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Interferon beta-1a
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Aches and pains
Evening All Hope you are all staying safe Just a question I want to throw out there I am a fit 47 year old who exercises regularly and have done many big events like the London marathon, prudential 100 cycle and serpentine 2 mile swim after being diagnosed. I have had ET for over 9 1/2 years now
Evening All Hope you are all staying safe Just a question I want to throw out there I am a fit 47 year old who exercises regularly and have done many big events like the London marathon, prudential 100 cycle and serpentine 2 mile swim after being diagnosed. I have had ET for over 9 1/2 years now
Gunner73
in
MPN Voice
4 years ago
Hydroxyurea vs interferon for younger patients
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
My 18yr old son has JAK2+ ET. Right now he only takes daily 81 aspirin. During my discussion with the hematologist, their drug of choice, if needed, is hydroxyurea. Everything I’ve read and have seen on this board is that interferon (peg) is preferred for the younger ET patients. She said HU is better
Nmom
in
MPN Voice
4 years ago
Prostate Cancer dormancy – recent Australian study. “Prostate cancer cell‐intrinsic interferon signaling regulates dormancy and metastatic
You need more molecular cell biology than I have to follow the detail of this long complex research study. A significant element for me was that they tested their mouse study findings against actual Pca patient samples. Hopefully this study will lead to clinical trials. “Abstract. The latency associated
You need more molecular cell biology than I have to follow the detail of this long complex research study. A significant element for me was that they tested their mouse study findings against actual Pca patient samples. Hopefully this study will lead to clinical trials. “Abstract. The latency associated
Bjry
in
Advanced Prostate Cancer
4 years ago
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Need input on ADT, Brachytherapy, etc.
Hi folks. I have a diagnosis of 3+4 with PSA of 21. I am on the fence and cannot decide which treatment to get. My doctor wants me to get the ADT (hormone therapy) to shrink the prostate so we can then do Brachy "seeds'. My family wants me to get it out with surgery. I have locally spoken to 3-4 men
Hi folks. I have a diagnosis of 3+4 with PSA of 21. I am on the fence and cannot decide which treatment to get. My doctor wants me to get the ADT (hormone therapy) to shrink the prostate so we can then do Brachy "seeds'. My family wants me to get it out with surgery. I have locally spoken to 3-4 men
CarrotBoy
in
Advanced Prostate Cancer
4 years ago
ET calr type 2 on hydab can we get pregnancy
Hii my wife is Et calr type 2 postive, 6 months ago and her age is 31 years.we are on asprin + hydab(12 tablets per week) and we want kids but if we stop hydab her platelets are crossing 13 lakhs. Doctor told to wait for 6 months,I heard about interferon if any one is using interferon plz guide us.
Hii my wife is Et calr type 2 postive, 6 months ago and her age is 31 years.we are on asprin + hydab(12 tablets per week) and we want kids but if we stop hydab her platelets are crossing 13 lakhs. Doctor told to wait for 6 months,I heard about interferon if any one is using interferon plz guide us.
Aruntez
in
MPN Voice
4 years ago
Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
4 years ago
Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and characteristics of patients with fatal COVID-19 By Denise Baez NEW YORK -- April 9, 2020 -- In today’s DG Alert, we cover sudden olfactory loss function as
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
HepC, alcohol and drugs
This past week was terribly heart breaking for me. My friend, my best friend for 8 years Royal Whitehead was lost this week. He had had HepC, probably jailhouse tattoo infected close to 30 years ago but refuse the old interferon treatment. When in 2012, the year I joined the Hepatitis C Family and Friends
This past week was terribly heart breaking for me. My friend, my best friend for 8 years Royal Whitehead was lost this week. He had had HepC, probably jailhouse tattoo infected close to 30 years ago but refuse the old interferon treatment. When in 2012, the year I joined the Hepatitis C Family and Friends
bbgoode
in
Hepatitis C Support
4 years ago
Got my letter too..!
Looks like the NHS have finally got down to M for MPN as many of us have now had our ‘extremely vulnerable’ letters..! I’m not 100% convinced that well-controlled ET with Pegasys really makes me vulnerable (hoping interferon might actually give some protection!) but will follow the advice anyway - it
Looks like the NHS have finally got down to M for MPN as many of us have now had our ‘extremely vulnerable’ letters..! I’m not 100% convinced that well-controlled ET with Pegasys really makes me vulnerable (hoping interferon might actually give some protection!) but will follow the advice anyway - it
AndyT
in
MPN Voice
4 years ago
I have Covid 19 - I’ m worried about taking my Peg medication.
I thought I’d been so careful, shielding, not allowing friends and family to visit. Have food delivery & detol spraying everything delivered. I had a few Amazon deliveries, again told the delivery man to leave parcels in the summer house & sprayed Detol on the contents, then washed my hands and threw
I thought I’d been so careful, shielding, not allowing friends and family to visit. Have food delivery & detol spraying everything delivered. I had a few Amazon deliveries, again told the delivery man to leave parcels in the summer house & sprayed Detol on the contents, then washed my hands and threw
Raphael_UK
in
MPN Voice
4 years ago
Injection video
I saw a video on here that Maz posted. It showed a woman injecting interferon. My 18yr old son does not need medicine (other than daily aspirin-ET JAK 2+), but I was telling him about the video. He asked to see it, but now I can’t find it. I’ve done a search with injection, interferon etc. Does anyone
I saw a video on here that Maz posted. It showed a woman injecting interferon. My 18yr old son does not need medicine (other than daily aspirin-ET JAK 2+), but I was telling him about the video. He asked to see it, but now I can’t find it. I’ve done a search with injection, interferon etc. Does anyone
Nmom
in
MPN Voice
4 years ago
Medication
Hi everyone just wanted to ask if any have had problems with getting interferon 2a , my hematology doctor has informed me of this, so might have to change medication again, so gutted. For over 10 years i was on interferon 2-b then September had to change because could not get hold of it, thats when they
Hi everyone just wanted to ask if any have had problems with getting interferon 2a , my hematology doctor has informed me of this, so might have to change medication again, so gutted. For over 10 years i was on interferon 2-b then September had to change because could not get hold of it, thats when they
Jbut
in
MPN Voice
4 years ago
Severe Tinnitus : hydroxycarbamide vs interferon
Hello everybody, I hope some of you can help me with an answer... I have had PV for over 30 years, JAK2 positive, clopidogrel, flebotomies. Seven years ago I got tinnitus which then was at a very disturbing but livable level: the last month it has increased to a quite unbearable. Since also my hematocrit
Hello everybody, I hope some of you can help me with an answer... I have had PV for over 30 years, JAK2 positive, clopidogrel, flebotomies. Seven years ago I got tinnitus which then was at a very disturbing but livable level: the last month it has increased to a quite unbearable. Since also my hematocrit
Gabrielle79
in
MPN Voice
4 years ago
Who decides on high risk or not?
Hi all I have seen all the posts and am as confused as most of you to know if I will be receiving a letter or not? I have managed to speak to my haematology team this morning and they have advised me that it’s your local GP who puts together the list with NHSE and the haematology team don’t send out
Hi all I have seen all the posts and am as confused as most of you to know if I will be receiving a letter or not? I have managed to speak to my haematology team this morning and they have advised me that it’s your local GP who puts together the list with NHSE and the haematology team don’t send out
Gunner73
in
MPN Voice
4 years ago
Update..
PV, JAK2+ Hydroxy and Pega. Been up and down with my hct, they added Interferon about 2 years ago, not much change, some venesections etc. Over the last three visits, my hct has come down, spoke to the consultant this morning, very pleased, next appointment (telephone) in 3 months and a reduction in
PV, JAK2+ Hydroxy and Pega. Been up and down with my hct, they added Interferon about 2 years ago, not much change, some venesections etc. Over the last three visits, my hct has come down, spoke to the consultant this morning, very pleased, next appointment (telephone) in 3 months and a reduction in
shiftzz
in
MPN Voice
4 years ago
The unknown
Hi all These times are very worrying and confusing for us all I am seeing all the chats and coming up with the conclusion that us with a MPN are none the wiser as to us being in the high risk group or not. Some say it seems to depend on your own areas specialists or GP to decide, some seem to think
Hi all These times are very worrying and confusing for us all I am seeing all the chats and coming up with the conclusion that us with a MPN are none the wiser as to us being in the high risk group or not. Some say it seems to depend on your own areas specialists or GP to decide, some seem to think
Gunner73
in
MPN Voice
4 years ago
can corona symptoms be different if on medication?
Hi can you have different symptoms if on medication for ET? I am on interferon and have had a dry throat for the last couple of days but no cough? I am also experiencing a slight pain in the centre of my chest? Does interferon have affects on the virus if contracted? Thanks
Hi can you have different symptoms if on medication for ET? I am on interferon and have had a dry throat for the last couple of days but no cough? I am also experiencing a slight pain in the centre of my chest? Does interferon have affects on the virus if contracted? Thanks
Gunner73
in
MPN Voice
4 years ago
European clinical trial starts on possible coronavirus treatments.
A European clinical trial involving some 3,200 people has been launched to test four possible experimental treatments against the coronavirus, AFP reports. The four treatments to be studied are remdesivir, lopinavir and ritonavir in combination, the latter being administered with or without interferon
A European clinical trial involving some 3,200 people has been launched to test four possible experimental treatments against the coronavirus, AFP reports. The four treatments to be studied are remdesivir, lopinavir and ritonavir in combination, the latter being administered with or without interferon
2greys
in
Lung Conditions Community Forum
4 years ago
Updated x2: NAC May Mitigate Coronavirus Severity, also Potential Risks
I wrote about a study indicating that NAC is beneficial in Parkinson's here: https://healthunlocked.com/parkinsonsmovement/posts/133771398/nac-demonstrated-beneficial-in-pd That benefit may have been due to NAC administered by the IV route. The idea that NAC may mitigate coronavirus severity is based
I wrote about a study indicating that NAC is beneficial in Parkinson's here: https://healthunlocked.com/parkinsonsmovement/posts/133771398/nac-demonstrated-beneficial-in-pd That benefit may have been due to NAC administered by the IV route. The idea that NAC may mitigate coronavirus severity is based
park_bear
in
Cure Parkinson's
4 years ago
ET and working in hospital
Worried at the moment, i work on a maternity ward, direct contact with patients , i have ET and medication interferon alpha 2a, i know its safer than working in A and E department,but am still worried
Worried at the moment, i work on a maternity ward, direct contact with patients , i have ET and medication interferon alpha 2a, i know its safer than working in A and E department,but am still worried
Jbut
in
MPN Voice
4 years ago
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