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Decompensated Cirrhosis with Odema and Lymphodaema......skin problems
My partner was diagnosed with advanced decompensated Cirrhosis in summer 2020 and due to heart and lung failure was told by the Gastroenterologist no surgery could be offered due to his heart and lung problems as could not withstand a general anaesthetic. Sent home to me for Palliative Care. A 12
My partner was diagnosed with advanced decompensated Cirrhosis in summer 2020 and due to heart and lung failure was told by the Gastroenterologist no surgery could be offered due to his heart and lung problems as could not withstand a general anaesthetic. Sent home to me for Palliative Care. A 12
63745
in
British Liver Trust
2 years ago
Question on Genetic Testing, how much is too much?
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
Pops78
in
Advanced Prostate Cancer
1 year ago
Are there a nomograms or similar tools that would predict recurrence after IMRT/IGRT (without ADT).
In 2015, I underwent 45 sessions of radiation (no ADT) for a small amount of 3+3 and even smaller amout of 3+4, with a pre-radiation PSA of 1.7. My PSA has stabilized at .2 for the past two years. Can't find any post radiation predictive models or tools.
In 2015, I underwent 45 sessions of radiation (no ADT) for a small amount of 3+3 and even smaller amout of 3+4, with a pre-radiation PSA of 1.7. My PSA has stabilized at .2 for the past two years. Can't find any post radiation predictive models or tools.
gary3308
in
Prostate Cancer Network
1 year ago
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SBRT or IMRT
trying to make big decision Any insight, thoughts or experiences appreciated. My husband has denovo oliogometastic pc. Diagnosed may 22 Psa 155 Lymph nodes and one hip bone spot Triplet therapy began june 22 - Zytiga, prednisone, firmagon and taxatere for six cycles - responded well - still
trying to make big decision Any insight, thoughts or experiences appreciated. My husband has denovo oliogometastic pc. Diagnosed may 22 Psa 155 Lymph nodes and one hip bone spot Triplet therapy began june 22 - Zytiga, prednisone, firmagon and taxatere for six cycles - responded well - still
Klunacat
in
Advanced Prostate Cancer
1 year ago
New G10 to the group
I was diagnosed in 2017 as a G10, details are in my profile, the diagnosis after scans was there was no mets detected. Did 3 weeks of IMRT, LDR Brachy and 2 years of ADT. PSA was always undetectable after first Lupron shot. In Jan 2020 went off ADT and remained undetectable for ~12 months, by Jan
I was diagnosed in 2017 as a G10, details are in my profile, the diagnosis after scans was there was no mets detected. Did 3 weeks of IMRT, LDR Brachy and 2 years of ADT. PSA was always undetectable after first Lupron shot. In Jan 2020 went off ADT and remained undetectable for ~12 months, by Jan
daysbetween
in
Advanced Prostate Cancer
1 year ago
Caring for Dad with liver cancer........
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
JulesVee70
in
British Liver Trust
2 years ago
Newly diagnosed Prostate Cancer
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
Wicker12
in
Advanced Prostate Cancer
1 year ago
Surgery or not!
Hi, I’m 77 years of age and I’ve just joined the Macmillan Cancer Club. My story is that following some difficulties swallowing, in April 2021, I had a gastroscopy and was diagnosed with T3N2M0 oesophageal cancer. I had radical chemoradiotherapy treatment for 6 weeks in July / August that year. After
Hi, I’m 77 years of age and I’ve just joined the Macmillan Cancer Club. My story is that following some difficulties swallowing, in April 2021, I had a gastroscopy and was diagnosed with T3N2M0 oesophageal cancer. I had radical chemoradiotherapy treatment for 6 weeks in July / August that year. After
P5132
in
Oesophageal & Gastric Cancer
2 years ago
SLE patients may have reduced response to COVID-19 vaccination
SLE is associated with a higher risk of severe COVID-19, meaning disease requiring hospitalization,
intensive
care
unit stay, or intubation, both before or after vaccination.
SLE is associated with a higher risk of severe COVID-19, meaning disease requiring hospitalization,
intensive
care
unit stay, or intubation, both before or after vaccination.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Undetectable PSA but new bone uptake
I had my 3 month scans and blood work as part of arasec trial (Lupron + darolutamide). The good news - PSA is <0.01. Previously diagnosed M1b. The bone scan however picked up “new focus of uptake in lateral left 11th rib”. Radiologist labeled it indeterminate, doc believes it to be false positive
I had my 3 month scans and blood work as part of arasec trial (Lupron + darolutamide). The good news - PSA is <0.01. Previously diagnosed M1b. The bone scan however picked up “new focus of uptake in lateral left 11th rib”. Radiologist labeled it indeterminate, doc believes it to be false positive
Heykm01
in
Advanced Prostate Cancer
1 year ago
Comfortable Bladder Solution for IMRT & SBRT Figured Out- Hope it is Useful!
I have had now 11 IMRT treatments at UCLA with Dr. KIshan and they have been terrific EXCEPT for the "comfortable full bladder issue" which was like waterboarding for the first couple of treatments... Here is the formula I developed for the "full bladder " issue and it has worked every time. (no urgency
I have had now 11 IMRT treatments at UCLA with Dr. KIshan and they have been terrific EXCEPT for the "comfortable full bladder issue" which was like waterboarding for the first couple of treatments... Here is the formula I developed for the "full bladder " issue and it has worked every time. (no urgency
JWS13
in
Prostate Cancer Network
1 year ago
Pill to end life
I do have a big concern. I was told by my doctors and also palliative care, that there is a pill to take to end your life. My doctors won’t give to me without chemo and radiation, however. I think it’s important to be able to have one as soon as possible. If I have a stroke or other disturbing effects
I do have a big concern. I was told by my doctors and also palliative care, that there is a pill to take to end your life. My doctors won’t give to me without chemo and radiation, however. I think it’s important to be able to have one as soon as possible. If I have a stroke or other disturbing effects
Spinninghands123
in
Glioblastoma Support
2 years ago
IPP Inflatable Penile Implant after PCa Treatment; When to Move on Implant Surgery
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Malnutrition
Hi Everyone. My mother is 6 years into this cruel illness. She is currently in respite palliative care. In recent weeks we have experienced a massive deterioration in her ability to consume anything, including the food we had been pureeing. Her weight has plummeted and she is so so thin.. We are now
Hi Everyone. My mother is 6 years into this cruel illness. She is currently in respite palliative care. In recent weeks we have experienced a massive deterioration in her ability to consume anything, including the food we had been pureeing. Her weight has plummeted and she is so so thin.. We are now
MarieFW
in
PSP Association
2 years ago
Tomotherapy side effects?
Hello, we saw a RO today and based on the 2nd opinion here in AZ, and his interpretation of his PSMA scan; my husband decided to start Radiation via TomoTherapy. Have any of you experienced this; IMRT (targeted ) using CT and targeted to just tumors! Our understanding is that he would have better outcome
Hello, we saw a RO today and based on the 2nd opinion here in AZ, and his interpretation of his PSMA scan; my husband decided to start Radiation via TomoTherapy. Have any of you experienced this; IMRT (targeted ) using CT and targeted to just tumors! Our understanding is that he would have better outcome
Keeper70
in
Advanced Prostate Cancer
1 year ago
Having real tought time with the "Comfortable Bladder Requirement of IMRT (same as SBRT -bladder wise)
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
JWS13
in
Prostate Cancer Network
1 year ago
Feeling fed up
I spent a week in
intensive
care
and further 2 weeks on the cardiologist ward where was decided the defib to put in. I was only 37 at the time I feel as I still haven’t got my head around it all
I spent a week in
intensive
care
and further 2 weeks on the cardiologist ward where was decided the defib to put in. I was only 37 at the time I feel as I still haven’t got my head around it all
Mrstesco
in
British Heart Foundation
2 years ago
Will IMRT give some relief to very painful bone mets?
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
dvcarola2
in
Advanced Prostate Cancer
1 year ago
Comfortable Full Bladder for IMRT 20 Treatments
I am having 20 TX of IMRT at UCLA with Dr. Kishan at UCLA Had 2 tx. M y problem as is most is in guessing the comfortable bladder limit. The first treatment went off fine . Drank 12 oz . one hour before TX and after voiding . The second TX , I had to get off the table an release some urine but still
I am having 20 TX of IMRT at UCLA with Dr. Kishan at UCLA Had 2 tx. M y problem as is most is in guessing the comfortable bladder limit. The first treatment went off fine . Drank 12 oz . one hour before TX and after voiding . The second TX , I had to get off the table an release some urine but still
JWS13
in
Prostate Cancer Network
1 year ago
🎭 The mask slipped😪
My gp surgery managed to crack my facade and make me cry. I finally managed to speak to a person to ask why prescription for nebuliser hadn't been fulfilled. (They fulfilled prescription for ampoules to be nebulised but no nebuliser!) The rudeness and unhelpful attitude beggers belief. I know gps
My gp surgery managed to crack my facade and make me cry. I finally managed to speak to a person to ask why prescription for nebuliser hadn't been fulfilled. (They fulfilled prescription for ampoules to be nebulised but no nebuliser!) The rudeness and unhelpful attitude beggers belief. I know gps
Karenanne61
in
Lung Conditions Community Forum
2 years ago
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