Discontinuing Immune Suppression in ANCA Vasculitis
Suppression of the body’s immune system is at the heart of modern treatment for ANCA vasculitis. But whereas stopping treatment carries the risk of relapse, being immune suppressed carries the risk of infection and other problems. In cases where there are no symptoms and ANCA levels are very low, doctors are still not sure when it is safe to stop the immune suppressing drugs as there is no available evidence.
Professors Lorraine Harper and Alan Salama are planning to carry out a research study to provide that evidence. They need to know how to structure the study and if vasculitis patients will be willing to take part. If you have ANCA vasculitis, please join in this very short survey to help in planning the research. This will not commit you to taking part in the actual study, they just want your opinion. Please follow this link to take part in the survey.