZeneca’s Phase 3 TULIP-2 trial studying the investigational biologic anifrolumab as a treatment for systemic lupus erythematosus (SLE
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
LRA Celebrates Major Research Breakthroughs in 2019
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
LRA Celebrates Major Research Breakthroughs in 2019
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
January 7, 2020 2019 was a phenomenal, breakthrough year for lupus research on both the clinical development and basic science fronts. The Lupus Research Alliance (LRA) is incredibly proud that every new discovery leading to a brand new medicine for lupus had its origin in work funded by LRA years ago
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Going on interferon pegasys
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon pegasys injections....wish me luck. 😘😘
Hi everyone, and happy new year 💞 From next Wednesday I am having to go onto interferon pegasys injections....wish me luck. 😘😘
Yvette49
in
MPN Voice
4 years ago
Hydroxycarbamide to interferon injection and side effects
I am 50yrs old diagnosed with ET Jak2 positive 2 yes ago. I was on 500 and 1000mg of hydroxycarbamide and platelets lowered from 950 to 550 however stopped working platelets started to rise and I had dreadful mouth ulcers and soreness. I've been on 90ml interferon weekly for 6 weeks now and had suffered
I am 50yrs old diagnosed with ET Jak2 positive 2 yes ago. I was on 500 and 1000mg of hydroxycarbamide and platelets lowered from 950 to 550 however stopped working platelets started to rise and I had dreadful mouth ulcers and soreness. I've been on 90ml interferon weekly for 6 weeks now and had suffered
Sam247
in
MPN Voice
4 years ago
Taking Peginterferon
Today I will be taking my first Peg Interferon injection - starting on 45mcg once a week. What’s everyone’s routine for taking it?. Am planning at bed time with a couple of Paracetamol and hopefully sleep through the worst (for those that experience side effects - how quickly after taking do you experience
Today I will be taking my first Peg Interferon injection - starting on 45mcg once a week. What’s everyone’s routine for taking it?. Am planning at bed time with a couple of Paracetamol and hopefully sleep through the worst (for those that experience side effects - how quickly after taking do you experience
Tylerdog1
in
MPN Voice
4 years ago
Diabetes 2 - cause & treatment
Diabetes 2 is now reclassified as an Autoimmune disease. See article below http://www.medicalnewstoday.com/articles/222766.php It means there are antibodies to Insulin. The insu-lin is there but the antibodies bind to it and it is not free to act as insulin. Even when more insulin is produced
Diabetes 2 is now reclassified as an Autoimmune disease. See article below http://www.medicalnewstoday.com/articles/222766.php It means there are antibodies to Insulin. The insu-lin is there but the antibodies bind to it and it is not free to act as insulin. Even when more insulin is produced
brick9
in
Diabetes Research & Wellness Foundation
4 years ago
Breakthrough science provides hope for lupus patients
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
DECEMBER 18, 2019
Breakthrough science provides hope for lupus patients
by
Monash University
Today the prestigious New England Journal of Medicine (NEJM) publishes research led by Monash University Professor Eric Morand that offers the first real hope for the treatment of lupus, a disease
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Post 578 Why 20 Dec 2019
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
Why do I say what I say? Why do I put in writing and post it here for all who want to, to read and think about? The answer is long and easy, depending on how "YOU" look at it. Twenty plus years ago, when I was diagnosed (Dx'd). I was a younger man with a future ahead of me. I had plans, dreams
RoyceNewton
in
My MSAA Community
4 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Newly joined
Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Had JAK2 ET for 15 years now, with no symptoms and only being treated with Venesections. It is now changing to Myeloid Fibrosis, still with no symptoms - but nows the time to start taking Interferon to manage it . Wondering what people’s experience of taking this is
Tylerdog1
in
MPN Voice
4 years ago
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