Just typed in my record of my steroid doses over the last decade into an Excel spreadsheet, and graphed it. The vertical axis is for daily steroid dose in mg. I've been on steroids since 1998. Very high doses initially, then got down to 2.5mg alt days. Until a huge relapse in May 2004, when the dose went up, and we've struggled to get it low enough again. My dose is still pretty chunky, and looking at the graph I'm not too far from where I've been for much of the last decade. But - and this is a big but - I am managing on a much lower cocktail of additional steroid-sparing immunosuppressive drugs. I used to be on up to 4 other immunosuppressive drugs simultaneously, to try to reduce the amount of steroids needed to control the chronic inflammation in my brain. But now I'm just on 1 other drug for that. So still too high steroids really, but overall much better. And I am currently managing to lower the steroids. They've caused osteoporosis for me, and hefty weight gain, and are likely to lead to diabetes and glaucoma. But they keep me alive. And I know how much worse I am on too low a dose. I'll be on steroids for life. But that's ok. Better than not taking them!