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Immunoglobulin
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Chronic ITP
My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. She stoped all medicines in Jan 2015 to Apr 2017 till that we not had any child, 5 year marriage life. In Apr 17 we start treatment for ITP again to become parent. Our PLT count was 40000 before treatment in Apr 17. My doctor
My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. She stoped all medicines in Jan 2015 to Apr 2017 till that we not had any child, 5 year marriage life. In Apr 17 we start treatment for ITP again to become parent. Our PLT count was 40000 before treatment in Apr 17. My doctor
jangirdinesh
in
ITP Support Association
6 years ago
Bronchiectasis and Haemophilius Influenza Vaccination
Mum also has had
immunoglobulin
treatment sporadically as she was diagnosed non Hodgkins 3 years ago and sees the haematology dept twice yearly (and finished her only cycle of chemo back in Sept 2014).
Mum also has had
immunoglobulin
treatment sporadically as she was diagnosed non Hodgkins 3 years ago and sees the haematology dept twice yearly (and finished her only cycle of chemo back in Sept 2014).
Hidden
in
Lung Conditions Community Forum
7 years ago
Newbie: Not felt right for Decades. CFS or hypo thyroid or both? Advice needed on action please!
I remember him saying I had '
immunoglobulin
g' but not much else, except that I had enough thyroxine for now, but as my body was killing off my thyroid I would need medication in the future. In 1999 after I had had my third baby, I was started on Levothyroxine.
I remember him saying I had '
immunoglobulin
g' but not much else, except that I had enough thyroxine for now, but as my body was killing off my thyroid I would need medication in the future. In 1999 after I had had my third baby, I was started on Levothyroxine.
Clover29
in
Thyroid UK
7 years ago
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Living with Behcet's Syndrome for 22yrs
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
FRNSCGRL27
in
Behçet's UK
6 years ago
Equivocal AMA
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
Dwaffle16
in
PBC Foundation
7 years ago
Ukrainian led research into thyroid
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
marsaday
in
Thyroid UK
7 years ago
Leukeran (Chlorambucil) Rash?
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
Smedley54
in
CLL Support
7 years ago
immunoglobulin replacement therapy
I have an immunology appointment on Monday with a view to me starting
immunoglobulin
replacement treatment as I keep getting chest and sinus infections. My low
immunoglobulin
levels are caused by rituximab. Has anyone had this treatment? did it work?
I have an immunology appointment on Monday with a view to me starting
immunoglobulin
replacement treatment as I keep getting chest and sinus infections. My low
immunoglobulin
levels are caused by rituximab. Has anyone had this treatment? did it work?
Mooka
in
Vasculitis UK
7 years ago
Need some help with blood test results.
My
Immunoglobulin
A was slightly elevated at 476, lab range was 463. Has this happened to anyone else? Does this mean a gluten intolerance moreso than Celiac Disease? I also have Hashimoto's thyroiditis.
My
Immunoglobulin
A was slightly elevated at 476, lab range was 463. Has this happened to anyone else? Does this mean a gluten intolerance moreso than Celiac Disease? I also have Hashimoto's thyroiditis.
bmolsen1
in
Gluten Free Guerrillas
7 years ago
IVIG
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Ladydi49
in
CLL Support
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
AMAs but normal bloodwork
I had written a couple of posts awhile back when I had AMAs in my blood and was waiting for follow- up bloodwork. I am posting my results from Nov. 8th so that anyone in my situation can see. I had high Alt in July because of Alcohol use. The dr did extra blood tests and I had AMAs in my blood. I
I had written a couple of posts awhile back when I had AMAs in my blood and was waiting for follow- up bloodwork. I am posting my results from Nov. 8th so that anyone in my situation can see. I had high Alt in July because of Alcohol use. The dr did extra blood tests and I had AMAs in my blood. I
SSMPCW123
in
PBC Foundation
7 years ago
I'm new here - and glad I'm probably not crazy afterall
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Hi, I've been following this support group for a few months now and have learned so much about Hughe's Syndrome. My story is long (like most everyone's) and I hope you can bare with me. I am 51 years old and live in Missouri - USA. I had never heard about Hughe's Syndrome until I had blood work
Tyler3
in
Hughes Syndrome APS Forum
7 years ago
GRand daughter
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
Kayla2007
in
ITP Support Association
7 years ago
RA OA now hypogammaglobulinaemia
I am now told that my
immunoglobulin
treatment will most likely have to continue for the rest of my life so as to maintain my now near normal antibody levels, OMG whatever next???????? Neil
I am now told that my
immunoglobulin
treatment will most likely have to continue for the rest of my life so as to maintain my now near normal antibody levels, OMG whatever next???????? Neil
8124
in
NRAS
7 years ago
My son
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
ScoobyDoo910
in
Early CKD Support
7 years ago
Can I get IVIG?
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
MissFG
in
Myositis UK
7 years ago
Infusion
Just undergoing my first
immunoglobulin
infusion - had to laugh as the nurse went through the possible side effects - shivering, headache, nausea and the best ' a sense of impeding doom' 🤣🤣🤣🤣🤣🤣🤣- that's ok then, that's my familiar
Just undergoing my first
immunoglobulin
infusion - had to laugh as the nurse went through the possible side effects - shivering, headache, nausea and the best ' a sense of impeding doom' 🤣🤣🤣🤣🤣🤣🤣- that's ok then, that's my familiar
Sepsur
in
CLL Support
7 years ago
Coverage for revolade
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
wjoyful
in
ITP Support Association
7 years ago
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
CDmom
in
ITP Support Association
7 years ago
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