I have being suffering from ET for the last 11 years. This has been controlled very successfully with Hydroxycarbamide through this period. Earlier this year suffered leg ulcers. After circulation checks this put down to the prolonged use of Hydrox.
Hydrox treatment stopped in April and ulcers started to heal. Put onto Anagrelide in April ( now at 2 mg morning and 1.5 in evening. Despite this Platelets continue to rise now at 1,320,000.00. Anagrelide not working. Have now been offered the option of either Radioactive Phosphorus P32, Busulfan or Interferon Alpha.
Has anyone any information on these treatments.Incidentally leg ulcers have not quite healed and I am having cramp/burning feelings in lower leg and feet.