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REASONS TO BE CHEERFUL!
Part 4: My
ileostomy
(stoma) HATES chemo and now that it's finished, it should settle down a bit which means I hopefully won't have to get up two or three times a night to empty a bag of poo (sorry if tmi!), somehow this is so much worse than getting up that often for a wee!
Part 4: My
ileostomy
(stoma) HATES chemo and now that it's finished, it should settle down a bit which means I hopefully won't have to get up two or three times a night to empty a bag of poo (sorry if tmi!), somehow this is so much worse than getting up that often for a wee!
cathysal
in
My Ovacome
11 years ago
Help with bowel problems!!! Please I'm at the end of my rope....
I had a bowel resection and an
ileostomy
in November 2012 and a reversal in February 2013. This was due to having endometriosis stage 4. After the reversal I had ileus for two weeks and was only discharged after it got better.
I had a bowel resection and an
ileostomy
in November 2012 and a reversal in February 2013. This was due to having endometriosis stage 4. After the reversal I had ileus for two weeks and was only discharged after it got better.
LadyPenelope
in
Living with a Stoma
11 years ago
Help with my Bowels !! Please.....
I had a bowel resection and an
ileostomy
in November 2012 and a reversal in February 2013. After the reversal I had ileus for two weeks and was only discharged after it got better. Since the reversal, I haven't been able to open my bowels (go to the toilet) without the aid of laxatives.
I had a bowel resection and an
ileostomy
in November 2012 and a reversal in February 2013. After the reversal I had ileus for two weeks and was only discharged after it got better. Since the reversal, I haven't been able to open my bowels (go to the toilet) without the aid of laxatives.
LadyPenelope
in
Endometriosis UK
11 years ago
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Do you have any tips for recovering from an Ileostomy op and how to manage your bag?
Hello, I'm 23 and having a loop
Ileostomy
on the 12th. I'm not too sure of what to expect so Any tips would be a huge help to me! Should I expect to be in a lot of pain post op? Also, what is the recovery time like? Sorry there are so many questions :) Kirsty
Hello, I'm 23 and having a loop
Ileostomy
on the 12th. I'm not too sure of what to expect so Any tips would be a huge help to me! Should I expect to be in a lot of pain post op? Also, what is the recovery time like? Sorry there are so many questions :) Kirsty
Kirsty_Anne
in
Living with a Stoma
11 years ago
My husband has an ileostomy. We noticed it and the area around it seemed to be protruding more and more every day for the past 2 weeks.
The ostomy nurses confirmed that he has a hernia. He cannot get in to see his doctor for that for another 2 weeks. What kind of an impact will this have on him? He is scheduled to have it reversed (reconnected) in September after he has finished chemo. Will this hernia present any complications in reconnecting
The ostomy nurses confirmed that he has a hernia. He cannot get in to see his doctor for that for another 2 weeks. What kind of an impact will this have on him? He is scheduled to have it reversed (reconnected) in September after he has finished chemo. Will this hernia present any complications in reconnecting
notsossweets
in
Living with a Stoma
11 years ago
Just a hello, and an update
We've been very worried for the last few weeks, as his recent endoscopy showed 50-100 rectal polyps (a great deal more than the 20 found on the last one), and we were expecting the specialist to say that he would need a permanent
ileostomy
this year.
We've been very worried for the last few weeks, as his recent endoscopy showed 50-100 rectal polyps (a great deal more than the 20 found on the last one), and we were expecting the specialist to say that he would need a permanent
ileostomy
this year.
SootyB
in
Fibromyalgia Action UK
11 years ago
Long term Zoladex use
Since then I've had 4 surgeries, the most recent one being a bowel resection and an
ileostomy
in December which has since been reversed. Each time I have surgery I'm given a Zoladex shot for 6 months with HRT.
Since then I've had 4 surgeries, the most recent one being a bowel resection and an
ileostomy
in December which has since been reversed. Each time I have surgery I'm given a Zoladex shot for 6 months with HRT.
LadyPenelope
in
Endometriosis UK
11 years ago
Wanting Surgery Desperately
I desperately want an
ileostomy
to give me my life back after its been ruined this last 8 years by "ibs C+D" but the gastro say's it will just make my life worse and she refuses to consider it an option despite the fact i know other people in the same circumstances who DID get a colostomy for the same
I desperately want an
ileostomy
to give me my life back after its been ruined this last 8 years by "ibs C+D" but the gastro say's it will just make my life worse and she refuses to consider it an option despite the fact i know other people in the same circumstances who DID get a colostomy for the same
crimsonknight3
in
IBS Network
11 years ago
My first post ....looking for general advice?
As well as having PCO and adenomyosis, the endo has stuck the bowel extensively meaning I will probably need an
ileostomy
. Both ovaries are also stuck to the uterus, meaning it all sort of moves as one big ball of mess.
As well as having PCO and adenomyosis, the endo has stuck the bowel extensively meaning I will probably need an
ileostomy
. Both ovaries are also stuck to the uterus, meaning it all sort of moves as one big ball of mess.
meandmyfufu
in
Endometriosis UK
11 years ago
My life with an ileostomy from the start
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but
StomaOwner
in
Living with a Stoma
11 years ago
Katew
I had my
ileostomy
exactly 15 years ago although I was terrified at the time it has given me 15 years of relatively good health, getting used to a bag was not pleasant but the alternative was worse, I still get leaks from the bag but I am determined to carry on life as usual, I am now going on 72 years
I had my
ileostomy
exactly 15 years ago although I was terrified at the time it has given me 15 years of relatively good health, getting used to a bag was not pleasant but the alternative was worse, I still get leaks from the bag but I am determined to carry on life as usual, I am now going on 72 years
katew
in
Living with a Stoma
12 years ago
Siberian ginseng
Because I have an
ileostomy
I have a problem with low magnesium which makes you exhausted. I am still having weekly magnesium infusions and hopefully things will improve. Someone suggested I try Siberian Ginseng which apparently is good for helping with energy levels.
Because I have an
ileostomy
I have a problem with low magnesium which makes you exhausted. I am still having weekly magnesium infusions and hopefully things will improve. Someone suggested I try Siberian Ginseng which apparently is good for helping with energy levels.
cathysal
in
My Ovacome
12 years ago
I need to find PUBMED research on APL antibody "trigger events." This term is obviously not a medical one. Any suggestions for me to try?
I am trying to recover compensation for the losses I have had from the long list of things, DVT, PE, punctured intestine, gangrene,
ileostomy
, subdural hematomas, ventral hernia, vertigo, various nerve damages, etc. which came from this "trigger" event.
I am trying to recover compensation for the losses I have had from the long list of things, DVT, PE, punctured intestine, gangrene,
ileostomy
, subdural hematomas, ventral hernia, vertigo, various nerve damages, etc. which came from this "trigger" event.
activefarmer
in
Hughes Syndrome APS Forum
12 years ago
Ileostomy
hello! thought i'd join this forum to talk to others who have bags, so if anyone would like to chat about them, gimme a shout! feel free to contact x
hello! thought i'd join this forum to talk to others who have bags, so if anyone would like to chat about them, gimme a shout! feel free to contact x
Caz138
in
Living with a Stoma
12 years ago
Deck the halls with boughs of holly ...
upshot is that they're still not sure if the mass they removed was a desmoid tumour or general scarring, so they're going to give him a CT scan for more benign growths, and a blood test to see if he has the 'gene with a higher cancer risk', before they make a decision on whether to perform a permanent
ileostomy
upshot is that they're still not sure if the mass they removed was a desmoid tumour or general scarring, so they're going to give him a CT scan for more benign growths, and a blood test to see if he has the 'gene with a higher cancer risk', before they make a decision on whether to perform a permanent
ileostomy
SootyB
in
Fibromyalgia Action UK
12 years ago
Long and winding road
I ad my large intestine removed then and a full permenant
ileostomy
n 2000. Everything was good for a while then I started having bowel blockages and severe monthly pain which spread to the whole month.
I ad my large intestine removed then and a full permenant
ileostomy
n 2000. Everything was good for a while then I started having bowel blockages and severe monthly pain which spread to the whole month.
waterbabydani
in
Endometriosis UK
12 years ago
Don't give up hope!
...so my wife is home from hospital today after a successful
ileostomy
reversal :-) As far as we know, there is no sign of any remaining disease and she is now completely back to normal :-) :-) To put this in context, she was diagnosed just over a year ago with significant ascites due to Grade 3 Stage
...so my wife is home from hospital today after a successful
ileostomy
reversal :-) As far as we know, there is no sign of any remaining disease and she is now completely back to normal :-) :-) To put this in context, she was diagnosed just over a year ago with significant ascites due to Grade 3 Stage
plum
in
My Ovacome
12 years ago
Update on Curcumin Lady
She is now apparently disease-free and is in hospital recovering after the reversal of a defunctioning loop
ileostomy
... no more bags!
She is now apparently disease-free and is in hospital recovering after the reversal of a defunctioning loop
ileostomy
... no more bags!
plum
in
My Ovacome
12 years ago
Not long now ...
The low-down is that he's already had his colon removed (nasty genetic complaint causing dangerous polyps), and is now going in for removal of his rectum, and a (hopefully temporary)
ileostomy
.
The low-down is that he's already had his colon removed (nasty genetic complaint causing dangerous polyps), and is now going in for removal of his rectum, and a (hopefully temporary)
ileostomy
.
SootyB
in
Fibromyalgia Action UK
12 years ago
Help needed please with understanding Mum’s CT report
In March of this year she had a complete bowel obstruction and was operated on and ended up with an
ileostomy
. After the op she was told to go away and recuperate and that chemo would be offered as and when symptoms returned.
In March of this year she had a complete bowel obstruction and was operated on and ended up with an
ileostomy
. After the op she was told to go away and recuperate and that chemo would be offered as and when symptoms returned.
SusanC
in
My Ovacome
12 years ago
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