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Immunodeficiencies and defective immune system
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Help with blood results
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Hi all I have taken iron tablets prescribed by my GP for over 15 years. My Ferritin levels were low when I was in my 20s and have taken iron tablets since then. I was really unwell last year with an unrelated illness and I haven’t taken my iron tablets for a few months. My results; Serum Iron levels
Lindsayf
in
Pernicious Anaemia Society
4 months ago
Ascites drain
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Good morning. My husband was taken in for an ascetic drain in November and was found to have Peritonitis which was treated before the drain. He is now on a daily oral antibiotic. His tummy swelled again and we booked a further drain in December but when we got there his tummy was too soft to get the
Breakfastbabe
in
British Liver Trust
4 months ago
more bleeding and pain after Colonoscopy 2 weeks ago
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Bunnygirl1
in
Crohn's and Colitis Support
4 months ago
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The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
4 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
7 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
2 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
7 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
7 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
7 months ago
Knowledge is Power
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
cycli
in
PMRGCAuk
4 months ago
positive fit test
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Liv56
in
Colon Cancer Connected
4 months ago
Info needed before sending letter to GP
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
BeachArt
in
Pernicious Anaemia Society
4 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
4 months ago
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
5 months ago
will it cause anything during this few months
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
Mondlee
in
Colon Cancer Connected
4 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
2 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
7 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
5 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
2 months ago
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