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DBS energy
Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
Hi guys. I keep reading about people who -post DBS - went and ran a marathon etc and appear to have gallons of energy. Should I be feeling this? No, I don’t think that they’ve got the program right yet but running a marathon? Ay ay ay
jeeves19
in
Cure Parkinson's
10 months ago
Disimpacted 9 year old and still soiling
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
my 9 year old has been suffering with chronic constipation for 6 years, we are all at our wits end. It is hugely affecting my, but more importantly her, mental health. At the beginning of July we had a hospital stay for disimpaction via a NG tube. This was effective. Doctor prescribed 5 ml of sodium
Natster90
in
ERIC
1 year ago
General blood test - do I need to worry (not that it helps!)
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Urea & electrolytes Serum sodium level 142 mmol/L (133.0-146.0) Serum potassium level 4.5 mmol/ (3.5-5.3) Serum urea level 6.7 mmol/L (3.5-7.2) Serum creatinine level 86 urology/L (49.0-90.0) EGFR. (F) 1.73M2 eGFR using creatinine (CKD-EPI) per 1.73 square metres 60 mL/min (60.9-200.0) …results
Bluey-1
in
PMRGCAuk
1 year ago
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DBS journey
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
Hey Gang. I thought I’d post something as I’m aware that a few of you are following my story with a mind to seeing how it fits into your own life? So, turned on Friday, felt awful Saturday (as you know) better Sunday. But yesterday and today I had awful issues with my voice. The programmer had asked
jeeves19
in
Cure Parkinson's
10 months ago
Good News - Nephrologist Visit Today
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Early CKD Support
1 year ago
Good News From Nephrologist Today!
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
I had my yearly visit with my nephrologist today and received great news (Praise God!)
My eGFR has increased nearly 20 points (74) and creatinine decreased to .83. No protein in urine and sodium, potassium, phosphorus, albumin (as well as other parameters) are all exceptional!
He
HisLittleOne
in
Kidney Disease
1 year ago
Another consultant cancellation
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
My husband was due to speak to the upper GI consultant next week.It has been cancelled again 3rd time. He has been waiting 12 months now for this appointment. I am so angry. I am going to ring the Secretary tomorrow to ask if they can please reconsider. He is very poorly now. Sleeping mostly, not eating
Diamondbabe
in
British Liver Trust
1 year ago
Foslevodopa-Foscarbidopa (Vyalev)
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
10 months ago
Besremi Update 15 Months
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Hi Community! I titrated my Besremi to 180 from 150 over the last three doses (a bit of a story there for another time). I assumed I'd need a phlebotomy as I hadn't had a CBC for 7 weeks and my Hematocrit was already 40 but it went down 2 points! Almost never happens without phlebotomy. Everything
Elizka
in
MPN Voice
1 year ago
DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
10 months ago
Don't know What's happening to me!!
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
Doc recommended 2 x Amytryptyline in Feb., after it was discovered I had 2 x damaged discs in my lower back. Referred me to Physio, (appt. on 22nd!)I was OK for a couple of months, then started to feel dizzy, lost my appetite and taste, everything tastes sweet!, even a roast dinner. Went to see ACP
JanboC
in
PMRGCAuk
1 year ago
Bug or flare?
Hi everyone.. sorry I know I am a broken record on here! But can anyone tell me their thoughts on this please.. Had a stressful week in court with work last week. Really proud of myself as I managed to get through it with the help of Imodium and enteresogel, was lucky as we didn’t have to meet until
Hi everyone.. sorry I know I am a broken record on here! But can anyone tell me their thoughts on this please.. Had a stressful week in court with work last week. Really proud of myself as I managed to get through it with the help of Imodium and enteresogel, was lucky as we didn’t have to meet until
JT1992
in
IBS Network
1 year ago
"BREAKTHROUGH" device approved by FDA for PD
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
"The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an [i]
add-on Parkinson’s treatment.
[/i]" "The platform — called Intelligent Network
PDWarrior1900
in
Cure Parkinson's
10 months ago
Normal bloods
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Woopidoo! Throws hat into the air. Just checked today’s bloods and after 3 years of Pred all the critical bits are normal: urea, creatinine, potassium, sodium, liver function. MCH (part of FBC) is technically low at 26.9 when the normal range starts at 27 and RBC is 5.32 when the upper range of
Mayadill
in
PMRGCAuk
1 year ago
Latest blood results
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Total White Cell Count69 10 9/L NR 4.0-11. Red Blood Cell Count 4.30 10 9/L NR 3.8 - 4.8 Haemoglobin Est 159 g/L NRb120-150 Abnormal Haematocrit 0.48 L/L NR 0.36-0.46;abnormal Mean Corpuscular Volume 110.4fl NR 80-100 Abnormal Mean corpusc Haemaglobin 36.9pg NR 27-34 Abnormal Mean Corpusc Hb 334 g/
Meerkat1234
in
Thyroid UK
1 year ago
low sodium diet
hi everyone need advice it’s been a really bad week for me lately worrying about my brothers liver total failure and me going on a low statin as I mentioned in an earlier post. Well yesterday I had to take my hubby to emergency A and E. kidney stone. A lot of pain and vomiting we arrived early evening
hi everyone need advice it’s been a really bad week for me lately worrying about my brothers liver total failure and me going on a low statin as I mentioned in an earlier post. Well yesterday I had to take my hubby to emergency A and E. kidney stone. A lot of pain and vomiting we arrived early evening
Tinker2015
in
British Heart Foundation
1 year ago
New to Entresco
Not new to ARBs or Beta Blockers. Not new to knowing my body does not take medication well. New to Entresco and suffering very loose bowels, not normal for me !!! Have given it 2 Months to settle but no signs of this appending. Don’t want to give up on gold standard med. Has anyone any advice on coping
Not new to ARBs or Beta Blockers. Not new to knowing my body does not take medication well. New to Entresco and suffering very loose bowels, not normal for me !!! Have given it 2 Months to settle but no signs of this appending. Don’t want to give up on gold standard med. Has anyone any advice on coping
Swalecliffe88
in
British Heart Foundation
1 year ago
Point of Interest
I was just trawling over my last very full blood results to see what I could learn. Again! All this towards taking T3 which appears to be my very necessary direction. Really there were no surprises. Vit D low, minor so far knock on effect to bone tests etc etc. However, for thoroughness and making
I was just trawling over my last very full blood results to see what I could learn. Again! All this towards taking T3 which appears to be my very necessary direction. Really there were no surprises. Vit D low, minor so far knock on effect to bone tests etc etc. However, for thoroughness and making
arTistapple
in
Thyroid UK
1 year ago
6Results of recent blood tests
I just received my printouts of a full blood work up (date 16th may) which includes a FBC I noticed a number of tests weren't included.. for instanceNo B12, foliate, magnesium, calcium, zinc, potassium, cholesterol, or parathyroid hormone( which after our discussion on my calcium and parathyroid hormone
I just received my printouts of a full blood work up (date 16th may) which includes a FBC I noticed a number of tests weren't included.. for instanceNo B12, foliate, magnesium, calcium, zinc, potassium, cholesterol, or parathyroid hormone( which after our discussion on my calcium and parathyroid hormone
birkie
in
Thyroid UK
1 year ago
not diagnosed!
hi all I have not been diagnosed with IBS but I think I have it, the thing is I suffer with bloating , constipation and diarrhoea, the other day at work I had really bad wind then sudden pains in my stomach followed by a sudden rush to the toilet , sorry for next part but graphic , but my bowel movement
hi all I have not been diagnosed with IBS but I think I have it, the thing is I suffer with bloating , constipation and diarrhoea, the other day at work I had really bad wind then sudden pains in my stomach followed by a sudden rush to the toilet , sorry for next part but graphic , but my bowel movement
Prettywoman73
in
IBS Network
1 year ago
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