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Ileostomy
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In focus: travel - practicalities of travel
You can get this, as well as information and advice, from your stoma nurse, the
Ileostomy
and Internal Pouch Association (https://iasupport.org/about/publications/factsheets/travel-tips/), The Colostomy Association (http://www.colostomyuk.org/information/travel-advice/) and The Urostomy Association (
You can get this, as well as information and advice, from your stoma nurse, the
Ileostomy
and Internal Pouch Association (https://iasupport.org/about/publications/factsheets/travel-tips/), The Colostomy Association (http://www.colostomyuk.org/information/travel-advice/) and The Urostomy Association (
OvacomeSupport
Administrator
in
My Ovacome
5 years ago
Absorption of B12
I have had a terminal
ileostomy
for 15 years and 7 years ago I had another 9 inches of my small bowel removed due to the disease. I have had B12 injections in the past due to the usual problems we get when it is low.
I have had a terminal
ileostomy
for 15 years and 7 years ago I had another 9 inches of my small bowel removed due to the disease. I have had B12 injections in the past due to the usual problems we get when it is low.
Darran1
in
Pernicious Anaemia Society
5 years ago
Help/info re ileostomy & mucous fistula!
I’ve had an
ileostomy
&mucous fistula for 10yrs. Now and again I get retained faeces discharged from my fistula and the smell is awful. Has anyone else experienced this or can tell me how long it lasts? I can’t find any info online at all.
I’ve had an
ileostomy
&mucous fistula for 10yrs. Now and again I get retained faeces discharged from my fistula and the smell is awful. Has anyone else experienced this or can tell me how long it lasts? I can’t find any info online at all.
kimmo
in
Living with a Stoma
5 years ago
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PA plus Ileostomy
Can anyone please tell me how often I should inject, Having PA and
ileostomy
it is virtually impossible for me to absorb
Can anyone please tell me how often I should inject, Having PA and
ileostomy
it is virtually impossible for me to absorb
maggiemummy
in
Pernicious Anaemia Society
5 years ago
Tramadol for RLS
Magnesium infusion weekly for a year, another blockage on holiday in Rhodes this year, now having to have B12 injections for life because of high output
ileostomy
!
Magnesium infusion weekly for a year, another blockage on holiday in Rhodes this year, now having to have B12 injections for life because of high output
ileostomy
!
Marrob
in
Restless Legs Syndrome
5 years ago
Ileostomy and Reversal
Just wondering if anyone has had an
ileostomy
which was later reversed. My husband is really struggling with horrendous stomach pain, especially when he eats, and nerve pain throughout his body. He's on the loo most of the evening and throughout the night.
Just wondering if anyone has had an
ileostomy
which was later reversed. My husband is really struggling with horrendous stomach pain, especially when he eats, and nerve pain throughout his body. He's on the loo most of the evening and throughout the night.
salshep
in
Colon Cancer Connected
5 years ago
Ileostomy
I have an
ileostomy
have probs with fruit and veg not agree with me Has anyone any ideas of best weight loss program
I have an
ileostomy
have probs with fruit and veg not agree with me Has anyone any ideas of best weight loss program
Elaine58
in
Weight Loss Support
5 years ago
So scared...
I am not worried about having the
ileostomy
but I have gained so much weight since my first diagnosis of colon cancer due to the effects of the chemo and other things like gabapentin and MH meds. I am now considered high risk.
I am not worried about having the
ileostomy
but I have gained so much weight since my first diagnosis of colon cancer due to the effects of the chemo and other things like gabapentin and MH meds. I am now considered high risk.
Grn_Eyes
in
Colon Cancer Connected
5 years ago
ileostomy and anticoagulants
This person takes rivaroxaban and has an
ileostomy
. Occasionally, when changing the appliance, there is slight bleeding. Does anyone else have that problem? If so, has your consultant advised a medication review? Thank you in advance Rachel - AF Association Patient Services
This person takes rivaroxaban and has an
ileostomy
. Occasionally, when changing the appliance, there is slight bleeding. Does anyone else have that problem? If so, has your consultant advised a medication review? Thank you in advance Rachel - AF Association Patient Services
Hidden
in
AF Association
5 years ago
My experience with Prostate Cancer and RP.
In order for it to heal I would need to have a loop
Ileostomy
the following day and allow it to heal naturally for 3- 5 months. Naturally I was devastated, but was wheeled in and had the procedure done.
In order for it to heal I would need to have a loop
Ileostomy
the following day and allow it to heal naturally for 3- 5 months. Naturally I was devastated, but was wheeled in and had the procedure done.
Pocaboca
in
Prostate Cancer Network
5 years ago
Swimming With An Ileostomy Bag
Hi so I’ve been having some issues with my bag staying stuck on and I want to do a lifeguard course but currently can only do a few dives before water gets underneath the adhesive. Does anyone know of a way to try prevent this from happening?
Hi so I’ve been having some issues with my bag staying stuck on and I want to do a lifeguard course but currently can only do a few dives before water gets underneath the adhesive. Does anyone know of a way to try prevent this from happening?
Bob-2017
in
Living with a Stoma
5 years ago
Living with an ileostomy
I have a megacolon (very distended and not functioning well) and it’s likely a will need to have an
ileostomy
. Has anyone on the forum had a.
Ileostomy
? If so, how was the op and your recovery after it and how do you find living with it?
I have a megacolon (very distended and not functioning well) and it’s likely a will need to have an
ileostomy
. Has anyone on the forum had a.
Ileostomy
? If so, how was the op and your recovery after it and how do you find living with it?
Hidden
in
IBS Network
5 years ago
High Output
Hi zI am 3 weeks five days after an
ileostomy
,having trouble with my output.I have to set my alarm every two hours all through the night ,exchausted. Mentally I am fine going for long walks,polished house ,gone to shops.I only eat white (nightmare) .How long will this last.
Hi zI am 3 weeks five days after an
ileostomy
,having trouble with my output.I have to set my alarm every two hours all through the night ,exchausted. Mentally I am fine going for long walks,polished house ,gone to shops.I only eat white (nightmare) .How long will this last.
Sealeaf
in
Living with a Stoma
5 years ago
Recipes for juicing?
I have an
ileostomy
bag and many fruits and vegetables have been off limits because of the skin. I thought being able to juice them would be a great way to add more to my diet.
I have an
ileostomy
bag and many fruits and vegetables have been off limits because of the skin. I thought being able to juice them would be a great way to add more to my diet.
irel
in
SHARE Ovarian Cancer Support
5 years ago
Ileostomy and thyroid medicine
I also have an
ileostomy
. I’m wondering if there is any problem absorbing the medicine because of my
ileostomy
. I took 25 mcg’s for 6 weeks with no change in my numbers. Now taking 50snd not really feeling any difference.
I also have an
ileostomy
. I’m wondering if there is any problem absorbing the medicine because of my
ileostomy
. I took 25 mcg’s for 6 weeks with no change in my numbers. Now taking 50snd not really feeling any difference.
nanapops55
in
Thyroid UK
5 years ago
Ostomy to 5K - Day 1 Down!
I had two surgeries over the past year-and-a-half to give me a permanent
ileostomy
, which without a doubt has given me my life back - and now, after 10+ years of illness, I have to figure out what to actually do with that life!
I had two surgeries over the past year-and-a-half to give me a permanent
ileostomy
, which without a doubt has given me my life back - and now, after 10+ years of illness, I have to figure out what to actually do with that life!
ksavvy
in
Couch to 5K
5 years ago
Living with a megacolon
I was in hospital recently with severe bloating and the surgeons were all set to operate on me (
ileostomy
) but I picked up a bit and regained some bowel movement so my consultant is happy for me to try and manage my condition with medication. IS anyone else in s similar situation?
I was in hospital recently with severe bloating and the surgeons were all set to operate on me (
ileostomy
) but I picked up a bit and regained some bowel movement so my consultant is happy for me to try and manage my condition with medication. IS anyone else in s similar situation?
Hidden
in
IBS Network
5 years ago
Help
I have a loop
ileostomy
, and this last week I’ve been rushed in to hospital, they couldn’t find out what was wrong but I’m suspecting a twist in small intestine, I haven’t been able to eat for 3 weeks. Feel absolutely dreadful.
I have a loop
ileostomy
, and this last week I’ve been rushed in to hospital, they couldn’t find out what was wrong but I’m suspecting a twist in small intestine, I haven’t been able to eat for 3 weeks. Feel absolutely dreadful.
JulieSD
in
IBS Network
5 years ago
High CA125, chemo/avastin not working
later she had 3 avastin +chemo cycles which brought CA-125 to 3k, After this she had cyto reductive surgery in mid last year, she continued 4 avastin cycles but it stopped working so switched to lipodox for 3 cycles, last month she was suffering from bowel obstruction n chemo was not working, so had
ileostomy
later she had 3 avastin +chemo cycles which brought CA-125 to 3k, After this she had cyto reductive surgery in mid last year, she continued 4 avastin cycles but it stopped working so switched to lipodox for 3 cycles, last month she was suffering from bowel obstruction n chemo was not working, so had
ileostomy
abhijeet9388
in
My Ovacome
5 years ago
Done with chemo!
I want to have surgery to reverse my
ileostomy
reversed. Understand that surgery is no walk in the park but I hate the bag, willing to chance it. Any advice now that I am onto the next step in this journey. All would be appreciated.
I want to have surgery to reverse my
ileostomy
reversed. Understand that surgery is no walk in the park but I hate the bag, willing to chance it. Any advice now that I am onto the next step in this journey. All would be appreciated.
irel
in
SHARE Ovarian Cancer Support
5 years ago
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