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Colostomy
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
I was diagnosed with Ovarian ca IVa involving the omentum and liver tumors in September 2023. Since then, have undergone 6 cycles of chemo (avastin, Carboplatin, taxol). Now, am anticipating for surgery on Feb 27 ( in 3 weeks). My surgery told me there’s a 50/50 chance I will need colostomy ( tumor
DIYdiva
in
SHARE Ovarian Cancer Support
5 months ago
Coping with chemo side effects
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Hi all I'm diagnosed stage 4 clear cell ovarian cancer since 15 Dec 23 & currently struggling so much with chemo side effects & wondering how it has been for others.. I had my 1st chemo 2 Jan (carboplatin paclitaxel and bevacizumab) 8 hour infusion. I didn't know how I would react and although I had
Kazzh
in
My Ovacome
5 months ago
hope + action
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
thought it befitting to share on World Cancer Day. the latest (yearly) PET/CT scan was 29 January. thankFULL it was another NEAD result; the initial dx was Oct 2011, and the mBC dx was July 2015. the aforementioned scan is eight years of mBC NEAD scans. and, after the scan we discussed stopping Ibrance
hurricaneheather
in
SHARE Metastatic Breast Cancer
5 months ago
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Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
5 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
6 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
6 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
6 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
6 months ago
Neuroendocrine prostate cancer could be restored to a state that responds to treatment
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
Don_1213
in
Advanced Prostate Cancer
6 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
6 months ago
Lymph node Metastasis
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
JolleySprings
in
Advanced Prostate Cancer
4 months ago
Use hormone therapy or not with Proton therapy
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
Hi All, Question, doctor is suggesting hormone therapy along with proton therapy (28 treatments of radiation) my gleason score went from 3+3 to 4+3 last year and psa doubled from 10 to 20. I tried to get in to this study to determine the genetics of tumor but they said tumor sample was bad. should
jbsnv
in
Prostate Cancer Network
6 months ago
Adalimumab
I have been on Hydroxychloroquine for 2 years and methotrexate for 6 months. Today I had to have bloods and chest x-ray as they want to start me on Adalimumab. Really hate the thought of another medication. I just wonder exactly what the medication is doing to my body. Already had a blip last month
I have been on Hydroxychloroquine for 2 years and methotrexate for 6 months. Today I had to have bloods and chest x-ray as they want to start me on Adalimumab. Really hate the thought of another medication. I just wonder exactly what the medication is doing to my body. Already had a blip last month
Granblue
in
NRAS
2 hours ago
chronic diarrhoea
I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, headache for 2 days. From last week I’ve had chronic diarrhoea and stomach cramps. Literally as soon as I eat they come on and I go again. Gp has said it would be nothing to do with tapering. Also said I didn’t need to add more
I reduced to 5mg from 5.5 on 25/06. After about a week had intense nausea, headache for 2 days. From last week I’ve had chronic diarrhoea and stomach cramps. Literally as soon as I eat they come on and I go again. Gp has said it would be nothing to do with tapering. Also said I didn’t need to add more
lennysmummy
in
PMRGCAuk
3 hours ago
fit test
just had a q fit test score 15 now doing a second one, they say over ten is positive and should have colonoscopy, scared to say the least, not sure if I will. I had only told GP I had mixed be and a bleeding pile. Now this, anxiety through the roof . Any advice please. Thank you x
just had a q fit test score 15 now doing a second one, they say over ten is positive and should have colonoscopy, scared to say the least, not sure if I will. I had only told GP I had mixed be and a bleeding pile. Now this, anxiety through the roof . Any advice please. Thank you x
Sunhorn23
in
IBS Network
19 hours ago
another iron infusion? and low ALT level
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
Hello, dear RLS friends! I would really appreciate your advice regarding my mother's ferritin levels. So she is currently on 0.375 mg (some days up to 0.5 mg) and 900 mg neurontin. I know DAs are not optimal, but at this point it would really be a problem to withdraw, especially that mom did start with
daisydaisy26
in
Restless Legs Syndrome
22 hours ago
Fatigue after eating. Ibs
Hi, I have long term fibro. Pain, ibs, fatigue etc.I suffer with bloating, constipation and fatigue which follow most meals especially after breakfast when I have to wait often up to 2 or more hours before fatigue gradually goes although it is longer lasting lately. Food does seems to affect me less
Hi, I have long term fibro. Pain, ibs, fatigue etc.I suffer with bloating, constipation and fatigue which follow most meals especially after breakfast when I have to wait often up to 2 or more hours before fatigue gradually goes although it is longer lasting lately. Food does seems to affect me less
E3178
in
IBS Network
23 hours ago
Sulfasalazine
My rheaumatolgist changed my sulfasalazine to sulfasalazine En-tabs because I thought it was them that were upsetting my stomache I have been on E-tabs for a month now I'm feeling sick and loads of gas ,what I'm wondering is can the En tabs still upset the stomache or not maybe it wasn't them in the
My rheaumatolgist changed my sulfasalazine to sulfasalazine En-tabs because I thought it was them that were upsetting my stomache I have been on E-tabs for a month now I'm feeling sick and loads of gas ,what I'm wondering is can the En tabs still upset the stomache or not maybe it wasn't them in the
Alice70
in
NRAS
1 day ago
diverticulosis
well after 10 months of many laxatives for chronic constipation, 8 months since an X-ray showed considerable faecal loading, I finally had a colonoscopy! The diagnosis is Diverticulosis. Fantastic that the diagnosis wasn’t cancerous, nevertheless, it doesn’t help the abdominal and back pain that
well after 10 months of many laxatives for chronic constipation, 8 months since an X-ray showed considerable faecal loading, I finally had a colonoscopy! The diagnosis is Diverticulosis. Fantastic that the diagnosis wasn’t cancerous, nevertheless, it doesn’t help the abdominal and back pain that
Laxido21
in
IBS Network
2 days ago
mucus
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
hello every one i have that THING CALLED COPD YUK YUK . i am fed up with mucus , i went into my local chemist asked the chap anything to help getrid of mucus he went straight to the shelf BENYLIN CHESTY COUGH ORIGINAL under neath the writing says DIPHENHYDRAMINE @ LEVOMENTHOL
devon29
in
Lung Conditions Community Forum
2 days ago
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