Search
Search
About
Log in
Join
Experiences with
Ibrutinib
Posts
Communities
1,999 public posts
Filter results
Ibrutinib and feet swelling
Been on
Ibrutinib
for 2 years now and feet and legs are swollen. Any one else had these symptoms? Everything else ok
Been on
Ibrutinib
for 2 years now and feet and legs are swollen. Any one else had these symptoms? Everything else ok
Woodhurst
in
CLL Support
4 years ago
Lymph nodes
I am having hernia surgery tomorrow and stopped
Ibrutinib
7 days now. On Friday (5 days in) I can feel lymph nodes on both sides of my neck and under my armpits I was told that I could restart taking my pills if I wasn't bleeding.
I am having hernia surgery tomorrow and stopped
Ibrutinib
7 days now. On Friday (5 days in) I can feel lymph nodes on both sides of my neck and under my armpits I was told that I could restart taking my pills if I wasn't bleeding.
habsrule
in
CLL Support
4 years ago
CLL and covid-19 vaccine
hello due to the lack of enough information about the safety of covid-19 vaccine specially to mention Pfizer vaccine , with CLL disease My mom is taken Imbruvica (
Ibrutinib
) as a chronic use from 2 years now , I want to ask if any one know the safety of takin the vaccine any recommendation , experience
hello due to the lack of enough information about the safety of covid-19 vaccine specially to mention Pfizer vaccine , with CLL disease My mom is taken Imbruvica (
Ibrutinib
) as a chronic use from 2 years now , I want to ask if any one know the safety of takin the vaccine any recommendation , experience
htam
in
CLL Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Good end to a bad year... My MRD Results are in!
ClinicalTrials.gov Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With
Ibrutinib
,
ClinicalTrials.gov Identifier: NCT04016805 Recruitment Status : Recruiting First Posted : July 11, 2019 Last Update Posted : December 2, 2020 Study to Assess the Efficacy and Safety of Ublituximab and Umbralisib in Subjects With Chronic Lymphocytic Leukemia (CLL) Currently Treated With
Ibrutinib
,
MikeHoff
in
CLL Support
4 years ago
Vaccine on or off treatment
If off
ibrutinib
for a week do to a procedure... how could this affect vaccine response if it happens shortly before, shortly after, or in between 1st and 2nd vaccine.
If off
ibrutinib
for a week do to a procedure... how could this affect vaccine response if it happens shortly before, shortly after, or in between 1st and 2nd vaccine.
Davidcara
in
CLL Support
4 years ago
Acalabrutinib approved
Hi everyone As of November 25 , Acalabrutinib has been approved as a mono therapy for second line treatment in France for patients not doing well on
Ibrutinib
.
Hi everyone As of November 25 , Acalabrutinib has been approved as a mono therapy for second line treatment in France for patients not doing well on
Ibrutinib
.
Sergi
in
CLL Support
4 years ago
Hi! Anyone who has had to stop and restart Ibrutinib because of major surgery. When is it safe to resume? Post op5 days ok?
Stopping
Ibrutinib
surgery
Stopping
Ibrutinib
surgery
peneloope
in
CLL Support
4 years ago
Can my mother take hemp oil tablets with Melatonin to help her sleep whilst taking Ibrutinib?
My Mum struggles sleeping, she is also on I
Ibrutinib
. I recently bought her some hemp oil tablets with melatonin to see they helped her sleep. Is this ok with the chemo? Many thanks Michael C
My Mum struggles sleeping, she is also on I
Ibrutinib
. I recently bought her some hemp oil tablets with melatonin to see they helped her sleep. Is this ok with the chemo? Many thanks Michael C
MICHAELC74
in
CLL Support
4 years ago
I don’t have CLL. Do you also post about CNS lymphomas?
Do you also post about
ibrutinib
use with CNS lymphomas?
Do you also post about
ibrutinib
use with CNS lymphomas?
Lemur2020
in
CLL Support
4 years ago
Regeneron treatment for CLL people with early Covid symptoms
Her CLL background is 13q, mutated, and was diagnosed at 46 years old in 2014 and was on W&W, until summer 2020 when she got AIHA (auto immune hemolytic anemia) which they treated successfully with Prednisone, Rituximab and
Ibrutinib
.
Her CLL background is 13q, mutated, and was diagnosed at 46 years old in 2014 and was on W&W, until summer 2020 when she got AIHA (auto immune hemolytic anemia) which they treated successfully with Prednisone, Rituximab and
Ibrutinib
.
Twin21
in
CLL Support
4 years ago
Bruising with Ibrutinib
Does anyone have pictures of red blotches on skin whilst taking
Ibrutinib
. Looks like a blood bruise. Thank you and a Merry Xmas to you all.
Does anyone have pictures of red blotches on skin whilst taking
Ibrutinib
. Looks like a blood bruise. Thank you and a Merry Xmas to you all.
Broadbent
in
CLL Support
4 years ago
Bleending gums
I'm on
ibrutinib
about 6 weeks. Any advice or opinion will be appreciated! Best wishes , Lilica
I'm on
ibrutinib
about 6 weeks. Any advice or opinion will be appreciated! Best wishes , Lilica
lilica955
in
CLL Support
4 years ago
LATEST AND GREATEST LOXO-305 UPDATE
Male 71 years old, Diagnosed 2009, 6 months of FCR 2010, 2015
Ibrutinib
, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
Male 71 years old, Diagnosed 2009, 6 months of FCR 2010, 2015
Ibrutinib
, 2018 Venclaxta, now LOXO-305. 11q del. C-481 mutation and I don't care to know what other blood abnormalities.
steve5441
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with
Ibrutinib
s my second line treatment, I cannot go to Venetoclax-Rituximab in the event that I have to quit
Ibrutinib
...
As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with
Ibrutinib
s my second line treatment, I cannot go to Venetoclax-Rituximab in the event that I have to quit
Ibrutinib
...
Me2AsWell
in
CLL Support
4 years ago
Ibrutinib: Is it best used early in treatment, or after other treatment options have failed?
Watch the interview here. https://cllsociety.org/2020/11/ash-2019-dr-paul-barr-on-
ibrutinib
-as-an-early-line-treatment-for-chronic-lymphocytic-leukemia-cll/
Watch the interview here. https://cllsociety.org/2020/11/ash-2019-dr-paul-barr-on-
ibrutinib
-as-an-early-line-treatment-for-chronic-lymphocytic-leukemia-cll/
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
Looking for a fifth line of CLL treatment
I’m 55 and on my fourth line of treatment in 4 years: BR,
Ibrutinib
, Venetoclax, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
I’m 55 and on my fourth line of treatment in 4 years: BR,
Ibrutinib
, Venetoclax, Acalabrutinib. And it looks like I’ll need a fifth soon. The acalabrutinib keeps the CLL in check but gives me neutropenia. Stopping acalacbrutinib for a week raised my ANC from 0.6 to 2.0.
john-doe
in
CLL Support
4 years ago
Vaccine Covid 19
I feel fine after 4 years on
ibrutinib
, so in that sense, that are good news for 17p CLL patients. In this case I would like to ask you if anyone here know if there is any scientific information about the aviability of the vaccines against covid with CLL.
I feel fine after 4 years on
ibrutinib
, so in that sense, that are good news for 17p CLL patients. In this case I would like to ask you if anyone here know if there is any scientific information about the aviability of the vaccines against covid with CLL.
Bixilon
in
CLL Support
4 years ago
Obinutuzumab and Venetoclax cleared for use in UK
I think I read somewhere that this is also sometimes combined with
ibrutinib
or acalabrutinib?
I think I read somewhere that this is also sometimes combined with
ibrutinib
or acalabrutinib?
Research123
in
CLL Support
4 years ago
Increasing LDH
Joined a trial of obinituzimab,
ibrutinib
, and venetoclax. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
Joined a trial of obinituzimab,
ibrutinib
, and venetoclax. I’m on cycle 13 and numbers in general have been doing well. HOWEVER, my LDH has steadily increased month after month linearly and now is at 400. My doc was thinking transformation and ordered a PET scan - no tumors.
RSSpoke
in
CLL Support
4 years ago
Itching with CLL
Two rounds of chemo with rituxin , after last round and 18 months later I was started on
ibrutinib
and had no side effects for 3 1/2 years but then it all went south. Horrible side effects which caused my doctor to immediately discontinue the
ibrutinib
.
Two rounds of chemo with rituxin , after last round and 18 months later I was started on
ibrutinib
and had no side effects for 3 1/2 years but then it all went south. Horrible side effects which caused my doctor to immediately discontinue the
ibrutinib
.
40fo
in
CLL Support
4 years ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1909 results
CLL America Support
29 results
Non Hodgkin's Lymphoma Friends
29 results
View top 10 communities
Sort by
Most Relevant
Newest