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Chronic inflammatory demylinating polyneuropathy (CIDP), MS, & autoimmune issues
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there
Julietkellykidwell
in
Healthy Evidence
6 years ago
Prolonged Duration of Hashitoxicosis in a Patient with Hashimoto’s Thyroiditis: A Case Report and Review of Literature
He also had mildly elevated thyroid-stimulating
immunoglobulin
(TSI) but decreased radioactive iodine uptake scan. Based on the clinical presentation and biochemical test, a diagnosis of Hashitoxicosis was made. This hyperthyroid phase lasted for a period of two years.
He also had mildly elevated thyroid-stimulating
immunoglobulin
(TSI) but decreased radioactive iodine uptake scan. Based on the clinical presentation and biochemical test, a diagnosis of Hashitoxicosis was made. This hyperthyroid phase lasted for a period of two years.
helvella
Thyroid UK
in
Thyroid UK
6 years ago
Positive ANA and history of tests.
G - 9.0 g/L (7.0 - 16.0)
Immunoglobulin
A- 1.7 g/L (0.7 - 4.0)
Immunoglobulin
M - 1.1 g/L (0.4 - 2.3) Rheumatoid Factor - < 10 IU/ml (0 - 30) I complained to my dentist about my dryish mouth at night and told him I went to rheumy already but he sent me to oral medicine anyways.
G - 9.0 g/L (7.0 - 16.0)
Immunoglobulin
A- 1.7 g/L (0.7 - 4.0)
Immunoglobulin
M - 1.1 g/L (0.4 - 2.3) Rheumatoid Factor - < 10 IU/ml (0 - 30) I complained to my dentist about my dryish mouth at night and told him I went to rheumy already but he sent me to oral medicine anyways.
darkknightlt
in
LUPUS UK
6 years ago
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Getting in touch second time not used to emailing!H
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends
Selsey
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Some ideas please
Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t understand what a
immunoglobulin
gene mutation status is? Also immunophenotyping? Tried looking it up, but not sure familiar with this.
Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t understand what a
immunoglobulin
gene mutation status is? Also immunophenotyping? Tried looking it up, but not sure familiar with this.
Annieareyouok
in
CLL Support
6 years ago
Rare diagnosis
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
I’m 39 years old and was just diagnosed with MADSAM neuropathy (Lewis Sumner Syndrome). Does anyone else have this? I know it’s extremely rare. Just wondering if anyone else on this site happens to have the same thing. I start IVIg treatments next week.
1inamillion
in
Neuropathy Support
6 years ago
Life with ITP with no steroids
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
hannaITP
in
ITP Support Association
6 years ago
ITP - Not Taking Medication - Feedback
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Hello everyone! This is my 1st time posting on here, but I'm a frequent reader and I wanted some feedback from members who don't take medication. I was diagnosed with ITP last year (2017) and doctors said it was caused my an auto-immune disease (Mixed Connective Tissue Disease) and was put on 60mg of
Bueller
in
ITP Support Association
6 years ago
Platelet count raised from 15k to 63k in a week
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
I’m too excited to share this! Since my discharged from hospital last two weeks, my platelet count was 32k after IVIG (from 5k), within 5 days dropped to 15k. Today (after 2 weeks) I went to check up again it was 63k! Wow I’m thrilled! I did not change any special medication, my existing medication is
Yoyoyeoh
in
ITP Support Association
6 years ago
Curious how many people with ITP were in a third world country just prior to getting ITP?
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
Hi, I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional
CDmom
in
ITP Support Association
6 years ago
Platelets & me
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
conquerator2
in
ITP Support Association
6 years ago
Ulcer Preventing Drugs?
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
So I’m getting IVIG over two days each month. This has been enormously beneficial...for three weeks or so. The week prior to my next two infusions? GI ulcers, anal ulcers, and oh so fun vaginal ulcers, too. The doctors are suggesting we add an oral drug into the mix. The concern is that I may be forming
NerdyChristina
in
Behçet's UK
6 years ago
IVIG Infusions
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
Have been on watch and wait for almost 3 years. Because I have had pneumonia 4 times in the last 2 years I will need IVIG infusions. I am anxious and afraid. Anyone have experience with this? My first infusion is in 2 weeks. Thanks.
bayside64
in
CLL Support
6 years ago
Interleukin-6 and PMR/GCA
The newer biological agents like Tocilizumab are monoclonal antibodies of the
Immunoglobulin
G1 class and it works specifically by preventing the IL-6 from binding to the tissues. References The novel interleukin-1 cytokine family members in inflammatory diseases. Hahn M1, Frey S, Hueber AJ.
The newer biological agents like Tocilizumab are monoclonal antibodies of the
Immunoglobulin
G1 class and it works specifically by preventing the IL-6 from binding to the tissues. References The novel interleukin-1 cytokine family members in inflammatory diseases. Hahn M1, Frey S, Hueber AJ.
PMRnewbie2017
in
PMRGCAuk
6 years ago
Confused and looking for advice
I am new on this site. I am from Ottawa, Canada. In the past year, i have had a major health crisis that led me to leave my work. A hematologist had in the past years tested me on various clotting markers : i have protein C anticoagulant deficiency and positive antiphospholipid antibodies, that is
I am new on this site. I am from Ottawa, Canada. In the past year, i have had a major health crisis that led me to leave my work. A hematologist had in the past years tested me on various clotting markers : i have protein C anticoagulant deficiency and positive antiphospholipid antibodies, that is
NatMar
in
Hughes Syndrome APS Forum
6 years ago
Borderline high and hypersensitive
Immunoglobulin
G, A and M checked with M reading low. Can anyone suggest what the thyroid readings may indicate and if the hormones are likely to be affecting my immune system response to various things?
Immunoglobulin
G, A and M checked with M reading low. Can anyone suggest what the thyroid readings may indicate and if the hormones are likely to be affecting my immune system response to various things?
dubers4
in
Thyroid UK
6 years ago
Overwhelmed and feeling lost with a TSH of 98 !
Overwhelmed and feeling lost with a TSH of 98 ! I hope someone would be kind enough to give me some advice, I really don't know where else to ask.... Let me give you my history, I will try to be brief and stick to facts. I am 55 yrs old I had a subtotal thyroidectomy 18 years ago. I was put on thyroxine
Overwhelmed and feeling lost with a TSH of 98 ! I hope someone would be kind enough to give me some advice, I really don't know where else to ask.... Let me give you my history, I will try to be brief and stick to facts. I am 55 yrs old I had a subtotal thyroidectomy 18 years ago. I was put on thyroxine
Elizabeth-_12
in
Thyroid UK
6 years ago
Venetoclax and mouth sores
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
I have great news. Beginning of July I had a Bone Marrow Biopsy and it came back with NO CLL/SLL I had failed FCR and went on to Venetoclax & Obinutuzumab. Obinutuzumab finished in Feb 2018. I got Dermatomyositis (skin & Muscle) autoimmune disorder shortly after I started Ibrutinib and when it showed
Eliotf
in
CLL Support
6 years ago
How CAN A Lung Specialist Write In Letter I Had CT Scan In 2018 When No Such THING Happened.
Unless it is to justify killing me ... talk about getting it so wrong YET when I question it’s me who is neurotic and one with problem. “Doctor Who S10E07 The Pyramid at the End of the World” Well finally FOUND out name of bacteria have causing Throat issues respiratory distress stomach issues. RAOULTELLA
Unless it is to justify killing me ... talk about getting it so wrong YET when I question it’s me who is neurotic and one with problem. “Doctor Who S10E07 The Pyramid at the End of the World” Well finally FOUND out name of bacteria have causing Throat issues respiratory distress stomach issues. RAOULTELLA
Hidden
in
Lung Conditions Community Forum
6 years ago
B12 could it be something else/France/injections
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
Just a follow up post and info for anyone This forum was so helpful for me when I was suffering and very lost so here goes I started experiencing pins and needles in my feet, then to hands and even in face, tip of nose etc. then followed patches of numbness in my ankles and wrists, fasculations everywhere
lunez22
in
Pernicious Anaemia Society
6 years ago
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