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Can it be PA when the Dr says no and the results are inconclusive?
Hi All, I am looking for some thoughts to my PA/B12 deficiency journey. Having an engineering background sometimes makes the grey areas that surround PA difficult and not having a full 100% conclusive diagnosis is difficult for me to know how to progress. I have read most if not all the information
Hi All, I am looking for some thoughts to my PA/B12 deficiency journey. Having an engineering background sometimes makes the grey areas that surround PA difficult and not having a full 100% conclusive diagnosis is difficult for me to know how to progress. I have read most if not all the information
LeighW
in
Pernicious Anaemia Society
4 years ago
Daughter's Diagnosis
I was so very happy to find this group after my pernicious anemia diagnosis. Everyone has shared so much invaluable information and support. Now I have another, very personal, story to share. My wonderful 28 year old daughter was just diagnosed with pernicious anemia. I noticed my daughter's increasing
I was so very happy to find this group after my pernicious anemia diagnosis. Everyone has shared so much invaluable information and support. Now I have another, very personal, story to share. My wonderful 28 year old daughter was just diagnosed with pernicious anemia. I noticed my daughter's increasing
MoKayD
in
Pernicious Anaemia Society
4 years ago
MSN on Supplements
I don't particularly like MSN but it comes on my feed, and there are some interesting articles. Copied and edited some points on this one (you can read it all if you want of course). Most of us will probably know and agree with much or all of it. https://www.msn.com/en-gb/health/familyhealth/19-warning-signs-your-vitamins-arent-going-to-work
I don't particularly like MSN but it comes on my feed, and there are some interesting articles. Copied and edited some points on this one (you can read it all if you want of course). Most of us will probably know and agree with much or all of it. https://www.msn.com/en-gb/health/familyhealth/19-warning-signs-your-vitamins-arent-going-to-work
Hidden
in
Thyroid UK
4 years ago
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NHS website - Blood tests for iron deficiency anaemia
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
Just happened to notice this paragraph when I was checking something else entirely.
[i]Blood tests for iron deficiency anaemia[/i]
[i]Your GP will usually order a full blood count (FBC) test. This will find out if the number of red blood cells you have (your red blood cell count) is normal
helvella
in
Pernicious Anaemia Society
4 years ago
Best Iron Supplement to up Iron & Ferritin levels
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
Hi My Iron and Ferritin are always on the low side. Recently my iron was 13, 3 months before it was 8 and ferritin never seems to go above 30. I am currently on 1 ferrous fumarate daily 210mg, but this never seems to increase levels higher. I can't tolerate two a day as I get a very bad stomach. I have
mistygrey
in
Pernicious Anaemia Society
4 years ago
Is it B12 deficiency
Hi I would like some advice about B12 deficiency. In October 2018 my B12 was 267. My doctor said this was okay so I didn’t supplement but then I started getting more symptoms of dizziness, severe dry eyes at night, 3 episodes of double vision and dizziness especially when standing up from bending over
Hi I would like some advice about B12 deficiency. In October 2018 my B12 was 267. My doctor said this was okay so I didn’t supplement but then I started getting more symptoms of dizziness, severe dry eyes at night, 3 episodes of double vision and dizziness especially when standing up from bending over
Tempe1
in
Pernicious Anaemia Society
4 years ago
Vitamin B12, Folate - trying to figure out what to take
Hi all hoping to get some input on vitamins - I haven't give this enough attention and it is time to start after thyroid ups and downs and not feeling the best. A recent blood test shows high homocysteine as well which, from what I read, means a deficiency in B12 and folate at a cellular level (I have
Hi all hoping to get some input on vitamins - I haven't give this enough attention and it is time to start after thyroid ups and downs and not feeling the best. A recent blood test shows high homocysteine as well which, from what I read, means a deficiency in B12 and folate at a cellular level (I have
Hidden
in
Thyroid UK
4 years ago
Are iron injections available privately or via the Nhs in the UK
Hi, gp's and hospital Dr's have stated iron injections are no longer available in the UK. Wondered if this is true for private? I believe i may need them as i have previously been diagnosed as iron deficient. However ferritin levels high at the time of diagnoses. I suffered brain fog, exhaustion and
Hi, gp's and hospital Dr's have stated iron injections are no longer available in the UK. Wondered if this is true for private? I believe i may need them as i have previously been diagnosed as iron deficient. However ferritin levels high at the time of diagnoses. I suffered brain fog, exhaustion and
Karen154
in
Thyroid UK
4 years ago
Test results back from Medichecks - can anyone please help advise on next steps?
Are these results telling me I have a health Thyroid??? Laboratory Report (Thyroid Check UltraVit Blood Test) Thank you for monitoring your health with Medichecks. Your CRP level is high. This may indicate increased inflammation and/or infection within the body. If you are experiencing pain, fever
Are these results telling me I have a health Thyroid??? Laboratory Report (Thyroid Check UltraVit Blood Test) Thank you for monitoring your health with Medichecks. Your CRP level is high. This may indicate increased inflammation and/or infection within the body. If you are experiencing pain, fever
HC17
in
Thyroid UK
4 years ago
Doctor says to stop B12?
Hi there (again) A bit of background: in Nov/Dec had bloods and my B12 was 155 (iron, vit D also low) had problems getting B12 shots so meanwhile started with oral spray methylcobalamin. My B12 has now increased to 1200 approx. Had appointment with doctor yesterday who said that since my IF came back
Hi there (again) A bit of background: in Nov/Dec had bloods and my B12 was 155 (iron, vit D also low) had problems getting B12 shots so meanwhile started with oral spray methylcobalamin. My B12 has now increased to 1200 approx. Had appointment with doctor yesterday who said that since my IF came back
Sasical
in
Pernicious Anaemia Society
4 years ago
Would a Vitamin B12 deficiency be causing Vertigo?
Hi All, long time reader, first time posting a health related issue. I’ve been suffering dizzy spells since the end of January and I’ve been diagnosed with with Vertigo and I’m late 20’s . I’m just wondering would a deficiency in Vitamin B12 be something to look at? As I’m not allowed to go to work
Hi All, long time reader, first time posting a health related issue. I’ve been suffering dizzy spells since the end of January and I’ve been diagnosed with with Vertigo and I’m late 20’s . I’m just wondering would a deficiency in Vitamin B12 be something to look at? As I’m not allowed to go to work
Drummer91
in
Pernicious Anaemia Society
4 years ago
Vitamins in hashimoto thyroid
So what vitamins r u supposed to take? Vitamin D, vitamin B, vitamin C, Iron, selenium, magnesium, zinc, iodine and so in.... I have been taking 50,000 iu Vitamins D once a week, with K2, iron with vitamin C or orange juice because I am anemic and very tired. I have a pretty good diet and should be getting
So what vitamins r u supposed to take? Vitamin D, vitamin B, vitamin C, Iron, selenium, magnesium, zinc, iodine and so in.... I have been taking 50,000 iu Vitamins D once a week, with K2, iron with vitamin C or orange juice because I am anemic and very tired. I have a pretty good diet and should be getting
Suzi_
in
Thyroid UK
4 years ago
Another reason for increasing Vitamin D level
A paper published by GrassrootsHealth found an 80% lower incidence of breast cancer in women with vitamin D levels of at least 60 ng/ml compared to women with levels below 20 ng/ml. Average blood levels of vitamin D in the United States are approximately 24 ng/ml, well below the scientists' recommended
A paper published by GrassrootsHealth found an 80% lower incidence of breast cancer in women with vitamin D levels of at least 60 ng/ml compared to women with levels below 20 ng/ml. Average blood levels of vitamin D in the United States are approximately 24 ng/ml, well below the scientists' recommended
vocalEK
in
Thyroid UK
4 years ago
vitamin b12 and d deficiency
just had my quarterly b12 jag but feel like I need them more frequent, doctor has halved my vitamin d from 1600 to 800 and I feel worse than ever, I feel like I have to fight for every small thing from my doctor. I have Asperger's as well so doctor doesn't care about anything I say.
just had my quarterly b12 jag but feel like I need them more frequent, doctor has halved my vitamin d from 1600 to 800 and I feel worse than ever, I feel like I have to fight for every small thing from my doctor. I have Asperger's as well so doctor doesn't care about anything I say.
alex27islay
in
Pernicious Anaemia Society
4 years ago
Oral spray, increased serum B12
Hello I have just got my latest blood results. IF negative and my B12 has increased from starting my Oral B12 spray on the 10th of December. I have gone from 155 to 1136. With these results using just spray can it be safely said that I don't have Pernicious Anemia? And therefore should I continue taking
Hello I have just got my latest blood results. IF negative and my B12 has increased from starting my Oral B12 spray on the 10th of December. I have gone from 155 to 1136. With these results using just spray can it be safely said that I don't have Pernicious Anemia? And therefore should I continue taking
Sasical
in
Pernicious Anaemia Society
4 years ago
Do we need to stop taking vitamin d before a blood test for checking vitamin d level?
Hi all, In a week's time, I will fill two vials (hopefully!) with blood for a Medichecks Thyroid Check Ultravit. I know to stop taking biotin and iron supplements for a week before doing the test but what about vitamin d since the Ultravit does test vitamin d levels? Do I carry on taking vitamin d as
Hi all, In a week's time, I will fill two vials (hopefully!) with blood for a Medichecks Thyroid Check Ultravit. I know to stop taking biotin and iron supplements for a week before doing the test but what about vitamin d since the Ultravit does test vitamin d levels? Do I carry on taking vitamin d as
Caroline888
in
Thyroid UK
4 years ago
Not so NICE guidelines.
The National Institute for Health and Care Excellence (NICE) has a page with "do not do recommendations". They recommend that b12 should not be tested unless a full blood count shows macrocytosis. Haven't they heard about the concern that folate and folate fortification may mask a b12 deficiency in the
The National Institute for Health and Care Excellence (NICE) has a page with "do not do recommendations". They recommend that b12 should not be tested unless a full blood count shows macrocytosis. Haven't they heard about the concern that folate and folate fortification may mask a b12 deficiency in the
palmier
in
Pernicious Anaemia Society
4 years ago
Please help interpret iron lab results
Could lovely people here help interpret my iron lab results? Is my ferritin too high?? Should I stop supplementing? *Ferritin is going high while iron is going low since supplementing. WHY is saturation % going low (down from 25.8 to 18) since supplementing with iron? P.s. PLEASE NOTE THE DIFFERENCE
Could lovely people here help interpret my iron lab results? Is my ferritin too high?? Should I stop supplementing? *Ferritin is going high while iron is going low since supplementing. WHY is saturation % going low (down from 25.8 to 18) since supplementing with iron? P.s. PLEASE NOTE THE DIFFERENCE
Ocean2
in
Thyroid UK
4 years ago
Vitamins test results
Hi everyone. As promised from my post last week, here are my vitamin tests results. Folate 5.7ugl, normal range 2.9ugl Vitamin D 63nmol/l , range 50 _ 200 Vitamin B12 39pmol/l , range 25.1 _ 165 So my vitamin D and B12 are still quite low despite a small increase from my last test in August. I have
Hi everyone. As promised from my post last week, here are my vitamin tests results. Folate 5.7ugl, normal range 2.9ugl Vitamin D 63nmol/l , range 50 _ 200 Vitamin B12 39pmol/l , range 25.1 _ 165 So my vitamin D and B12 are still quite low despite a small increase from my last test in August. I have
Hypomadness80
in
Thyroid UK
4 years ago
B12 sublingual spray
Is vitamin B12 taken as a sublingual spray more effective than B12 taken orally
Is vitamin B12 taken as a sublingual spray more effective than B12 taken orally
Gsmandin
in
Pernicious Anaemia Society
4 years ago
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