I've just joined this site, have been diagnosed with ET and PV for about 4 years now, am relatively young, was diagnosed at 36 and had a stroke at 26! At the time I was moving and was told there was nothing wrong with me other than the stress of moving! Despite Not being able to express words, stuttering and hesitating all the time! 3 (2 late) miscarriages It took another 10 years to find the problem! Although going onto aspirin albeit unbeknown about my disorder at the time) allowed me to have two successful pregnancies!! However, my 2 little girls are very challenging, (1 awaiting diagnosis of ADHD and their other Asperger's syndrome) I'm on interferon and find that I am sooo tired all the time! People don't understand the level of tiredness I feel, I sleep for days in a comatosed state and never know when it will strike!! (Also happened today) Because I look ok, people think I'm fine, or even that I'm making up my symptoms!! I have days when I look and feel ok but others when I cannot get out of bed!! Is anyone else suffering from the tiredness/ exhaustion? And what do you do about it?
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