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Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
2 months ago
Jardiance Approved for CKD
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
Article from Drugs.com FDA Clears Jardiance for Use in Chronic Kidney Disease (CKD) In September, the FDA cleared Jardiance (empagliflozin), from Boehringer Ingelheim and Eli Lilly, to reduce the risk of further worsening of kidney disease, end-stage kidney disease (ESKD), death due to cardiovascular
orangecity41
NKF Ambassador
in
Kidney Disease
10 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
10 months ago
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Can to much B12 cause IBS? SI
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Hello 👋 I SI every day, but after eating lunch, I get terrible IBS 😫 If I'm not on the toilet, I am in bed as I'm so fatigued.😔 I take Imodium just before I eat... but sometimes it doesn't work. 🤔 I've tried going without SI for a few days and the IBS does Improve but my fatigue comes back and
Onlyme75
in
Pernicious Anaemia Society
1 year ago
alergies
hello all. Apologies it’s been a while. Hope you all had a good (and healthy) Xmas This time of year can be challenging for us asthmatics. & a Happy new year 🥳 So I was lucky enough to travel around Brazil with my adult daughter for 2mths returning on 14/12. A major first for me. Since being back
hello all. Apologies it’s been a while. Hope you all had a good (and healthy) Xmas This time of year can be challenging for us asthmatics. & a Happy new year 🥳 So I was lucky enough to travel around Brazil with my adult daughter for 2mths returning on 14/12. A major first for me. Since being back
Pantha44
in
Asthma Community Forum
7 months ago
CLL and Lupus labs
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
on 9/22/23 i had labs as follows : Blood sodium was low at 132 (was 122 when I was critical in mid July ) Chloride 99 WBC 39.69 RBC 2.66 Hemoglobin 10.0 Hematocrit 29.8 MCV 112 MCH 37.6 Platelets 134 Neutrophils #manual diff 1.98 Reticulocyte absolute .03 Haptoglobin 2.9 ( super duper low
JerrysGirl3
in
CLL Support
10 months ago
DBS operation
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same operation. I need to know: About your experience during the operation, Post operation pain & discomfort The after care involved The after
Potatoskins
in
My MSAA Community
3 months ago
Any info or experience with light headedness and circulation issues with PD?
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
My husband has PD, 9 years in, He had DBS surgery a year ago and that has been a miraculous positive change, however he has this symptom of getting really lightheaded when going from sitting to standing or any quick movements, ( he passed out a while ago and hit his head) or happens like playing pickleball
whitdemo
in
Cure Parkinson's
3 months ago
TO EVERYONE: I have TONS of Nutritional Information From the USDA Website I Can Share
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
I downloaded 15 spreadsheets from the USDA website. 13 of them are different food groups with potassium, phosphorous, and sodium values (over 100 foods listed in each). 1 is just potassium and 1 is just phosphorous (over 700 foods listed each). I would not suggest going to the USDA website and trying
checkman
in
Kidney Dialysis
10 months ago
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
3 months ago
Raising Low Sodium Levels
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Hi beautiful people! I have this ongoing issue with low sodium levels. It's been below the reference range by 1-2 points over the last 4 weeks in 2 tests (136 and now 135 with the ref range starting from 137) Prior to that, I was just within the range, one point above the norm. Prior to that, it
Juliet_22
in
Thyroid UK
10 months ago
Very interesting video on controversial issues regarding managing Parkinson’s at different stages (from 2 guys that seem smart).
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Controversies in the Use of Medications, Herbs, and Early DBS for Parkinson's April 2024:
https://youtu.be/RhaUZFczGmc?si=R0Nb5tfh3jFnvZdg Movement Disorders Foundation of Arizona: Movement disorders neurologists Dr. Paarth Shah and Dr. Virgilio Gerald Evidente will be discussing in a panel discussion
Bolt_Upright
in
Cure Parkinson's
3 months ago
Holter results, bradycardia as predicted...
So, I got my results and as I predicted, it came back with bradycardia. I'm a male, 26 yo, 74kg(160 pounds I think), caucasian. I take levothyroxine 50mg for subclinical thypothyroidism, escitalopram 20mg and valproate 500mg( for anxiety).My symptoms are classical symptoms of bradychardia, like dizziness
So, I got my results and as I predicted, it came back with bradycardia. I'm a male, 26 yo, 74kg(160 pounds I think), caucasian. I take levothyroxine 50mg for subclinical thypothyroidism, escitalopram 20mg and valproate 500mg( for anxiety).My symptoms are classical symptoms of bradychardia, like dizziness
Tarfk
in
British Heart Foundation
7 months ago
apomorphine, anyone on this?
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Hi all, was offered apomorphine with pump not injection. is anyone using this and has it made a difference i know everyone is different just trying to get a bit of perspective before i start it? been having issues with oral forms of medication either dyskinetic on or cant move off not much in the middle
Todd-pw
in
Cure Parkinson's
3 months ago
Meds not working well again
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
My PD husband and has been taking 4 or 5 sinemet 50/250 CR for about a year and started using neuropro patch 2mg 6 months ago. He was on madopar for several years prior, but it was never right for him. Suddenly it seems his meds aren't working and the pd symptoms are severe again. The neurologist
PDsux_10
in
Cure Parkinson's
3 months ago
Low Estradiol and low Iron - is it Thyroid?
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Incoguto
in
Thyroid UK
10 months ago
deep brain stimulation
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
I am considering DBS. Please share any experiences and outcomes that may help me make the decision to whether or not… thanks in advance!
DonnaMc1968
in
Cure Parkinson's
4 months ago
GP Issues Again With Levo Dose Reduction
I am writing once again with regard to my mothers Thyroid situation. This has been going on for many years 🙄 My mother GP/GPs have been slowly reducing her Levo dose for years, saying she is over medicated. They are as usual focusing on her TSH bloods thinking because her TSH is below zero she’s over
I am writing once again with regard to my mothers Thyroid situation. This has been going on for many years 🙄 My mother GP/GPs have been slowly reducing her Levo dose for years, saying she is over medicated. They are as usual focusing on her TSH bloods thinking because her TSH is below zero she’s over
Flatdanny
in
Thyroid UK
10 months ago
Been away for a bit...depression hit hard
Hello M.S. family. I haven't written in a few months, but I have been reading posts to keep up with everyone. It's been a pretty rough time for me. At the end of March, my mom passed away, and I have just been reeling. My grief has left me exhausted, numb, and feeling like I'm in a fog. The depression
Hello M.S. family. I haven't written in a few months, but I have been reading posts to keep up with everyone. It's been a pretty rough time for me. At the end of March, my mom passed away, and I have just been reeling. My grief has left me exhausted, numb, and feeling like I'm in a fog. The depression
Helpmeup
in
My MSAA Community
1 year ago
Tremor Assessment
Has anyone had a tremor assessment prior to deep brain stimulation?
Has anyone had a tremor assessment prior to deep brain stimulation?
Ostap
in
Ataxia UK
4 months ago
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