I was diagnosed with Ulcerative Colitis in 2002. It progressed quite quickly and by December 2005 I was virtually housebound because of incontinence. In March 2096 I haemorrhaged and was admitted to hospital. I was given high dose steroids for three weeks in an attempt to get the UC under control but as there was no change a decision was made to proceed with surgery and form a Stoma. My whole colon was removed. The intention was to do a reversal after a couple of months. However tests at the Royal London Hospital revealed that my sphincter muscles were at the lower end of normal and I was advised to wait for a couple of months. In the meantime, after a couple of months of rapid weight loss and extreme lethargy I was re admitted in August 2006 and diagnosed with medically induced (steroids) diabetes. I went on insulin immediately. In December 2006 I visited my Stoma nurse as I had a very painful sore underneath the adhesive part of my Stoma bag. My nurse, bless her, saved my life when she recognised a rare skin condition called Pyoderma Gangrenosum. It was unbelievably painful and I used to sob like a baby every bag change. That went on for 18 months and I was treated with steroid tablets, steroid cream, steroid injections into the wound. Eventually I was given Cyclosporine, an anti-rejection drug which together with the steroids caused artificially high sugar levels which we could not control. I also developed a rare side effect to the immunosuppressant and I had uncontrollably trembling throughout my body. Changing my bag, drinking etc was a nightmare. By this time I was terribly ill and in a wheelchair as I was so weak. I then suffered two bowel blockages three months apart caused by the small bowel getting caught in the four hernias I acquired. On the second one my surgeon took a chance and excised the Pyoderma which thankfully has never come back although I am told there is always the possibility. At this time I also experienced heart problems, liver and kidney problems and the decision was made to perform a panproctocolectomy which involved removal of the rectal stump and anus. Two months after I had crippling joint pains all over my body. After six months of doctors visits, scans and MRIs I was diagnosed with a severe lack of vitamin D. After three injections my body started to slowly recover. Two years ago I had four large and six small hernias repaired with mesh. Since then I haven't had to have any other surgeries and at the moment feel relatively healthy. I have to take ten different medications every day and I'm on insulin four times a day. I welcome any questions. Nothing is too embarrassing!
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