Hello, hope you are all well.
I've been on HU for two years and my platelets have never really kept stable for more than 6 weeks and when they were stable my wbc count fell low and HU dosages were altered . I have read posts where some of you have been stable with normal counts for a few years and only visit the heamotologist every three or four months . I'm just wondering why mine won't settle as it seems a long time and if any of you have the same problem . My heamotologist doesn't seem to think it's abnormal and I did mention a change of medication but she said interferon has side effects and she isn't keen on it and I know I can't have anagrelide due to a heart defect . I'm due to go in April and I feel like my platelets are high again so was wondering if anyone has any ideas .... Thankyou