Morning all. I hope you're all doing well.
I had my first follow up with my consultant last week after my diagnosis. I'm Jak2+ ET and currently on aspirin only. My platelets on my previous bloods had all been around the 600-700 mark but on this visit, they had jumped to 895. I was told that it was nothing to worry about, but in the next breath, I was told that if they go over 1000, then because of my age (45),I would probably be put on interferon. I've done some reading and can't say that I like the sound of the side effects much.
So - do you tend to find that your platelet levels have peaks and troughs and vary quite wildly, going significantly down as well as up?
And any of you who are interferon users - what is the regime and is the taking of this drug a permanent life long feature or is it shorter term to manage the platelets down and then monitor as before. I was a bit shell shocked at my platelet rise and forgot to ask.
Lastly - are the side effects as bad as I fear?
PS. I lied when I said "quick question". It took ages, and I've asked about half a dozen. 😂