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Blood results...confused!
They've said they're all normal expect for her
Immunoglobulin
A is a little low at 0.37 and her RBC is border line low too. I'm not sure what this means tbh... We have coeliac in the family and she has a lot of symptoms.
They've said they're all normal expect for her
Immunoglobulin
A is a little low at 0.37 and her RBC is border line low too. I'm not sure what this means tbh... We have coeliac in the family and she has a lot of symptoms.
Bexilou
in
Gluten Free Guerrillas
7 years ago
No need to afraid from ITP
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many IVIG and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use. Then we shifted to ayurvedic medicine, it's been 9 months my son got admitted to any
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many IVIG and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use. Then we shifted to ayurvedic medicine, it's been 9 months my son got admitted to any
Deepayada
in
ITP Support Association
6 years ago
i am new here.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Fatah
in
ITP Support Association
6 years ago
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amino acids and immune system function
One of the things I learned from the time I did with Hashimoto's and hypothyroidism, is that the same event (leaky gut, or gluten enteropathy in my case) which causes hypothyroid, also leads to an inability to efficiently digest protein. So at the very time you are feeling horrible from endocrine dropout
One of the things I learned from the time I did with Hashimoto's and hypothyroidism, is that the same event (leaky gut, or gluten enteropathy in my case) which causes hypothyroid, also leads to an inability to efficiently digest protein. So at the very time you are feeling horrible from endocrine dropout
Eddie83
in
Thyroid UK
7 years ago
Help needed with diagnosis
Hi there I’ve been fighting with my health now on and off for about 13 yrs, I always get sent to a neurologist but after having some blood test done and looking at the results on line and what it could mean I came across lupus, and found a list of symptoms that match what I’m going through but have never
Hi there I’ve been fighting with my health now on and off for about 13 yrs, I always get sent to a neurologist but after having some blood test done and looking at the results on line and what it could mean I came across lupus, and found a list of symptoms that match what I’m going through but have never
Tinks19790
in
LUPUS UK
7 years ago
Peaceful here
Im going for the new flu vac today, the one I can have while on steroids, so we’ll see. Then Thursday I have full blood work checking for some other autoimmune diseases as well..And my immunoglobulins because I seem to have a “light problem with immunodeficiency”.. rhumatoid factors as well, positive
Im going for the new flu vac today, the one I can have while on steroids, so we’ll see. Then Thursday I have full blood work checking for some other autoimmune diseases as well..And my immunoglobulins because I seem to have a “light problem with immunodeficiency”.. rhumatoid factors as well, positive
Hidden
in
Lung Conditions Community Forum
7 years ago
Decreased WBC's
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of IVIG. The concern I have is that when he started his WBC's were 265, they are now down to 65, which is great , has anyone else had this experience, to be honest I didn't think it would go down that quickly
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of IVIG. The concern I have is that when he started his WBC's were 265, they are now down to 65, which is great , has anyone else had this experience, to be honest I didn't think it would go down that quickly
Chintzy
in
CLL Support
7 years ago
Nearly 6 months on Venetoclax!
Side effects: her platelets continue to sit around 20 and she has a weekly transfusion for this, and filgrastim injection, and
immunoglobulin
transfusion monthly- however in recent weeks this has stablised along with her neutrophils so her body may finally Be making its own again, she can't really taste
Side effects: her platelets continue to sit around 20 and she has a weekly transfusion for this, and filgrastim injection, and
immunoglobulin
transfusion monthly- however in recent weeks this has stablised along with her neutrophils so her body may finally Be making its own again, she can't really taste
Natali
in
CLL Support
7 years ago
48 year old male just diagnosed with ITP 4 weeks ago
Hi everyone. Thought I would register myself with the ITP Support Association and tell my story here. I am a 48 year old male who was up until the 4th October this year a fit healthy person with no idea that ITP was even possible. I finished work at 11pm on the 3rd October and then went to bed. At 2am
Hi everyone. Thought I would register myself with the ITP Support Association and tell my story here. I am a 48 year old male who was up until the 4th October this year a fit healthy person with no idea that ITP was even possible. I finished work at 11pm on the 3rd October and then went to bed. At 2am
Steve5563
in
ITP Support Association
7 years ago
IVIG FOR PMR
Has anybody tried intravenous
immunoglobulin
infusions For PMR? My rheumatologist wants me to try it. It's very expensive and I'm not sure if insurance will cover it.
Has anybody tried intravenous
immunoglobulin
infusions For PMR? My rheumatologist wants me to try it. It's very expensive and I'm not sure if insurance will cover it.
jwb43
in
PMRGCAuk
7 years ago
Casein intolerance from cows and goats?
Hi all Been on a big journey with my health that can be summed up in drs finding nothing wrong through tests and concluding it's likely cfs/fibromyalgia. However it's my health and I'm convinced it's something. Through trial and error (I.e excluding from my diet) I have found what I think is an issue
Hi all Been on a big journey with my health that can be summed up in drs finding nothing wrong through tests and concluding it's likely cfs/fibromyalgia. However it's my health and I'm convinced it's something. Through trial and error (I.e excluding from my diet) I have found what I think is an issue
steviep43
in
Healthy Eating
7 years ago
New ITP Patient Coming to the UK :) Help Please
Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets). High dose prednisone, IVIG did nothing good (just bad). On Revolade now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the
Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets). High dose prednisone, IVIG did nothing good (just bad). On Revolade now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the
BellaMo
in
ITP Support Association
7 years ago
Igg infusions
Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after. Then they tell
Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after. Then they tell
kathmich
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL
She gets
immunoglobulin
infusions every month and seems to be doing well. Not sure if any of this means anything... Just though I would share the newest updates in my detective work. Thanks for listning everyone! Have a great day.
She gets
immunoglobulin
infusions every month and seems to be doing well. Not sure if any of this means anything... Just though I would share the newest updates in my detective work. Thanks for listning everyone! Have a great day.
Jade263
in
CLL Support
7 years ago
AMAs in blood no other tests show it
I posted a few weeks ago and received reassuring replies. I wanted to post again to see if anyone had anymore information for me. I am in Virginia, USA I had AMAs in blood. My alt and ast were a little high in July because of drinking. On Sept. 12th everything was in the normal range; alt, ast, alp
I posted a few weeks ago and received reassuring replies. I wanted to post again to see if anyone had anymore information for me. I am in Virginia, USA I had AMAs in blood. My alt and ast were a little high in July because of drinking. On Sept. 12th everything was in the normal range; alt, ast, alp
SSMPCW123
in
PBC Foundation
7 years ago
Autoimmune meningitis
Hi! I'm new to this place but not to meningitis IRL. :P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of rituximab treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent
Hi! I'm new to this place but not to meningitis IRL. :P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of rituximab treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent
Taiga
in
Meningitis Now
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Finally Home in my comfort zone
Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some of my family came to visit me when I got home on Friday which was nice but draining, they had forgotten to mention they had been suffering with a really bad cold virus!! That spreads like wildfire, they laughed & said I would
Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some of my family came to visit me when I got home on Friday which was nice but draining, they had forgotten to mention they had been suffering with a really bad cold virus!! That spreads like wildfire, they laughed & said I would
LauraMk30
in
LUPUS UK
7 years ago
Help! Newly diagnosed 31yr old very confused.
His doctor mentioned possibly
immunoglobulin
protein treatment? but I am wondering why not chemo given his young age and no co-morbidities. I intend to set him up with a specialist in CLL who can answer all his questions. Obviously, with him being so young we are very confused on why this happened.
His doctor mentioned possibly
immunoglobulin
protein treatment? but I am wondering why not chemo given his young age and no co-morbidities. I intend to set him up with a specialist in CLL who can answer all his questions. Obviously, with him being so young we are very confused on why this happened.
Jade263
in
CLL Support
7 years ago
Very high RF & symptoms, can anyone relate / have gotten diagnosis?
Hello everyone. As the question says, I'm interested to see if anyone can relate to what I'm experiencing and what diagnosis has been given. So, I have an elevated RF latex test of 450 (tested twice) and IgM that is 3.1 (above normal). I also have an elevated calprotectin of 90. Just some info that
Hello everyone. As the question says, I'm interested to see if anyone can relate to what I'm experiencing and what diagnosis has been given. So, I have an elevated RF latex test of 450 (tested twice) and IgM that is 3.1 (above normal). I also have an elevated calprotectin of 90. Just some info that
WK1010
in
NRAS
7 years ago
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