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Experiences with
Ileostomy
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Night only output!
Hey, newly installed loop
ileostomy
(2 months), and having a lot of troubles with eating still. Was advised to eat small portions of soft food for a while before getting more ambitious. This was going well, fairly consistent output from the stoma after eating until it wasn’t.
Hey, newly installed loop
ileostomy
(2 months), and having a lot of troubles with eating still. Was advised to eat small portions of soft food for a while before getting more ambitious. This was going well, fairly consistent output from the stoma after eating until it wasn’t.
GranolaLover10
in
Living with a Stoma
1 year ago
parastomal hernia
I had my
ileostomy
formed in 2011 and then 2015 had to had emergency surgery to repair the parastomal hernia I had as it strangled my bowel, I’ve recently been told I now have another parastomal hernia (Apr 2023), my question is I’ve been told by my surgical team until I have a reversal I’ll continuously
I had my
ileostomy
formed in 2011 and then 2015 had to had emergency surgery to repair the parastomal hernia I had as it strangled my bowel, I’ve recently been told I now have another parastomal hernia (Apr 2023), my question is I’ve been told by my surgical team until I have a reversal I’ll continuously
Bunni_Kara
in
Crohn's and Colitis Support
1 year ago
new to peripheral neuropathy
I had a big operation in September resulting in a high output
ileostomy
. This will be reversed back to a colostomy in the near future. It left me losing electrolytes and becoming very unwell in October. I am on Iv magnesium three times a week at home .
I had a big operation in September resulting in a high output
ileostomy
. This will be reversed back to a colostomy in the near future. It left me losing electrolytes and becoming very unwell in October. I am on Iv magnesium three times a week at home .
Esme2007
in
Neuropathy Support
4 months ago
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Mom and ICU
With this, her
ileostomy
pulled away from the skin opening and as time went on the right side of her stomach turned black. It was bad. She went through being septic, had to start dialysis, and was on high does antibiotics.
With this, her
ileostomy
pulled away from the skin opening and as time went on the right side of her stomach turned black. It was bad. She went through being septic, had to start dialysis, and was on high does antibiotics.
wcase372
in
ICUsteps
8 months ago
Results of diverticulitis caused by radiation treatments
Was in hospital for 11 days where my colon was removed in an
ileostomy
and I am now spending the rest of my life wearing an external ostomy pouch. I am looking for studies of diverticulitis being started and caused by radiation treatments.
Was in hospital for 11 days where my colon was removed in an
ileostomy
and I am now spending the rest of my life wearing an external ostomy pouch. I am looking for studies of diverticulitis being started and caused by radiation treatments.
TexasPRD
in
Pelvic Radiation Disease Association
1 year ago
Surgery number 6 next week...also why would the uterus wall be abnormal?
Anyway fast forward to today, I went too see the anesthetist ready for surgery next Tuesday and we were looking on my previous notes and she found the
ileostomy
surgery notes.
Anyway fast forward to today, I went too see the anesthetist ready for surgery next Tuesday and we were looking on my previous notes and she found the
ileostomy
surgery notes.
Endowarriorxx
in
Endometriosis UK
2 years ago
stents causing UTI?
I had an emergency admission to the hospital last weekend due to my
ileostomy
becoming overactive. I tried to deal with it at home for a few days but gave in and went to the GP. Where they were concerned about how dehydrated I was. my history is complicated. I’m having UTI’s almost fortnightly.
I had an emergency admission to the hospital last weekend due to my
ileostomy
becoming overactive. I tried to deal with it at home for a few days but gave in and went to the GP. Where they were concerned about how dehydrated I was. my history is complicated. I’m having UTI’s almost fortnightly.
AndreaBabyC
in
Kidney Disease
2 years ago
What's on at Ovacome next week (week commencing 17 April 2023)?
This is a friendly environment for people who have a colostomy,
ileostomy
or urostomy because of ovarian cancer to speak with others in similar circumstances.
This is a friendly environment for people who have a colostomy,
ileostomy
or urostomy because of ovarian cancer to speak with others in similar circumstances.
OvacomeSupport
My Ovacome Team
in
My Ovacome
1 year ago
Niraparib ( Zejula) with an ileostomy
Just wondering if anyone has experience with an
ileostomy
and taking Niraparib ? Have you been ok with this ? 😊❤️
Just wondering if anyone has experience with an
ileostomy
and taking Niraparib ? Have you been ok with this ? 😊❤️
Lookingahead
in
My Ovacome
2 years ago
What's on at Ovacome next week (commencing 14 November 2022)?
This is a friendly environment for people who have a colostomy,
ileostomy
or urostomy because of ovarian cancer to speak with others in similar circumstances.
This is a friendly environment for people who have a colostomy,
ileostomy
or urostomy because of ovarian cancer to speak with others in similar circumstances.
OvacomeSupport
My Ovacome Team
in
My Ovacome
2 years ago
4th surgery
Another blockage caused by adhesions wrapping round the bowel Dec 2019 , emergency
ileostomy
op and stoma fitted. (Electrolyte imbalance all the time I had a stoma, so infusions 3 times a week).
Another blockage caused by adhesions wrapping round the bowel Dec 2019 , emergency
ileostomy
op and stoma fitted. (Electrolyte imbalance all the time I had a stoma, so infusions 3 times a week).
StyleK
in
My Ovacome
2 years ago
new to all this
Along with my usual
ileostomy
. I hope this is all ok to ask and explain. Thank you.
Along with my usual
ileostomy
. I hope this is all ok to ask and explain. Thank you.
AndreaBabyC
in
Kidney Disease
2 years ago
Help! Decapeptyl injection and HRT?
I have been offered a Decapeptyl 3month injection and HRT, and been told the laparoscopy waiting list is at least 6months+; but there’s a lot of risks for a lap because my bowel is stuck to my womb (been told I could end up with an
ileostomy
or colostomy bag!)
I have been offered a Decapeptyl 3month injection and HRT, and been told the laparoscopy waiting list is at least 6months+; but there’s a lot of risks for a lap because my bowel is stuck to my womb (been told I could end up with an
ileostomy
or colostomy bag!)
Endoff
in
Endometriosis UK
2 years ago
Creatinine vs. CystatinC eGFR
Because the cause of my CKD is unusual, dehydration from
ileostomy
, there aren't data points to gauge my prognosis. I have my fistula and Dr. thought I'd be on dialysis by now.
Because the cause of my CKD is unusual, dehydration from
ileostomy
, there aren't data points to gauge my prognosis. I have my fistula and Dr. thought I'd be on dialysis by now.
barbara55109
in
Kidney Disease
3 years ago
Introducing myself ( in a fashion ) ❤️
I had a
Ileostomy
a few years bk then 4 months ago had to have my bladder taken away so ended up with a Urostomy , for some reason it’s caused a complication with my digestive system causing blockages which means I eat for 2 days then haved to have those lovely supplement drinks for 3-4 days !
I had a
Ileostomy
a few years bk then 4 months ago had to have my bladder taken away so ended up with a Urostomy , for some reason it’s caused a complication with my digestive system causing blockages which means I eat for 2 days then haved to have those lovely supplement drinks for 3-4 days !
Pink17
in
Anxiety and Depression Support
3 years ago
Confused about surgery
I will need to have a
ileostomy
which will be reversed over time. I am so frightened to get this all done at once and feel because of my age if i should get this done or just wait for menopause is there any one who has had this done or just offer any advice please Thank you Faith
I will need to have a
ileostomy
which will be reversed over time. I am so frightened to get this all done at once and feel because of my age if i should get this done or just wait for menopause is there any one who has had this done or just offer any advice please Thank you Faith
Faithstar
in
Endometriosis UK
3 years ago
Anyone pregnant after ileostomy closure?
Hi, I had an
ileostomy
take down in 2019. I've had no complications whatsoever in these 2 yrs. I'm 6 months pregnant with twins now with a fairly big bump. I'm worried about the next months my uterus pushing the stomach too much and resulting in a complication where my ileo was reattached.
Hi, I had an
ileostomy
take down in 2019. I've had no complications whatsoever in these 2 yrs. I'm 6 months pregnant with twins now with a fairly big bump. I'm worried about the next months my uterus pushing the stomach too much and resulting in a complication where my ileo was reattached.
Alita88
in
British Pregnancy Advisory Service
3 years ago
Limited Scleroderma, Skin Problems - Delayed Contact Dermatitis
Diagnosed in 2016, no heart or lung issues, slight Raynaud's (comes & goes), tho I've had dreadful gastro issues since June 2016 resulting in an emergency
Ileostomy
September this year 2021 in Oxford.
Diagnosed in 2016, no heart or lung issues, slight Raynaud's (comes & goes), tho I've had dreadful gastro issues since June 2016 resulting in an emergency
Ileostomy
September this year 2021 in Oxford.
beesmum
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Prostate Cancer Care With No Rectum
A biopsy was the next step, of course, BUT my colon and rectum were removed 50 years ago for ulcerative colitis (no problems with my permanent
ileostomy
since then.)
A biopsy was the next step, of course, BUT my colon and rectum were removed 50 years ago for ulcerative colitis (no problems with my permanent
ileostomy
since then.)
Uncle_Gus
in
Prostate Cancer Network
3 years ago
Radiation Enteritis - I feel very alone
I was told in April that I would need an
ileostomy
, so I would have 3 stomas and this was reiterated over the weekend. I am home now but I get a lot of pain with wind. I don't anyone else who has 2 stomas, 3 stomas or radiation enteritis and I feel very alone and very scared.
I was told in April that I would need an
ileostomy
, so I would have 3 stomas and this was reiterated over the weekend. I am home now but I get a lot of pain with wind. I don't anyone else who has 2 stomas, 3 stomas or radiation enteritis and I feel very alone and very scared.
CrochetDancer
in
Pelvic Radiation Disease Association
3 years ago
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