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Desperately need help pls
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
So since last writing my previous post my Son has been experiencing “cluster seizures” - whereby he goes into a trance like state, talks gibberish and he can’t remember events and has no memory of what has happened. He has had approximately 3 or 4 of these “events” between May and December. The December
Lisamarsh
in
Headway
6 months ago
Switching from Gabapentin to Horizant?
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
I'm currently taking 2400mg of Gabapentin, for my PLMs, and gradually reducing..my plan is to switch to Horizant/Gabapentin enacarbil. Does anyone know how much Gabapentin I need to be taking, in order to switch to 600mg of Horizant? I'm looking for a website that will give me this specific info
pianoplayerPLMD
in
Restless Legs Syndrome
9 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
9 months ago
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EU introduces valproate measures
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
The European Medicines Agency (EMA) has announced precautionary measures for prescribing valproate to men with epilepsy. The measures follow those made by UK regulatory body the Medicines and Healthcare products Regulatory Agency (MHRA). The European regulations are less strict than those made by the
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
6 months ago
Is this IBS bit of a weird one.
So since 10th February this year I started with diarrhea only really once a day after about 2 months (april) I made a doctor appointment where they felt my stomach and it was not hard or sore at all, he wanted to do a stool sample and blood sample which I did and it all came back as normal, still having
So since 10th February this year I started with diarrhea only really once a day after about 2 months (april) I made a doctor appointment where they felt my stomach and it was not hard or sore at all, he wanted to do a stool sample and blood sample which I did and it all came back as normal, still having
beachbabe40
in
IBS Network
1 year ago
My response to WinnieThePoo.
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
"You are sure it's [ALS/PD/AD] a toxic syndrome? Can you describe a mechanism of action for the disease process? You are sure it's not diet? Or stress? Of course you are sure. But unlikely to offer a viable solution to share. Meanwhile, those less blinkered [blinded by tunnel vision] research solutions
SilentEchoes
in
Cure Parkinson's
10 months ago
Possible IBS but GP doesn’t know for sure…..
Hi. I’m really stuck with what’s going on with my body and movements. At the end of March I had what I thought was a standard tummy bug, I didn’t think much of it. After 4 days of diarrhoea and not eating (even water was going through) I tried eating a plain piece of bread. Needless to say that didn’
Hi. I’m really stuck with what’s going on with my body and movements. At the end of March I had what I thought was a standard tummy bug, I didn’t think much of it. After 4 days of diarrhoea and not eating (even water was going through) I tried eating a plain piece of bread. Needless to say that didn’
Steff5678
in
IBS Network
1 year ago
DBS Pre-op. What's involved?
It feels like my DBS surgery is getting nearer. I have an appointment for a pre-op on Sunday and was wondering if anyone knows what to expect?Is there anything I should prepare for? Cheers
It feels like my DBS surgery is getting nearer. I have an appointment for a pre-op on Sunday and was wondering if anyone knows what to expect?Is there anything I should prepare for? Cheers
gingerj
in
Cure Parkinson's
1 day ago
How I’m doing 3 years after deep brain stimulation for Parkinson’s
https://parkinsonsnewstoday.com/columns/how-im-doing-3-years-after-deep-brain-stimulation-parkinsons/
https://parkinsonsnewstoday.com/columns/how-im-doing-3-years-after-deep-brain-stimulation-parkinsons/
Farooqji
in
Cure Parkinson's
26 days ago
Switch diet to Vegetarian - save your kidneys
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
geewhiz
in
Kidney Disease
10 months ago
Sodium cromoglicate - GP won't supply any more
Good afternoon everyone and thank you in advance for any help anyone might be able to offer. I have MCAS and POTS (as well as autoimmune, ME/CFS, histamine intolerance and a raft of other conditions) and recently started on sodium cromoglicate. The outcome has been almost miraculous - the first medication
Good afternoon everyone and thank you in advance for any help anyone might be able to offer. I have MCAS and POTS (as well as autoimmune, ME/CFS, histamine intolerance and a raft of other conditions) and recently started on sodium cromoglicate. The outcome has been almost miraculous - the first medication
PurpleNel
in
The UK Mastocytosis Support Group
7 months ago
Which DBS device to use?
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
sutensera
in
Cure Parkinson's
1 month ago
mucana
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
gigi9
in
Cure Parkinson's
1 month ago
Noninvasive deep brain stimulation shows promise for Parkinson’s. Is it an advanced form of CUE1?
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Farooqji
in
Cure Parkinson's
1 month ago
Pain killers and Hip replacement
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Can someone help please. My hospital says it is VERY HIGH RISK me having a hip replacement, which means I have been having cortisol injections in both hips for 5 years. My hips are so so bad that the injections only last a few weeks rather than months. When I was diagnosed with JAK2 and mylioproliferative
Hildrethbird
in
MPN Voice
10 months ago
Dry eyes
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Hi helpful warriors I am on 35 mg of pred for next 2 weeks, then tapering to 30. Does pred cause dry eyes? ( did have cataract removal surgery in June of 2023.) Since diagnosis of GCA in late July 2023 I have had very dry eyes. I am on Thealoz Duo drops (3% Trehalose, 0.15 Sodium Hyaluronate).
Groda
in
PMRGCAuk
10 months ago
Mercury Pharma Levothyroxine ingredients
Would anyone know if the ingredients of Mercury Pharma’s Levothyroxine have changed at all of the past few years? I’ve been taking 25 mcg for a few years now, always the same brand. I’ve been experiencing severe bloating and heartburn. Doctors can’t find the cause so I’m looking into a potential change
Would anyone know if the ingredients of Mercury Pharma’s Levothyroxine have changed at all of the past few years? I’ve been taking 25 mcg for a few years now, always the same brand. I’ve been experiencing severe bloating and heartburn. Doctors can’t find the cause so I’m looking into a potential change
PinkCat2023
in
Thyroid UK
7 months ago
best foods to eat after ibs d flare
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
I’ve suffered from ibs for years and have been well controlled. Have never needed to do FODMAP as yet as know triggers. Anyway I’ve had the worst flare ever in last 5 days and no improvement. Constant diarrhoea. Everything just going straight through. Imodium helps but I need to start trying to eat
sarahaaronkayley
in
IBS Network
1 year ago
Deep Brain Stimulation Therapy
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
Kingsdaughter1
in
Cure Parkinson's
2 months ago
constipation help
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
hi,I have again started to suffer from constipation, I have been trying to find the best one because a lot of them contain a lot of sodium that draws calcium out of your bones, I have got to be careful with severe osteoporosis,
Radars
in
Bone Health and Osteoporosis UK
10 months ago
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