Hi everyone, now i'm not going to go into all the treatments ive tried and the staggering number of gastroentorologists/gp's ive seen and tests i've had. Needless to say the Gastro's are at a blank and don't know what else to try. I desperately want an ileostomy to give me my life back after its been ruined this last 8 years by "ibs C+D" but the gastro say's it will just make my life worse and she refuses to consider it an option despite the fact i know other people in the same circumstances who DID get a colostomy for the same reasons. Im so at a loss, the nhs feels like its just hit and miss, and you have to get a gastro or surgeon who cares for them to take action but because of my ibs i can't keep travelling far and wide to see surgeons. She wants to send me to uclh to see an apparently good ibs researcher but its all the way in london and i am apprehensive to go because i feel it will just be the same thing all over again.... Try this test that ive already had, try this medication ive already tried, and all the while thinking they might know what it is only to end up telling me to try something else. I am so so fed up and tired and sometimes i feel like jumping off a cliff is the best option to me. Despite knowing how desperate i am i feel like the nhs just doesnt give a toss.
Does anyone have any advice on how i can find a good surgeon or gastro team without travelling all over the country?