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Interferon beta-1a
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Grapefruit and Peg?
Hi everyone I remember reading somewhere that you should avoid grapefruit if you are on Peg Interferon as it can interact with the drug. Anyway, I was out on a leaving do on Friday night on the G&T’s loaded with grapefruit and tonic, having clearly forgot to avoid the luscious fruit and have since been
Hi everyone I remember reading somewhere that you should avoid grapefruit if you are on Peg Interferon as it can interact with the drug. Anyway, I was out on a leaving do on Friday night on the G&T’s loaded with grapefruit and tonic, having clearly forgot to avoid the luscious fruit and have since been
Mackydee123
in
MPN Voice
6 years ago
Measles vaccine live attenuated
Has anyone had this vaccine since dx? My understanding is that MPN patients should avoid. In view of the current outbreak of measles, this is a bit of a concern for those of us who have managed to avoid measles when young. Anyone know what the risks are if we do have the vaccine, especially if on Interferon
Has anyone had this vaccine since dx? My understanding is that MPN patients should avoid. In view of the current outbreak of measles, this is a bit of a concern for those of us who have managed to avoid measles when young. Anyone know what the risks are if we do have the vaccine, especially if on Interferon
Paul123456
in
MPN Voice
6 years ago
Platelets still not reducing
Hi all Thanks for advice so far on this forum. I have now been on peg interferon for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down. My platelets are still hovering
Hi all Thanks for advice so far on this forum. I have now been on peg interferon for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down. My platelets are still hovering
Joerp
in
MPN Voice
6 years ago
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Useful update on Pegasys
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Paul123456
in
MPN Voice
6 years ago
Vitamin D Status in the ATBC study & Cancer Mortality.
New study below [1]. "The Alpha-Tocopherol, Beta-Carotene (ATBC) Lung Cancer Prevention Study was a randomized, double-blind, placebo-controlled, 2 x 2 factorial design, primary prevention trial testing the hypothesis that alpha-tocopherol (50 mg/day) and beta-carotene (20 mg/day) supplements reduce
New study below [1]. "The Alpha-Tocopherol, Beta-Carotene (ATBC) Lung Cancer Prevention Study was a randomized, double-blind, placebo-controlled, 2 x 2 factorial design, primary prevention trial testing the hypothesis that alpha-tocopherol (50 mg/day) and beta-carotene (20 mg/day) supplements reduce
pjoshea13
in
Advanced Prostate Cancer
6 years ago
TAMARIN STUDY now open across the UK in 13 hospitals
TAMARIN STUDY
The TAMARIN study is a very exciting study based on UK science and is now open in 13 hospitals across the UK. The study is a multicentre phase II clinical trial which will assess the safety and activity of Tamoxifen in MPNs. Many people with MPNs have mutations (changes) to certain
TAMARIN STUDY
The TAMARIN study is a very exciting study based on UK science and is now open in 13 hospitals across the UK. The study is a multicentre phase II clinical trial which will assess the safety and activity of Tamoxifen in MPNs. Many people with MPNs have mutations (changes) to certain
Mazcd
MPNVoice
in
MPN Voice
6 years ago
None A none B and all of a sudden theirs C
Hi to all that read this....... In 1974 I had a blood transfusion after a knife attack. In the 1980's I thought I would be a good citizen and give blood. Imagine my surprise when I was asked to go to Birmingham Blood Transfusion Unit as they had found a none A none B hep virus which was unknown in
Hi to all that read this....... In 1974 I had a blood transfusion after a knife attack. In the 1980's I thought I would be a good citizen and give blood. Imagine my surprise when I was asked to go to Birmingham Blood Transfusion Unit as they had found a none A none B hep virus which was unknown in
stevita
in
Hepatitis C Trust
6 years ago
Vitamin D & PCa Survival.
Do vitamin D levels affect PCa survival? Malmö, Sweden, is probably one of the worst places in the world to do a D study, since most men will be deficient for a good part of the year, without supplementation. Nevertheless [1]: "We examined the associations between pre-diagnostic serum levels of vitamin
Do vitamin D levels affect PCa survival? Malmö, Sweden, is probably one of the worst places in the world to do a D study, since most men will be deficient for a good part of the year, without supplementation. Nevertheless [1]: "We examined the associations between pre-diagnostic serum levels of vitamin
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Showers and itching
Years ago I was a sufferer, hot showers itch like hell... Now.. Hydro, Interferon, Itch whe I have COLD showers...
Years ago I was a sufferer, hot showers itch like hell... Now.. Hydro, Interferon, Itch whe I have COLD showers...
shiftzz
in
MPN Voice
6 years ago
Disposal of unused Pegasys Interferon
I live in the US, and am discouraged at the wastefulness that the manufacturers of Pegasys Interferon have shown. Each vial holds 180micrograms of medication. Without insurance, this would cost between $1100 and $1400 PER WEEK!!! Fortunately, I pay only $25 per week, or $100 per month, with my insurance
I live in the US, and am discouraged at the wastefulness that the manufacturers of Pegasys Interferon have shown. Each vial holds 180micrograms of medication. Without insurance, this would cost between $1100 and $1400 PER WEEK!!! Fortunately, I pay only $25 per week, or $100 per month, with my insurance
clevemic
in
MPN Voice
6 years ago
Pegasus interferon and chronic sore throat
I've had a horrible sore throat now for 11 days and I'm starting to feel very down about it (probably due to lack of sleep rather than the sore throat!). I've seen my GP who thinks it's just a virus which should resolve in 7 days (I saw him on day 9). Could this be related to taking interferon for PV
I've had a horrible sore throat now for 11 days and I'm starting to feel very down about it (probably due to lack of sleep rather than the sore throat!). I've seen my GP who thinks it's just a virus which should resolve in 7 days (I saw him on day 9). Could this be related to taking interferon for PV
hansyhand
in
MPN Voice
6 years ago
I've had ra for 26 years, now rheumy wants be to take biologic and antiviral very worried,looking for alternatives?
Hello,I haven't posted before, I have been reading everybodys posts , I was diagnosed with RA in 1994,resisted dmards ,but eventually took sulphasalazine which worked brilliantly, then in 2003 had to undergo treatment for hepatitis,with interferon, contraindicated when you have RA, so managed with Brufen
Hello,I haven't posted before, I have been reading everybodys posts , I was diagnosed with RA in 1994,resisted dmards ,but eventually took sulphasalazine which worked brilliantly, then in 2003 had to undergo treatment for hepatitis,with interferon, contraindicated when you have RA, so managed with Brufen
chavaudret
in
NRAS
6 years ago
Grapefruit Juice and Interferon
I've been drinking pink grapefruit juice for sometime and then read the MPN Voice on Interferon which said that it was contra-indicated with Interferon, which I went on to in May. I've stopped drinking it but I'm curious as to why this juice is contra-indicated. Can anyone enlighten me? Thank you
I've been drinking pink grapefruit juice for sometime and then read the MPN Voice on Interferon which said that it was contra-indicated with Interferon, which I went on to in May. I've stopped drinking it but I'm curious as to why this juice is contra-indicated. Can anyone enlighten me? Thank you
AnitaJ
in
MPN Voice
6 years ago
Keeping Interferon cool whilst travelling
Hi all Just wondering if anyone has any tips for travelling with Interferon? I’m travelling to Portugal in a couple of weeks and will need to take 5 syringes - total travel time around 7 hours taking into account airport and transfer time. I was going to buy a small cool bag for hand luggage. Any thing
Hi all Just wondering if anyone has any tips for travelling with Interferon? I’m travelling to Portugal in a couple of weeks and will need to take 5 syringes - total travel time around 7 hours taking into account airport and transfer time. I was going to buy a small cool bag for hand luggage. Any thing
PT99
in
MPN Voice
6 years ago
A game changer for Aussies with MPN
Such amazing news to wake up to- I was actually in tears of joy! MPN Alliance Australia Facebook page has just shared this exciting news! We are so grateful to Nathalie for all the hard work she put into making this happen. From MPN Alliance Australia Facebook page- “We are so excited to share this news
Such amazing news to wake up to- I was actually in tears of joy! MPN Alliance Australia Facebook page has just shared this exciting news! We are so grateful to Nathalie for all the hard work she put into making this happen. From MPN Alliance Australia Facebook page- “We are so excited to share this news
CommonDaisy
in
MPN Voice
6 years ago
Hep B treatment
Hi all. I have not been posting for a while. I saw my consultant yesterday. He is puzzled by my situation and will seek 2nd opinion. My liver function tests are good and fibro scan does not show any scaring. He offered to do a biopsy but i declined as i had a very bad experience with it. He has requested
Hi all. I have not been posting for a while. I saw my consultant yesterday. He is puzzled by my situation and will seek 2nd opinion. My liver function tests are good and fibro scan does not show any scaring. He offered to do a biopsy but i declined as i had a very bad experience with it. He has requested
Hidden
in
Hepatitis B Trust
6 years ago
Pegylated Interferon available in Australia?
Hi guys, I’m from Melbourne, Aus. Can someone let me know if pegysus (pegylated interferon) is available in Australia? I’ve been finding conflicting information online. I’m seeing a new specialist tomorrow to talk about changing from HU to interferon, but I’m feeling nervous that I may not have access
Hi guys, I’m from Melbourne, Aus. Can someone let me know if pegysus (pegylated interferon) is available in Australia? I’ve been finding conflicting information online. I’m seeing a new specialist tomorrow to talk about changing from HU to interferon, but I’m feeling nervous that I may not have access
CommonDaisy
in
MPN Voice
6 years ago
Problems with the sun/heat
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to interferon then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
I used to love the sun when I used to live in southern Italy it got to the forty's in the summer but since I changed years ago from hydrea to interferon then pegasys and now jakafi, I just seem to get really sick and have really bad headaches that last for days after being out say fishing or just going
Rastavapa
in
MPN Voice
6 years ago
Anybody pregnant and on Interferon
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Hello, I am Valentina, diagnosed ET, currently 10 week pregnant and just started Iterferon alpha 2b (Intron A). I am a bit scared for my baby and the side effect first time were pretty rough. I could be very happy if there are some women who went or are going thru simmilar...
Rani36
in
MPN Voice
6 years ago
Encouraging trial results re MF
Trial result of Peginterferon combined with Ruxo. Worked especially well for early stage MF patients although side effects/20% discontinuation rate a concern. Remember Ropeg is around the corner which should reduce Interferon related side effects. “Follow‐up was 12 months. Partial remission (PR) and
Trial result of Peginterferon combined with Ruxo. Worked especially well for early stage MF patients although side effects/20% discontinuation rate a concern. Remember Ropeg is around the corner which should reduce Interferon related side effects. “Follow‐up was 12 months. Partial remission (PR) and
Paul123456
in
MPN Voice
6 years ago
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