ms has joined our life, did anybody notice the young man just diagnosed (DX'd) at 15 years of age. I mentioned this last night to "she who must be obeyed" and she said looking back she had noticed things a long time before her Dx. Thinking about it I had noticed the same types of things, and just put it down to a cheap bladder, not the high quality German engineered version that most people had, no I got the cheap Chinese knock-off. I will bet we all can notice weird things about our pre DX bodies that later turned out to be our travelling companions early visits.
With that, I have noticed over the years many people who had "mono" or "Glandular Fever" as a teenager. Now that really does make you think a little. At least it did me. How about "YOU"?
Okay next thought for the day, and this applies to newbies (newly DX'd) and anybody lost a little lost. Me on a bad day. Live life to the fullest, seize the opportunity, do not just go sit in a wheelchair in the corner. We all have a life, so live it. Because "YOU" have a chronic disability, that is no excuse. to just turn yourself off. Today in 2018 people who have Relapsing Remitting ms (RRms) have really no reason to stop life. There are lots of things to learn about our condition, there are lots of philosophy to learn, lots of meditation techniques to master. If "YOU" live in a dark sky area and "YOU" can afford a telescope. It is a big universe, my friend. I guess if "YOU" have the money a day trader or sound artist might be nice as well, or even a graphic film maker.
Am I making sense to you, just because ms is in your life, it does not mean your life is over by a long shot/shoot. Be careful, "YOU" will see things that are very scary. I remember once early on going to an ms group meeting and see all these people in wheelchairs. I turned and ran, never going back. over the years I have worked out that, that will not be me, and if it ever turns into it I can cope. Remember I am 20 years into my ms life and I have learned and forgotten lots. My coping strategies are not for everybody, I have some very different views on things.
I manage my ms, I do not fight it because it always wins and I really do not like to lose. I wear my protective underwear because I really do not like shopping in soiled underwear. I take Tecfidera (disease Modifying Therapy DMT) because it slows my illness progression. I did interferon beta 1b once because it was my only option. Needles are not my friend so when I could I switched to a tablet. I have tried various eating regimes, because strokes and heart attacks can kill YOU" ms can not so best that I try to stay healthy. I have read some truly weird books about philosophy, meditation and lifestyles, mostly because I have ms, but I can still learn. I may not get out and drink and dance until 3 am, but I can hold a conversation with strangers. ms is in my life, it takes from me, but I am still me. Just like "YOU" are still"YOU" no matter how strangers may look at "YOU". Exercise it may hurt but it really does make "YOU" feel better.
ms is here now or it has been here a while. it really does not matter. Seize the day my friend and make this a life well worth living.
Royce
Just random thoughts
Just a thought for newbies
