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Immunosuppressants
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Hello all! And any advice on being med free....& elemental diet
I'm desperate not to be on
immunosuppressants
again as I had awful side effects (then drugs for the side effects) and I don't think it's a great way to live the rest of my life ;( I'm sort of happy to take steroids now & again to induce remission but don't want long term Aza.
I'm desperate not to be on
immunosuppressants
again as I had awful side effects (then drugs for the side effects) and I don't think it's a great way to live the rest of my life ;( I'm sort of happy to take steroids now & again to induce remission but don't want long term Aza.
Wellington175
in
Crohn's and Colitis Support
7 years ago
Methotrexate and enbrel
Over the weekend, Ive developed a sore, horrible cough that hurts my chest and also a real cold. I am due to take methotrexate (25mgs) tonight and enbrel on Tuesday. Is it ok to take these when feeling poorly? My thinking is I have a cold and cough that's probably viral, as opposed to bacterial and
Over the weekend, Ive developed a sore, horrible cough that hurts my chest and also a real cold. I am due to take methotrexate (25mgs) tonight and enbrel on Tuesday. Is it ok to take these when feeling poorly? My thinking is I have a cold and cough that's probably viral, as opposed to bacterial and
Eiram50
in
NRAS
7 years ago
Losing hope
I saw my Specialist today at Guy's...he told me I might not get better cos I haven't responded to immunosuppression and Infliximab. Being referred to Behcet's centre at Royal London Hospital but don't know how long I'll need to wait. I can't carry on feeling so ill.
I saw my Specialist today at Guy's...he told me I might not get better cos I haven't responded to immunosuppression and Infliximab. Being referred to Behcet's centre at Royal London Hospital but don't know how long I'll need to wait. I can't carry on feeling so ill.
juliebover
in
Behçet's UK
7 years ago
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Levothyroxine therapy and impaired clearance are the strongest contributors to small intestinal bacterial overgrowth
Minding your own business, thinking about not very much, pretty mindless television program on, click a button and WOW! A new paper, which is freely accessible, pointing its finger very clearly at levothyroxine as one of the strongest contributors to a specific gut issue - SIBO. So many people here
Minding your own business, thinking about not very much, pretty mindless television program on, click a button and WOW! A new paper, which is freely accessible, pointing its finger very clearly at levothyroxine as one of the strongest contributors to a specific gut issue - SIBO. So many people here
helvella
Thyroid UK
in
Thyroid UK
7 years ago
Yippee! Just had confirmed 2 more health related talking points; with which, I can bore the pants off everyone I meet. How lucky is that?
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
Bribin
in
CLL Support
7 years ago
Carpal tunnel
Has anyone with Rheumatoid wrists had carpal tunnel surgery ? and did it help?. I've been referred but am wondering how effective it can be if your wrists still get inflamed. Also, the risk of infection must be greater with immunosuppression - also I think I may be looking for an excuse, as a convinced
Has anyone with Rheumatoid wrists had carpal tunnel surgery ? and did it help?. I've been referred but am wondering how effective it can be if your wrists still get inflamed. Also, the risk of infection must be greater with immunosuppression - also I think I may be looking for an excuse, as a convinced
janmary
in
NRAS
7 years ago
Prostate Cancer & Hormones - Cortisol
Cortisol is known as the stress hormone. Wiki: "It is released in response to stress and low blood-glucose concentration. It functions to increase blood sugar through gluconeogenesis, to suppress the immune system ... It also decreases bone formation." [1] "Diurnal cycles of cortisol levels are found
Cortisol is known as the stress hormone. Wiki: "It is released in response to stress and low blood-glucose concentration. It functions to increase blood sugar through gluconeogenesis, to suppress the immune system ... It also decreases bone formation." [1] "Diurnal cycles of cortisol levels are found
pjoshea13
in
Advanced Prostate Cancer
7 years ago
Immunocompromised Health Care Worker with Lupus
Hi there, I am an occupational therapy student with SLE Lupus. I have been deemed 'in remission' but I am still on Plaquenil which has immunosuppressant effects so it is a bit of a concern for me working in health care where I am exposed to a higher risk of infection. I don't want my condition to limit
Hi there, I am an occupational therapy student with SLE Lupus. I have been deemed 'in remission' but I am still on Plaquenil which has immunosuppressant effects so it is a bit of a concern for me working in health care where I am exposed to a higher risk of infection. I don't want my condition to limit
elohcin
in
LUPUS UK
7 years ago
Reduced immune suppression.
Hi there guys, I'm almost 4 years post transplant and doing well. Recently I have been having kidney problems so my consultant has reduced prograf to help protect my kidneys. I have gone from 11mg per day to 8mg as well as 500mg twice a day of cellpet (mychophenolate). The last few days I've been experiencing
Hi there guys, I'm almost 4 years post transplant and doing well. Recently I have been having kidney problems so my consultant has reduced prograf to help protect my kidneys. I have gone from 11mg per day to 8mg as well as 500mg twice a day of cellpet (mychophenolate). The last few days I've been experiencing
Kiddie
in
British Liver Trust
7 years ago
What happens next
I've tried many many painkillers over the years, NSAIDS, opiates, pregabilin but not really any success, will
immunosuppressants
be the next step?
I've tried many many painkillers over the years, NSAIDS, opiates, pregabilin but not really any success, will
immunosuppressants
be the next step?
Beau2016
in
LUPUS UK
7 years ago
New, safer vaccine for shingles
Coming soon, Shingrix by Glaxo has much greater efficacy and is a recombinant rather rather than live attenuated vaccine like Zostavax, so fewer risks for MS or MS-ers on an immunosuppressant DMT.
Coming soon, Shingrix by Glaxo has much greater efficacy and is a recombinant rather rather than live attenuated vaccine like Zostavax, so fewer risks for MS or MS-ers on an immunosuppressant DMT.
erash
in
My MSAA Community
7 years ago
Zika and immunosuppression
Hiya, a quick question about travelling to Zika-prone countries. Have you been to one and if so, did you take any extra precautions about mosquitoes? Most people associate Zika with pregnant women but it affects the immunosuppressed as well. It can cause Guillain Barre syndrome in people other than
Hiya, a quick question about travelling to Zika-prone countries. Have you been to one and if so, did you take any extra precautions about mosquitoes? Most people associate Zika with pregnant women but it affects the immunosuppressed as well. It can cause Guillain Barre syndrome in people other than
Purpletop
in
LUPUS UK
7 years ago
Microencapsulation of porcine thyroid cell organoids within a polymer microcapsule construct
This paper - whilst enormously speculative - starts by saying that current thyroid hormone treatment has issues! Well, yes, that is a good start, far better than asserting yet again that levothyroxine is some sort of gold-standard treatment. It expresses a need for a treatment without side-effects. What
This paper - whilst enormously speculative - starts by saying that current thyroid hormone treatment has issues! Well, yes, that is a good start, far better than asserting yet again that levothyroxine is some sort of gold-standard treatment. It expresses a need for a treatment without side-effects. What
helvella
Thyroid UK
in
Thyroid UK
7 years ago
PBC with overlapping autoimmune diseases
Hi - I was well until this summer when I was diagnosed with a symptomatic Celiac disease. Abnormal blood test confirmed by small bowel biopsy. Went gluten free and then developed debilitating polyarthritis - started on steroids. Elevated alk phos led to suspicions of PBC. Had liver biopsy last month
Hi - I was well until this summer when I was diagnosed with a symptomatic Celiac disease. Abnormal blood test confirmed by small bowel biopsy. Went gluten free and then developed debilitating polyarthritis - started on steroids. Elevated alk phos led to suspicions of PBC. Had liver biopsy last month
gallatracy
in
PBC Foundation
7 years ago
Charting steroid doses over last decade
Just typed in my record of my steroid doses over the last decade into an Excel spreadsheet, and graphed it. The vertical axis is for daily steroid dose in mg. I've been on steroids since 1998. Very high doses initially, then got down to 2.5mg alt days. Until a huge relapse in May 2004, when the dose
Just typed in my record of my steroid doses over the last decade into an Excel spreadsheet, and graphed it. The vertical axis is for daily steroid dose in mg. I've been on steroids since 1998. Very high doses initially, then got down to 2.5mg alt days. Until a huge relapse in May 2004, when the dose
vivdunstan
Volunteer
in
Vasculitis UK
7 years ago
Back to methotrexate...which I'm allergic to?!?!
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
So since my hospital admission in July I've been off all ra drugs, I can tell you it's not been easy. After all the issues with my lungs and how every drug has given me the worst of its side effects I really believed in myself that I would go into my future without anymore ra drugs, that I would just
orchidcass77
in
NRAS
7 years ago
Waiting for diagnosis
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
I'm 39 and just had my first appointment with a rheumatologist yesterday. She did x rays and ultrasound on my joints and says she does not think it's RA and now doing more blood tests which may indicate lupus I have had a positive ANA along with pretty much every symptom of RA except swollen, red joints
DenverKUK
in
LUPUS UK
7 years ago
Flare on immunosuppressant
When u flare but are on
immunosuppressants
does that mean they are not wrking ?? My dr just said something like that but only just thought of it when I left hospital Been in remission for 5 years why have they stopped working ?? Many thanks
When u flare but are on
immunosuppressants
does that mean they are not wrking ?? My dr just said something like that but only just thought of it when I left hospital Been in remission for 5 years why have they stopped working ?? Many thanks
poodlegal
in
LUPUS UK
8 years ago
Update: B12 Toxicity (Ha)...B12 Not Working...Diagnostic Busses Rolling In...Treatment Has Commenced...and a Big Thank You.
So I have a titrate dose of steroids for three weeks and have also started on
immunosuppressants
(which will probably take up to twelve weeks to kick-in). The prospect of beginning to feel well is a strange and wonderous thing 😀😀. And even better, they're going to continue to treat me.
So I have a titrate dose of steroids for three weeks and have also started on
immunosuppressants
(which will probably take up to twelve weeks to kick-in). The prospect of beginning to feel well is a strange and wonderous thing 😀😀. And even better, they're going to continue to treat me.
Foggyme
Administrator
in
Pernicious Anaemia Society
8 years ago
New member
On treatment of steroids and
immunosuppressants
. Currently on 10mg predisilone and 50mg azathioprine. Steroid treatment is rough!
On treatment of steroids and
immunosuppressants
. Currently on 10mg predisilone and 50mg azathioprine. Steroid treatment is rough!
Jenmc86
in
British Liver Trust
8 years ago
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