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DBS truly reversible?
Hi all, In all the DBS vs FUS posts the argument is that DBS is reversible. The two people I know who had DBS pulled are in horrible shape - one had a stroke from it. I also know of a number of people where DBS made them worse or did nothing. So for my own knowledge - do you know people where it has
Hi all, In all the DBS vs FUS posts the argument is that DBS is reversible. The two people I know who had DBS pulled are in horrible shape - one had a stroke from it. I also know of a number of people where DBS made them worse or did nothing. So for my own knowledge - do you know people where it has
lenamm
in
Cure Parkinson's
4 years ago
Tomorrow nephrologist appt. first visit
Tomorrow is my first appt with a Nephrologist. I referred myself, as my PCP is not taking my 3 month GFR range 52-57, dehydration, and anemia very seriously. His advice? Drink tons of h20 with lemon and reduce protein intake a lot. My potassium, sodium, and protein levels are normal. Blood pressure is
Tomorrow is my first appt with a Nephrologist. I referred myself, as my PCP is not taking my 3 month GFR range 52-57, dehydration, and anemia very seriously. His advice? Drink tons of h20 with lemon and reduce protein intake a lot. My potassium, sodium, and protein levels are normal. Blood pressure is
AuntMishee
in
Kidney Disease
4 years ago
Coconut Oil for Coronavirus - Anti Viral Strategy?
Hi I'm w&w diagnosed 18 months ago, I'm using coconut oil due to its strong anti virus abilities. Coconut oil contains medium chain triglycerides that have strong antiviral, antifungal, and antibiotic properties, all of which can promote healing and help prevent secondary infections in wounds caused
Hi I'm w&w diagnosed 18 months ago, I'm using coconut oil due to its strong anti virus abilities. Coconut oil contains medium chain triglycerides that have strong antiviral, antifungal, and antibiotic properties, all of which can promote healing and help prevent secondary infections in wounds caused
Hidden
in
CLL Support
4 years ago
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Discouraged-looking for help!
Hi all! Looking for some advice, I have not been formally diagnosed with fibromyalgia yet however, it has been suspected from my GP. I have tried Naproxen, dicyclomine sodium and now I’m on amitriptyline to help me manage my full body chronic pain and chronic fatigue which also seem to not be working
Hi all! Looking for some advice, I have not been formally diagnosed with fibromyalgia yet however, it has been suspected from my GP. I have tried Naproxen, dicyclomine sodium and now I’m on amitriptyline to help me manage my full body chronic pain and chronic fatigue which also seem to not be working
Charlie_2004
in
Fibromyalgia Action UK
4 years ago
DBS and meds
DBS and meds. I can’t get my meds correct after my first DBS programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got DBS and how much meds they take.
DBS and meds. I can’t get my meds correct after my first DBS programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got DBS and how much meds they take.
dfasci
in
Cure Parkinson's
4 years ago
Explosive d* - anxiety?
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
I almost went 3 whole weeks without my one Imodium per week (took one last on the 22 of December) and managed Christmas just fine, normal stools and quite a change in diet (no broccoli, sprouts, risky fruits and alot less chocolate and cake). Along with this I had no work, gigs or nerve inducing plans
Cheesecake17
in
IBS Network
4 years ago
Urea and Electrolytes
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my reading has been <133. What can I do to try to get it within the range?
prunus
in
PMRGCAuk
4 years ago
RECENT EPISODE on 24 January 2020
Though I had experience of knocking sensation before but last Friday's episode was really dreadful after my dinner. On sitting I felt a pressure on mid-chest area, it was something like I have been locked from inside and can get relief if I have some belching. Noted the BP which was high 180/70 HR 78
Though I had experience of knocking sensation before but last Friday's episode was really dreadful after my dinner. On sitting I felt a pressure on mid-chest area, it was something like I have been locked from inside and can get relief if I have some belching. Noted the BP which was high 180/70 HR 78
das1234
in
AF Association
4 years ago
Ok, I'm bad. I just turned 63 and my home general DR. insists on a colonoscopy. I have never.... I mean you know "exit only" had one.
My question is: Should I be concerned about my DBS considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time. For
My question is: Should I be concerned about my DBS considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time. For
Pelley
in
Cure Parkinson's
4 years ago
Post 585 Take your time 8 Jan 2020
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
That does seem to be an obvious statement, but I will say it again. Take your time. "YOU" have just been diagnosed (Dx'd) with Relapsing-Remitting ms (RRms), "YOU" have tears to shed brick walls to kick and the sky to yell at. Give it everything that "YOU" can muster. Let the scientist on the space station
RoyceNewton
in
My MSAA Community
4 years ago
Am I having a relapse?
Hi I was diagnosed in April 18 and put on 15mg of Pred which took effect within and hour I have been slowly tapering without problem except for mild stiffness now and again and have been living a normal life going to the gym walking loads the only side effect from the Pred was insomnia. I have been on
Hi I was diagnosed in April 18 and put on 15mg of Pred which took effect within and hour I have been slowly tapering without problem except for mild stiffness now and again and have been living a normal life going to the gym walking loads the only side effect from the Pred was insomnia. I have been on
JanetT58
in
PMRGCAuk
4 years ago
Raynauds Disease, Positive ANA, normal complement levels, I'm lost.
Hello :) I was just diagnosed with Raynauds and tested positive for elevated ANA titer. I don't know by how much because I was not given the results. My doctor emailed me and told me to get more blood drawn. All of my CBC bloodwork came back normal. Glucose, magnesium, sodium, all normal range. ESR perfect
Hello :) I was just diagnosed with Raynauds and tested positive for elevated ANA titer. I don't know by how much because I was not given the results. My doctor emailed me and told me to get more blood drawn. All of my CBC bloodwork came back normal. Glucose, magnesium, sodium, all normal range. ESR perfect
MissSavvy
in
LUPUS UK
4 years ago
IBS-D - Silicogel
For anyone like me, who suffers from IBS-D, I would thoroughly recommend Solicogel, which you can buy from any natural health shop, such as Holland and Barratt. I have tried many things over the last few years since my problem got worse, but other than the usual Imodium type of tablets, this works very
For anyone like me, who suffers from IBS-D, I would thoroughly recommend Solicogel, which you can buy from any natural health shop, such as Holland and Barratt. I have tried many things over the last few years since my problem got worse, but other than the usual Imodium type of tablets, this works very
laurajn087
in
IBS Network
4 years ago
Subarachnoid haemorrhage
I had a valve replacement in 2018 with good recovery. In October I had a subarachnoid haemorrhage with similar symptoms prior to it happening. Yet again symptoms ignored by GP. Severe hypertension, low potassium and high sodium. Passed out in the street. 10 day stay in hospital after diagnosis.
I had a valve replacement in 2018 with good recovery. In October I had a subarachnoid haemorrhage with similar symptoms prior to it happening. Yet again symptoms ignored by GP. Severe hypertension, low potassium and high sodium. Passed out in the street. 10 day stay in hospital after diagnosis.
Nanny72
in
British Heart Foundation
4 years ago
Need a little bit of help/advice
Hi, New here, so hopefully this post is correct? I moved to Vietnam 2 years ago, whilst over there, I’m very careful in what I eat & where I eat but I have diarrhoea/loose bowl movements at least once a week. I came to the UK for Xmas for 2 weeks (I’m still here) & I still had diarrhoea, I had it on
Hi, New here, so hopefully this post is correct? I moved to Vietnam 2 years ago, whilst over there, I’m very careful in what I eat & where I eat but I have diarrhoea/loose bowl movements at least once a week. I came to the UK for Xmas for 2 weeks (I’m still here) & I still had diarrhoea, I had it on
Uncle7
in
IBS Network
4 years ago
When can you not get DBS?
When I went for my last neurology visit right before Christmas, it was suggested that I consider DBS... I was taken aback, because I can still get good results with c/l (although since my PD honeymoon ended it has gotten a lot harder), and I thought I would have a lot more time until I needed to consider
When I went for my last neurology visit right before Christmas, it was suggested that I consider DBS... I was taken aback, because I can still get good results with c/l (although since my PD honeymoon ended it has gotten a lot harder), and I thought I would have a lot more time until I needed to consider
Hidden
in
Cure Parkinson's
4 years ago
Terrible guts after flu
I have had a fluey virus since the 10th of December. The flu symptoms went away after about 11 days, but during that time I’ve been feeling nauseous and have had diarrhoea. I also had such an acidic stomach I lost my appetite. I got an emergency appointment at my GP on Friday 20th. I was acutely anxious
I have had a fluey virus since the 10th of December. The flu symptoms went away after about 11 days, but during that time I’ve been feeling nauseous and have had diarrhoea. I also had such an acidic stomach I lost my appetite. I got an emergency appointment at my GP on Friday 20th. I was acutely anxious
weegmack
in
IBS Network
4 years ago
DBS revision
I’m curious if anyone has experience or knowledge of the new generation of DBS units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
I’m curious if anyone has experience or knowledge of the new generation of DBS units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
etterus
in
Cure Parkinson's
4 years ago
Feeling on top of the world
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
Hello Ladies, I haven't posted for a while but I have news! I went for a scan last Wednesday and had a meeting with my oncologist on Thursday. The first thing he said was: 'We have your scan results'. I was not expecting them for another month but there was more. 'There is no measurable disease, a couple
LouisaMay
in
SHARE Metastatic Breast Cancer
4 years ago
How many Imodium to take?
Hi there I'm needing to travel today and my stomach has been all over the place for a couple of days haven't eaten much over Christmas as felt so bad. How many Imodium can you have ? It says 6 on the box ?
Hi there I'm needing to travel today and my stomach has been all over the place for a couple of days haven't eaten much over Christmas as felt so bad. How many Imodium can you have ? It says 6 on the box ?
Liverbird59
in
IBS Network
4 years ago
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