Search
Search
About
Log in
Join
Experiences with
Interferon alfa-2b
Posts
Communities
1,028 public posts
Filter results
Does Interferon affect BMB results?
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
Dx ET JAK2+ with platelets rarely over 600 (just from blood tests). Was on hydroxyurea for 3 years, now on Roferon A (interferon) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether interferon can affect the results
fee13
in
MPN Voice
6 years ago
Delaying Treatment No More - Pegasys, here I come.
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
It's been a little over 2 weeks since my first MPN doctor prescribed me with Pegasys which I decided to put off. I was debating for a while and speaking with another MPN specialist, I am going to start my peg interferon treatment this week. My platelets have increased from the 800s to now 960. I had
annem22
in
MPN Voice
6 years ago
Flu jab and pneumonia
Iam et jak2 positive on 45mg interferon or pegasys ( still cant remember). Yesterday morning I went for my flu jab and was told I need pneumonia jab too. So had two at the same time. Felt fine till late afternoon then I started feel achy etc. Could not sleep all night and this morning have fever and
Iam et jak2 positive on 45mg interferon or pegasys ( still cant remember). Yesterday morning I went for my flu jab and was told I need pneumonia jab too. So had two at the same time. Felt fine till late afternoon then I started feel achy etc. Could not sleep all night and this morning have fever and
Elab
in
MPN Voice
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Milburn - Information on Radioactive Phosphate P32
I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period. Earlier this year suffered leg ulcers. After circulation checks this put down to the prolonged use of Hydrox. Hydrox treatment stopped in April and ulcers started
I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period. Earlier this year suffered leg ulcers. After circulation checks this put down to the prolonged use of Hydrox. Hydrox treatment stopped in April and ulcers started
Milburn
in
MPN Voice
6 years ago
"What's New in MS Research" - The Latest from MSAA
Hello! MSAA is launching a new article series today, "What's New in MS Research," featuring updates on current MS-research topics. In this inaugural article, topics covered include: 1. Ibudilast in progressive MS 2. Fingolimod versus interferon beta 1-a in pediatric MS 3. Lifetime sun exposure and associates
Hello! MSAA is launching a new article series today, "What's New in MS Research," featuring updates on current MS-research topics. In this inaugural article, topics covered include: 1. Ibudilast in progressive MS 2. Fingolimod versus interferon beta 1-a in pediatric MS 3. Lifetime sun exposure and associates
MSAA_Staff
in
My MSAA Community
6 years ago
Just random thoughts for today I think
ms has joined our life, did anybody notice the young man just diagnosed (DX'd) at 15 years of age. I mentioned this last night to "she who must be obeyed" and she said looking back she had noticed things a long time before her Dx. Thinking about it I had noticed the same types of things, and just
ms has joined our life, did anybody notice the young man just diagnosed (DX'd) at 15 years of age. I mentioned this last night to "she who must be obeyed" and she said looking back she had noticed things a long time before her Dx. Thinking about it I had noticed the same types of things, and just
RoyceNewton
in
My MSAA Community
6 years ago
Travel tips - Pegylated Interferon
Hi all. I wonder if anyone has tried Frio cooking travel wallets for travelling with interferon? We go away next week and it’ll be the first time we are away on an injection day so feeling really anxious about travelling with it and keeping it cool. My airline suggested I buy a Frio wallet which looks
Hi all. I wonder if anyone has tried Frio cooking travel wallets for travelling with interferon? We go away next week and it’ll be the first time we are away on an injection day so feeling really anxious about travelling with it and keeping it cool. My airline suggested I buy a Frio wallet which looks
LinaZW
in
MPN Voice
6 years ago
Interferon or not???
HI all, Im ET triple neg 2 years diagnosed. I initially tried Anagrelide but suffered side effects and it made little difference to my platelet level. So went on to Hyroxy, which works well for the platelets if I take 1000 daily. However, I have had nausea daily for 2 years, always have mouth ulcers,
HI all, Im ET triple neg 2 years diagnosed. I initially tried Anagrelide but suffered side effects and it made little difference to my platelet level. So went on to Hyroxy, which works well for the platelets if I take 1000 daily. However, I have had nausea daily for 2 years, always have mouth ulcers,
SuET2017
in
MPN Voice
6 years ago
Pegasys
Hi all. I have been on Interferon alpha injections (anything between 2 and 5 days a week) for the last 8 years. I am going to be changed to pegasys ( supply issue with the interferon). How has everyone else found pegasys? I do get flu like symptoms with interferon but as I take it at night it’s fairly
Hi all. I have been on Interferon alpha injections (anything between 2 and 5 days a week) for the last 8 years. I am going to be changed to pegasys ( supply issue with the interferon). How has everyone else found pegasys? I do get flu like symptoms with interferon but as I take it at night it’s fairly
teddy21
in
MPN Voice
6 years ago
7 weeks on Low Dose Naltrexone (LDN)
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
I am on a mission to eliminate the need for Mirapex (Pramipexole). I have been taking it for over 20 years and it has been very effective at controlling RLS even though it took a larger and larger dose to achieve mastery over the “dancing”. When my arms started joining in the Herky Jerky and I was experiencing
libraryannie
in
Restless Legs Syndrome
6 years ago
side effects
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
It’s been a long year since I was diagnosed with ET + Jak 2 positive and already fought and battled my way through the side effects of Hydroxy, Anagrelide and Interferon. When I started Pegasys four weeks ago, I thought this may be the one. However I started it and I still had not recovered from the
MaggieMagpie49
in
MPN Voice
6 years ago
Change of diagnosis, previously ET - Now Post ET Myleofibrosis JAK2 Negative, CAL R positive
As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I was at the Pre Fibrotic stage of MF when I was diagnosed with ET 10 years ago, 2008. It is a very sad day but I am compelled to not let this disorder get the
As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I was at the Pre Fibrotic stage of MF when I was diagnosed with ET 10 years ago, 2008. It is a very sad day but I am compelled to not let this disorder get the
SP-2008
in
MPN Voice
6 years ago
PV Treatment Options
For me the trickiest part about PV has been deciding optimum treatment plan. The options are: If low risk, venesections and aspirin. Otherwise principle choice is Interferon/Peg or HU with Ruxo a possible alternative for some. The dilemma arises because there is no consensus amongst the experts. Dr Silver
For me the trickiest part about PV has been deciding optimum treatment plan. The options are: If low risk, venesections and aspirin. Otherwise principle choice is Interferon/Peg or HU with Ruxo a possible alternative for some. The dilemma arises because there is no consensus amongst the experts. Dr Silver
Paul123456
in
MPN Voice
6 years ago
Grapefruit and Peg?
Hi everyone I remember reading somewhere that you should avoid grapefruit if you are on Peg Interferon as it can interact with the drug. Anyway, I was out on a leaving do on Friday night on the G&T’s loaded with grapefruit and tonic, having clearly forgot to avoid the luscious fruit and have since been
Hi everyone I remember reading somewhere that you should avoid grapefruit if you are on Peg Interferon as it can interact with the drug. Anyway, I was out on a leaving do on Friday night on the G&T’s loaded with grapefruit and tonic, having clearly forgot to avoid the luscious fruit and have since been
Mackydee123
in
MPN Voice
6 years ago
Measles vaccine live attenuated
Has anyone had this vaccine since dx? My understanding is that MPN patients should avoid. In view of the current outbreak of measles, this is a bit of a concern for those of us who have managed to avoid measles when young. Anyone know what the risks are if we do have the vaccine, especially if on Interferon
Has anyone had this vaccine since dx? My understanding is that MPN patients should avoid. In view of the current outbreak of measles, this is a bit of a concern for those of us who have managed to avoid measles when young. Anyone know what the risks are if we do have the vaccine, especially if on Interferon
Paul123456
in
MPN Voice
6 years ago
Platelets still not reducing
Hi all Thanks for advice so far on this forum. I have now been on peg interferon for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down. My platelets are still hovering
Hi all Thanks for advice so far on this forum. I have now been on peg interferon for 4 months or so. First two weeks on 45 dose then 90 for two weeks and 180 every week since. Unfortunately nothing has changed apart from me being a bit more angry and a bit more down. My platelets are still hovering
Joerp
in
MPN Voice
6 years ago
Useful update on Pegasys
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Of interest to all of us using Interferons or considering their use. Bottom line is that a subset of users can get significant reduction in progression and remission. There are no obvious reasons why some people get such a good response and others don’t. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5421384
Paul123456
in
MPN Voice
6 years ago
it has come to my attention
msers, to just be polite I have been strongly told that I should inform people a little about me. Basically, things that I am 'not" and how I come by my opinions and beliefs. 20 years having travelled this, my ms journey has given me the belief system that I have. I have learned that it can be rather
msers, to just be polite I have been strongly told that I should inform people a little about me. Basically, things that I am 'not" and how I come by my opinions and beliefs. 20 years having travelled this, my ms journey has given me the belief system that I have. I have learned that it can be rather
RoyceNewton
in
My MSAA Community
6 years ago
TAMARIN STUDY now open across the UK in 13 hospitals
TAMARIN STUDY
The TAMARIN study is a very exciting study based on UK science and is now open in 13 hospitals across the UK. The study is a multicentre phase II clinical trial which will assess the safety and activity of Tamoxifen in MPNs. Many people with MPNs have mutations (changes) to certain
TAMARIN STUDY
The TAMARIN study is a very exciting study based on UK science and is now open in 13 hospitals across the UK. The study is a multicentre phase II clinical trial which will assess the safety and activity of Tamoxifen in MPNs. Many people with MPNs have mutations (changes) to certain
Mazcd
MPNVoice
in
MPN Voice
6 years ago
None A none B and all of a sudden theirs C
Hi to all that read this....... In 1974 I had a blood transfusion after a knife attack. In the 1980's I thought I would be a good citizen and give blood. Imagine my surprise when I was asked to go to Birmingham Blood Transfusion Unit as they had found a none A none B hep virus which was unknown in
Hi to all that read this....... In 1974 I had a blood transfusion after a knife attack. In the 1980's I thought I would be a good citizen and give blood. Imagine my surprise when I was asked to go to Birmingham Blood Transfusion Unit as they had found a none A none B hep virus which was unknown in
stevita
in
Hepatitis C Trust
6 years ago
1
...
36
37
38
...
52
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
782 results
My MSAA Community
39 results
British Liver Trust
28 results
View top 10 communities
Sort by
Most Relevant
Newest