Search
Search
About
Log in
Join
Experiences with
Ileostomy
Posts
Communities
227 public posts
Filter results
Bowel endo
Does anybody had “shaved” bowels and ended up with
ileostomy
bag? My laparoscopy showed that the bowels and the bladder are affected with endo.
Does anybody had “shaved” bowels and ended up with
ileostomy
bag? My laparoscopy showed that the bowels and the bladder are affected with endo.
Monpeg
in
Endometriosis UK
3 years ago
HRT AFTER HYSTERECTOMY
I have a temporary
ileostomy
at the moment so will be having another op in a few months time. I have been on Tibolone for about a year now as was on it with Zoladex as well. I get on really well with it but have been having quite a bit of hair loss.
I have a temporary
ileostomy
at the moment so will be having another op in a few months time. I have been on Tibolone for about a year now as was on it with Zoladex as well. I get on really well with it but have been having quite a bit of hair loss.
fdennis07
in
Endometriosis UK
3 years ago
Vegan diet with ileostomy for low methionine
Hi , Does anyone manage a vegan diet successfully with an
ileostomy
? I had chemo then radical debulking last October then chemo till January. I’m currently on 3 weekly Avastin but my Ca125 is increasing . There is evidence that methionine ( an amino acid in protein ) ‘ feeds the cancer’ .
Hi , Does anyone manage a vegan diet successfully with an
ileostomy
? I had chemo then radical debulking last October then chemo till January. I’m currently on 3 weekly Avastin but my Ca125 is increasing . There is evidence that methionine ( an amino acid in protein ) ‘ feeds the cancer’ .
Lookingahead
in
My Ovacome
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Leakage with a small stoma :(
Hi all, I am 7 weeks post op with a
ileostomy
with i am slowly adjusting to (thanks to endometriosis which damaged by bowel!) Was wondering if anyone has any tips on how to combat a problem I am having with leakage.
Hi all, I am 7 weeks post op with a
ileostomy
with i am slowly adjusting to (thanks to endometriosis which damaged by bowel!) Was wondering if anyone has any tips on how to combat a problem I am having with leakage.
fdennis07
in
Living with a Stoma
3 years ago
Recovery from fistula surgery
I need both of my hands to work and to go to the bathroom (I have an
ileostomy
.) For those of you who have had a fistula created: How many days before you could use your hand? How long did you have to take off of work? Thanks
I need both of my hands to work and to go to the bathroom (I have an
ileostomy
.) For those of you who have had a fistula created: How many days before you could use your hand? How long did you have to take off of work? Thanks
barbara55109
in
Kidney Disease
3 years ago
Husband emergency ileostomy, mucus fistula stoma and anus rectal stump
Hi within 4 weeks my 49 year old hubby took ulcerative colitis, had lifesaving removal of whole colon and now has
ileostomy
, mucus fistula stoma and left with rectal stump. Now 3 weeks post surgery. Shock for us all. Doing well with
ileostomy
bag christened Mabel.
Hi within 4 weeks my 49 year old hubby took ulcerative colitis, had lifesaving removal of whole colon and now has
ileostomy
, mucus fistula stoma and left with rectal stump. Now 3 weeks post surgery. Shock for us all. Doing well with
ileostomy
bag christened Mabel.
Tracie1972
in
Living with a Stoma
3 years ago
Ileostomy questions
When a person has
ileostomy
surgery to create a temporary loop or end
ileostomy
, does that person need to have a drain right after surgery? I don't even know if I would be getting an
ileostomy
or colostomy, the way the surgeon was speaking pointed to an
ileostomy
but I am still unsure.
When a person has
ileostomy
surgery to create a temporary loop or end
ileostomy
, does that person need to have a drain right after surgery? I don't even know if I would be getting an
ileostomy
or colostomy, the way the surgeon was speaking pointed to an
ileostomy
but I am still unsure.
Clo23
in
Living with a Stoma
3 years ago
Reply to TR77
I have had chemo , radical debulking and an
ileostomy
( but a tiny amount of tumour is left on the small intestine) , more chemo and now 3 weekly Avastin. My Ca125 is finally 139. I have stopped worrying about the Ca125 level and just concentrate and eating well and being positive .
I have had chemo , radical debulking and an
ileostomy
( but a tiny amount of tumour is left on the small intestine) , more chemo and now 3 weekly Avastin. My Ca125 is finally 139. I have stopped worrying about the Ca125 level and just concentrate and eating well and being positive .
Lookingahead
in
My Ovacome
3 years ago
Anyone had ileostomy
Thank this may be the one I will end up with rather than colonoscopy. Am reading that its more difficult to live with, anyone any experience?
Thank this may be the one I will end up with rather than colonoscopy. Am reading that its more difficult to live with, anyone any experience?
rosebine
in
My Ovacome
4 years ago
Nutrition advice for autoimmune diseases
I have an
ileostomy
and short bowel. My question is what do you do use for better nutrition? I find that the NHS haven’t really helped me in this regard and I’m really struggling because my body is not getting what it needs to function. I now have epilepsy!! I don’t go out much and am weak.
I have an
ileostomy
and short bowel. My question is what do you do use for better nutrition? I find that the NHS haven’t really helped me in this regard and I’m really struggling because my body is not getting what it needs to function. I now have epilepsy!! I don’t go out much and am weak.
cath39
in
Crohn's and Colitis Support
3 years ago
Thoracic window
For the last 6 months my wife has been applying an
ileostomy
bag over the 4cm opening to collect the exudate which she has to change on alternate days following cavity irrigation. We now found due to change in body shape we are unable to use the bags as they leak with hours of application.
For the last 6 months my wife has been applying an
ileostomy
bag over the 4cm opening to collect the exudate which she has to change on alternate days following cavity irrigation. We now found due to change in body shape we are unable to use the bags as they leak with hours of application.
Lifesab
in
The Roy Castle Lung Cancer Foundation
4 years ago
Laparoscopy and bowel involvement
My endo specialist said it is gonna be quite a long surgery (3-4 hours) and there is a slight chance that I will get a temporary
ileostomy
. I am quite scared, and have an irrational fear of never waking up. Did any of you have this kind of surgery? How was your recovery time?
My endo specialist said it is gonna be quite a long surgery (3-4 hours) and there is a slight chance that I will get a temporary
ileostomy
. I am quite scared, and have an irrational fear of never waking up. Did any of you have this kind of surgery? How was your recovery time?
lotrtxt
in
Endometriosis UK
4 years ago
BFN first IVF try - ulcerative colitis & Ileostomy
I have ulcerative colitis and had my colon removed last year and now live with an
ileostomy
(stoma bag) has anyone else got this or suffered with UC or similar?
I have ulcerative colitis and had my colon removed last year and now live with an
ileostomy
(stoma bag) has anyone else got this or suffered with UC or similar?
Cheer2020
in
Fertility Network UK
4 years ago
Have any of you had a temporary ileostomy which has relieved your pelvic pain?
One thing's for sure: something down there is not working as it should and I'm just wondering if any of you have had an
ileostomy
which has actually improved your quality of life and reduced your pain and suffering?
One thing's for sure: something down there is not working as it should and I'm just wondering if any of you have had an
ileostomy
which has actually improved your quality of life and reduced your pain and suffering?
Lovetocycle76
in
Pelvic Pain Support Network
4 years ago
Hi. I'm new to forums and new to PMR and slightly shell shocked with my diagnosis.
My eldest daughter has ulcerative colitis and ended up in intensive care following an emergency resection of her bowel and has ended up with a permanent
ileostomy
. She is now well and healthy. Then covid hit and that has been very frightening and scary and incredibly hard work.
My eldest daughter has ulcerative colitis and ended up in intensive care following an emergency resection of her bowel and has ended up with a permanent
ileostomy
. She is now well and healthy. Then covid hit and that has been very frightening and scary and incredibly hard work.
Labrador3
in
PMRGCAuk
4 years ago
Just something I found and would like to share.
But back to my
ileostomy
I have had trouble trying to get any thickness in my output, I have done all the normal marshmallows jelly baby’s nothing has really worked.
But back to my
ileostomy
I have had trouble trying to get any thickness in my output, I have done all the normal marshmallows jelly baby’s nothing has really worked.
Dogbot
in
Living with a Stoma
4 years ago
No need to worry if i can do it anyone can hand on heart
I was 63 when i had a non reversible
ileostomy
and done great and now 70. Take things easy for around six weeks and do as told. don't over do things that's when problems occur. Same with regard to exercise etc. Eat little to start and build up food intake over a period of time.
I was 63 when i had a non reversible
ileostomy
and done great and now 70. Take things easy for around six weeks and do as told. don't over do things that's when problems occur. Same with regard to exercise etc. Eat little to start and build up food intake over a period of time.
smaller
in
Living with a Stoma
4 years ago
CKD and ileostomy
anyone here have kidney failure due to
ileostomy
?
anyone here have kidney failure due to
ileostomy
?
barbara55109
in
Kidney Disease
4 years ago
Eating
Hi everyone I was just wondering if anyone knows how long food takes from mouth to
ileostomy
bag, just roughly ?? Stay Safe All Dogbot 🐶🌈
Hi everyone I was just wondering if anyone knows how long food takes from mouth to
ileostomy
bag, just roughly ?? Stay Safe All Dogbot 🐶🌈
Dogbot
in
Living with a Stoma
4 years ago
Anyone Working on Dialysis?
If I followed the CKD, diabetes and
ileostomy
diets I would only be allowed water and no food. That doesn't work too well. I am scared of dialysis. I would have to have hemo with some sort of port. My veins are so tiny they could never create a fistula.
If I followed the CKD, diabetes and
ileostomy
diets I would only be allowed water and no food. That doesn't work too well. I am scared of dialysis. I would have to have hemo with some sort of port. My veins are so tiny they could never create a fistula.
barbara55109
in
Kidney Disease
4 years ago
1
2
3
4
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
Living with a Stoma
53 results
My Ovacome
46 results
Endometriosis UK
15 results
View top 10 communities
Sort by
Most Relevant
Newest