high ileostomy output

[MyStar86]

Hi,

I recently had my ileostomy surgery on the 26th October and I’ve been out of hospital for 4 days and I’ve been getting very high out put which I have been managing but I’ve been doing all the things I’m told to slow it down with white stuff even having crackers before bed but I’m still up in the night emptying a very full bag then again in the morning where I stay up for an hour before having a lay down and have to empty again. I’m getting lots of cramps and things just seem to be going through me extremely fast as I’m emptying through your the day as well. I don’t feel ill for it as I’m keeping my fluids up and as I said eating only the foods I’m told along with supplement drinks to build up as I’m so tiny but I’m so cramped up and I’m pain with that. I just wondered if anyone else had these problems in the very early days? I’m just worried I’m doing something wrong I did stop all the strong pain meds as soon as I left hospital so I wonder if it’s a side effect to that as it wasn’t this fast in hospital but I don’t get on with strong meds so I’ve just been taking paracetamol however I am concerned about the high output as it’s worrying how full the bag gets in the night and how quickly it fills up I know I’m emptying it over 10+ times which isn’t normal but I don’t know how to slow it down or if I’m doing something wrong.

Any advice and experience of the early recovery stages is it normal to have these cramps I know they are due to the swelling and rapid output but I’m just worried.

Many thanks xx

[Shoeysmum]

I'm sorry you're having to empty your ileostomy so often and put my hands up to knowing nothing about this since I don't have one, However, I'm just wondering whether the fullness is due to your bowel having recently experienced a massive trauma.

For peace of mind I suggest you speak with your IBD team.

Good luck and I hope it settles soon.