Hi sorry to moan, diagnosed with PV JAK2 positive last year and have now been on interferon Alpha Roferon for 5mths. I started out on 3x weekly injections but this was increased to 4times weekly 2months ago. Steadily since then and particularly in the last 2weeks I have felt awful, very fatigued, horrible joint pain particularly in my knees at night which is impacting in my quality of sleep. Just feel my quality of life is reducing compared to 12mths ago, I work almost full time in a demanding job with a family so I have to keep going.
I am thinking this could be medication related and since increasing my dose my body only gets one day in between before the next injection is due. Back at hospital on Friday so thinking about asking to change to pegasys. Apparently needed to try Roferon first.
Sorry to moan, has anybody any experience of changing to pegasys and have you felt better. Very keen to stay on Interferon as still quite young in PV terms and want all options open for the future.
Any advice would be gratefully appreciated