As of today I have been diagnosed with Post ET Myleofibrosis intermediate Phase 2, JAK 2 Negative, CAL R Positive. The probability is that I was at the Pre Fibrotic stage of MF when I was diagnosed with ET 10 years ago, 2008.
It is a very sad day but I am compelled to not let this disorder get the better of me. I have too much to live for.
My Haematologist was very kind and spent a lot of time discussing my many questions, many of which I have learnt to ask through this forum and MPN voice website.
I have also been granted a Second opinion and for that I will be seeing a Professor Adam Mead at Oxford University. In the mean Time I would be very interested to hear from anyone that could suggest any questions I should have for him regarding my new challenge in life - Myleofibrosis. I also would like to know whether I should start with Interferon Alpha or Hydroxycarbamide.
I would welcome any support, guidance and advice in my next chapter of my MPN journey.
Wishing wellness to all