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My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
8 months ago
Flu shot
I got the flu vaccine on Saturday. Since then, I've had a burning pain in my upper right leg. I think it's a side effect of the flu shot. Muscle pain is listed as a side effect. What do you think? Thanks!
I got the flu vaccine on Saturday. Since then, I've had a burning pain in my upper right leg. I think it's a side effect of the flu shot. Muscle pain is listed as a side effect. What do you think? Thanks!
liteglimmer
in
Headway
8 months ago
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Use of NSAIDs in lieu of steroids
Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine was triggered a couple of years ago by a Covid vaccine which uniquely (only this brand has ever had an adverse effect) triggered the range of
Prompted to post for the first time by Bobbykins ( couple of days prior) suggesting onset of PMR was triggered by flu vaccine. I am fairly convinced that mine was triggered a couple of years ago by a Covid vaccine which uniquely (only this brand has ever had an adverse effect) triggered the range of
Daveydog
in
PMRGCAuk
8 months ago
Flu vaccination
Hi. I was wondering if its safe tonhave a flu vaccination after only 4 weeks of having a heart attack and stent fitted?
Hi. I was wondering if its safe tonhave a flu vaccination after only 4 weeks of having a heart attack and stent fitted?
BaronFrankenstein
in
British Heart Foundation
8 months ago
reducing Prednisolone
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
I have had PMR for eight years and for the last five, I have been on 3 mg of prednisolone. My GP was concerned that I had been on Pred for so long. My blood sugar is normal as is my DEXA scan, although it does show slight deterioration in my spine. However, it’s within the normal range. First rheumatologist
Bobbikins
in
PMRGCAuk
8 months ago
hello
I was diagnosed with PMR about four years ago. Generally I am a positive person and I don’t dwell on my symptoms but getting off prednisolone seems to be impossible. I get down to 1mg then it flares again. I’m beginning to see a correlation between the flu vaccination and a flare up. I try to think
I was diagnosed with PMR about four years ago. Generally I am a positive person and I don’t dwell on my symptoms but getting off prednisolone seems to be impossible. I get down to 1mg then it flares again. I’m beginning to see a correlation between the flu vaccination and a flare up. I try to think
Hidden
in
PMRGCAuk
8 months ago
Dizziness
I’m really struggling with almost constant dizziness along with all too frequent nausea. It has been on going for a good few weeks It may be a coincidence but I think it started after my last Covid and Flu jab, can’t be sure, it may have started just before. I also had a sinus infection after
I’m really struggling with almost constant dizziness along with all too frequent nausea. It has been on going for a good few weeks It may be a coincidence but I think it started after my last Covid and Flu jab, can’t be sure, it may have started just before. I also had a sinus infection after
Brushwork
in
NRAS
8 months ago
When life gives you lemons...
So after a few horrendous years of infertility and another IVF failure pre-Christmas, my husband had a chat with me and said I need to stop "hiding away" and need to start socialising again and getting a bit of the "old me", the "pre-infertility me", the "pre-IVF me" back. I realised he was right. I've
So after a few horrendous years of infertility and another IVF failure pre-Christmas, my husband had a chat with me and said I need to stop "hiding away" and need to start socialising again and getting a bit of the "old me", the "pre-infertility me", the "pre-IVF me" back. I realised he was right. I've
WillowPark
in
Fertility Network UK
8 months ago
COVID
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Be-still-my-heart
in
AF Association
8 months ago
Strange Experience
Has anyone had a similar experience? I suddenly had an excruciating pain half-way down my calf on the outside of my right leg. This lasted about 12 hours but was on the same level as the pain I had when I had pulmonary embolisms 2 years ago. It was accompanied by a type of 'cramp' feeling round my entire
Has anyone had a similar experience? I suddenly had an excruciating pain half-way down my calf on the outside of my right leg. This lasted about 12 hours but was on the same level as the pain I had when I had pulmonary embolisms 2 years ago. It was accompanied by a type of 'cramp' feeling round my entire
Mwalimu
in
MPN Voice
8 months ago
Waiting PMR Diagnosis
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Started in September 2023 with stiff hips and buttocks, just woke up like that. Don't know if it was coincidence but this was 3 day's after a flu jab! Gradually over the next few weeks, hip's became stiffer, burning type pain at times down to the knees. Putting on lower half clothes and shoes became
Grandmaziggy
in
PMRGCAuk
9 months ago
flu shot
I got the flu shot a month ago and I can barely move my arm it’s so painful
I got the flu shot a month ago and I can barely move my arm it’s so painful
Joanecindy
in
PMRGCAuk
9 months ago
RSV shot
hello, has anyone gotten the RSV shot having PMR and GCA? I am in between doctors so I thought I would ask here. I also need my Covid booster. No problem in the past with that or the flu shot. Thank you for your input!
hello, has anyone gotten the RSV shot having PMR and GCA? I am in between doctors so I thought I would ask here. I also need my Covid booster. No problem in the past with that or the flu shot. Thank you for your input!
Plains
in
PMRGCAuk
9 months ago
Think I've made a big mistake over flu vaccine!
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me in the car to Spain and it was administered at the pharmacy on Saturday. That was 15 days later. I did not realise until yesterday that it should
Frenchduck
in
PMRGCAuk
9 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
9 months ago
Pneumonia vaccination
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my flu vaccination in the UK just before we came out. I have to say that I have responded well to both vaccinations with no adverse side effects
Elispeth
in
PMRGCAuk
9 months ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
10 months ago
stop prednisone with flu vaccine?
I was told not to take my prednisone and antiviral to receive flu vaccine. Has anyone heard of that? That it would be less potent. When do we recommence ? Thank you!
I was told not to take my prednisone and antiviral to receive flu vaccine. Has anyone heard of that? That it would be less potent. When do we recommence ? Thank you!
bluegirl7
in
PMRGCAuk
10 months ago
Flu Jab and Heart Failure
Hi All, New on here, just wondering whether anyone has had the flu jab after being diagnosed with Heart Failure? I have an Ejection Fraction between 30%-35%. I had 1 stent in the LAD in July. Had angina as well. Is it advisable to have the flu jab?
Hi All, New on here, just wondering whether anyone has had the flu jab after being diagnosed with Heart Failure? I have an Ejection Fraction between 30%-35%. I had 1 stent in the LAD in July. Had angina as well. Is it advisable to have the flu jab?
Rinah49
in
British Heart Foundation
10 months ago
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