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Ibrutinib
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Corona Ibrutinib
I wonder if anybody under
ibrutinib
or acalabrutinib treatment was infected and can describe how she/he survive. Thanks.
I wonder if anybody under
ibrutinib
or acalabrutinib treatment was infected and can describe how she/he survive. Thanks.
Mik_
in
Non Hodgkin's Lymphoma Friends
4 years ago
Flu Vaccine
I am CLL and on
Ibrutinib
now for 4 months. All my Drs have advised that I should tale the Flu vaccine. Yet all the people I know - who are not CLL - had some fever and much fatigue for at least couple of days. So I am afraid that it would affect me badly given my low immunity.
I am CLL and on
Ibrutinib
now for 4 months. All my Drs have advised that I should tale the Flu vaccine. Yet all the people I know - who are not CLL - had some fever and much fatigue for at least couple of days. So I am afraid that it would affect me badly given my low immunity.
AshGS
in
CLL Support
4 years ago
Richter’s Transformation
There are also cases where Ricther transformed once
ibrutinib
was withdrawn for a few days and will be treated with R-CHOP anyway. Fortunately, this week there is a woman from the United States who celebrated her five years of complete remission after a transplant of cells from a donor.
There are also cases where Ricther transformed once
ibrutinib
was withdrawn for a few days and will be treated with R-CHOP anyway. Fortunately, this week there is a woman from the United States who celebrated her five years of complete remission after a transplant of cells from a donor.
Priss69
in
CLL Support
4 years ago
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Covid/Ibrutinib?
Is anybody tested positive for Covid or covid antibodies being under
Ibrutinib
or acalabrutinib?
Is anybody tested positive for Covid or covid antibodies being under
Ibrutinib
or acalabrutinib?
Mik_
in
CLL Support
4 years ago
5 months on Ibrutinib with side effects
Her heart is fine but her Dr took her off
Ibrutinib
for 2 weeks at this time because he said her neutrophils were low. She started the tablets on a lower dose this week and last night she had the dreaded palpitations again.
Her heart is fine but her Dr took her off
Ibrutinib
for 2 weeks at this time because he said her neutrophils were low. She started the tablets on a lower dose this week and last night she had the dreaded palpitations again.
mouseygirl
in
CLL Support
4 years ago
Reducing ibrutinib for 14 days
shift a lung infection with no problems but as this is a 14 day course they recommend I miss my
ibrutinib
every 3 rd day so as to make it safe I'm reluctant to do this as I have never missed a day of
ibrutinib
in 3.5 years and I'm in remission with good bloods what are your thoughts
shift a lung infection with no problems but as this is a 14 day course they recommend I miss my
ibrutinib
every 3 rd day so as to make it safe I'm reluctant to do this as I have never missed a day of
ibrutinib
in 3.5 years and I'm in remission with good bloods what are your thoughts
cartwheels
in
CLL Support
4 years ago
Diuretics and Ibrutinib
Wondering if anyone is on diuretics and
Ibrutinib
, lasix, Aldactone, HTCZ, and your thoughts on this. Started diuretic for blood pressure, drinking 80 ounces of water a day, definitely flushing out cells, but not I am staying hydrated
Wondering if anyone is on diuretics and
Ibrutinib
, lasix, Aldactone, HTCZ, and your thoughts on this. Started diuretic for blood pressure, drinking 80 ounces of water a day, definitely flushing out cells, but not I am staying hydrated
Davidcara
in
CLL Support
4 years ago
Ibrutining affecting the lungs?
I had a CT scan mid-October and my Consultant called me on the 23rd October and said due to concerns that
Ibrutinib
could be causing 'scarring' on my lungs I should stop taking
Ibrutinib
immediately.
I had a CT scan mid-October and my Consultant called me on the 23rd October and said due to concerns that
Ibrutinib
could be causing 'scarring' on my lungs I should stop taking
Ibrutinib
immediately.
Dym230109
in
CLL Support
4 years ago
Stomach bloating
Anyone suffers from stomach bloated while on
ibrutinib
!
Anyone suffers from stomach bloated while on
ibrutinib
!
ANA4
in
CLL Support
4 years ago
Venetoclax
It looks very likely I will switch from taking
Ibrutinib
to taking Venetoclax. While Venetoclax is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the Venetoclax.
It looks very likely I will switch from taking
Ibrutinib
to taking Venetoclax. While Venetoclax is a tablet, if I start it, apparently each week for the first 5 weeks, I will need to spend 48 hours in the hospital. This is to allow the medical staff to monitor my reaction to the Venetoclax.
Dym230109
in
CLL Support
4 years ago
Cll improvement on Ibrutinib
I started
Ibrutinib
on Tuesday last week. I was curious how quickly to expect improvement. I can see that my spleen and 2 lumps are already smaller. And nausea building up. Any thoughts about it? Regards. Ta
I started
Ibrutinib
on Tuesday last week. I was curious how quickly to expect improvement. I can see that my spleen and 2 lumps are already smaller. And nausea building up. Any thoughts about it? Regards. Ta
Temida
in
CLL Support
4 years ago
A071402 Phase 3 clinical trial - Obinituzumab+Ibrutinib+Venetoclax
Last week since my liver markers were still OK, I was upped to 280mg of
Ibrutinib
daily. Tomorrow I am to go and have one more blood test. If the liver is still OK my
Ibrutinib
will be increased to 420mg of
Ibrutinib
daily, which is the amount prescribed in the trial.
Last week since my liver markers were still OK, I was upped to 280mg of
Ibrutinib
daily. Tomorrow I am to go and have one more blood test. If the liver is still OK my
Ibrutinib
will be increased to 420mg of
Ibrutinib
daily, which is the amount prescribed in the trial.
Iupiter
in
CLL Support
4 years ago
Painful lumps under the skin - Ibrutinib treatment
I just seen my haematologist and appears that the painful lumps that appeared 4 days after start of
Ibrutinib
were heamatomas. My numbers didn’t change to much but WCC DOUBLED from 100 to 200 000 after one week of treatment.
I just seen my haematologist and appears that the painful lumps that appeared 4 days after start of
Ibrutinib
were heamatomas. My numbers didn’t change to much but WCC DOUBLED from 100 to 200 000 after one week of treatment.
Temida
in
CLL Support
4 years ago
My 3 to 4 weeks on Ibrutinib
Hi all hope to find you well, now it seams that my side effects are very easy manageable, since last post i got tested for covid19 that came negative and I will be tested again on next Thursday because Monday and Tuesday I will get the fist doses of Retuximab I'm looking good like when I was 20 years
Hi all hope to find you well, now it seams that my side effects are very easy manageable, since last post i got tested for covid19 that came negative and I will be tested again on next Thursday because Monday and Tuesday I will get the fist doses of Retuximab I'm looking good like when I was 20 years
2017cll
in
CLL Support
4 years ago
Ibrutinb
Is all hair lost on
ibrutinib
Is all hair lost on
ibrutinib
Happydazs
in
CLL Support
4 years ago
A update with some concerns
Hi and thanks, now after 7 days I got another visit to the doctor and after I complain about some lumps that came after 6 days on
Ibrutinib
we send me to test again this time for LNH aggressive, I know this lumps are not related with CLL because they appear after most my lymph nodes got away and that
Hi and thanks, now after 7 days I got another visit to the doctor and after I complain about some lumps that came after 6 days on
Ibrutinib
we send me to test again this time for LNH aggressive, I know this lumps are not related with CLL because they appear after most my lymph nodes got away and that
2017cll
in
CLL Support
4 years ago
Prophylaxis While on Ibrutinib
Just one more question: Wondering if anyone is on any antiviral, antibacterial, or antifungal medication, while taking
ibrutinib
.
Just one more question: Wondering if anyone is on any antiviral, antibacterial, or antifungal medication, while taking
ibrutinib
.
Davidcara
in
CLL Support
4 years ago
Flair trial end after 6 years.
My husband has been on the Flair trial taking
Ibrutinib
after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the
Ibrutinib
very well with very few problems. Bloods all good and MRD very low.
My husband has been on the Flair trial taking
Ibrutinib
after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the
Ibrutinib
very well with very few problems. Bloods all good and MRD very low.
annsathome
in
CLL Support
4 years ago
Common flu
Can I take cold and flu tablets whilst taking
ibrutinib
?
Can I take cold and flu tablets whilst taking
ibrutinib
?
ANA4
in
CLL Support
4 years ago
Common cold
Can I take cold and flu tablets whilst taking
ibrutinib
?
Can I take cold and flu tablets whilst taking
ibrutinib
?
ANA4
in
CLL America Support
4 years ago
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