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Ibrutinib
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Skin Cancer and Surgery
Question: Why must I be off of
Ibrutinib
three days before, and three days after, surgery for skin cancer. Basal Cell on my nose ? Mohs Surgery
Question: Why must I be off of
Ibrutinib
three days before, and three days after, surgery for skin cancer. Basal Cell on my nose ? Mohs Surgery
Tapps
in
CLL Support
4 years ago
Non stop sneezing
After 8 months on /
Ibrutinib
I suddenly started sneezing up to 10 times at least on and off . I thaught maybe my cpap machine causing that or just a sinus issue happening . I havnt had sinus problems for 2 years and rarely have colds even though I’m supposed to be immune compromised.
After 8 months on /
Ibrutinib
I suddenly started sneezing up to 10 times at least on and off . I thaught maybe my cpap machine causing that or just a sinus issue happening . I havnt had sinus problems for 2 years and rarely have colds even though I’m supposed to be immune compromised.
Kmegood
in
CLL Support
4 years ago
Richter Transformation - Update
I was taking
ibrutinib
when I was diagnosed with Ricther. I also want to tell you that within Richter's Transformation group on Facebook, there are many of us and there are currently several people in complete remission and no one has died yet. That means the new treatments work.
I was taking
ibrutinib
when I was diagnosed with Ricther. I also want to tell you that within Richter's Transformation group on Facebook, there are many of us and there are currently several people in complete remission and no one has died yet. That means the new treatments work.
Priss69
in
CLL Support
4 years ago
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I'm new here. Anyone experiencing blood glucose elevated on low dose (70mg/daily) ibrutinib?
Diagnosed 4-2013 with CLL (trisomy 12). Started first line treatment on 420mg doses/day in 12-16 (white blood cells at 460,000) until extreme drug toxicity in 02-18. Hospitalized with pneumonia and survived. Off drug for two months, then titration dosages from 280, then 140 and finally 70mg / day. Blood
Diagnosed 4-2013 with CLL (trisomy 12). Started first line treatment on 420mg doses/day in 12-16 (white blood cells at 460,000) until extreme drug toxicity in 02-18. Hospitalized with pneumonia and survived. Off drug for two months, then titration dosages from 280, then 140 and finally 70mg / day. Blood
Buck1000
in
CLL Support
4 years ago
Do you stop Ibrutinib while treated for an infection ?
If you are currently on
Ibrutinib
, do you stop taking it while you are taking an antibiotic to fight an infection ? I am asking because
Ibrutinib
has a tendency to reduce the neutrophile count which, in turn, reduces patient's ability to fight infection.
If you are currently on
Ibrutinib
, do you stop taking it while you are taking an antibiotic to fight an infection ? I am asking because
Ibrutinib
has a tendency to reduce the neutrophile count which, in turn, reduces patient's ability to fight infection.
MikeOr
in
CLL Support
4 years ago
Vaccines
Would appreciate thoughts: On
ibrutinib
, thinking about asking MD for Shingrix vaccination. I see second Shingrix vaccine should be given 2 to 6 months after 1st vaccine. Wondering if it is advantageous to take 2nd dose closer to 2 months or 6 months after 1st vaccine.
Would appreciate thoughts: On
ibrutinib
, thinking about asking MD for Shingrix vaccination. I see second Shingrix vaccine should be given 2 to 6 months after 1st vaccine. Wondering if it is advantageous to take 2nd dose closer to 2 months or 6 months after 1st vaccine.
Davidcara
in
CLL Support
4 years ago
Imbruvica, Ibrutinib in China
I can not find any information about
Ibrutinib
in China.
I can not find any information about
Ibrutinib
in China.
Green202
in
CLL Support
4 years ago
Panniculitis on Ibrutinib
Has anyone developed Panniculitis while on
Ibrutinib
? Red hard and painful bumps under the skin?
Has anyone developed Panniculitis while on
Ibrutinib
? Red hard and painful bumps under the skin?
harley2018
in
CLL Support
4 years ago
Adding Venetoclax to Ibrutinib
Any thoughts about adding Venetoclax to
ibrutinib
. Been on
ibrutinib
since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding Venetoclax with my MD. I sense he would say not at this time, since I have done so well in the
ibrutinib
.
Any thoughts about adding Venetoclax to
ibrutinib
. Been on
ibrutinib
since May 2020, with a beautiful response. Thinking about my future and if it would be beneficial to discuss adding Venetoclax with my MD. I sense he would say not at this time, since I have done so well in the
ibrutinib
.
Davidcara
in
CLL Support
4 years ago
Results of Phase II Study of Combination Obinutuzumab, Ibrutinib, and Venetoclax in Treatment-Naïve and Relapsed or Refractory CLL
I think the most surprising thing in this report is that not everyone responds - [i]"The overall response rate at that time was 84% in treatment-naïve patients and 88% in relapsed or refractory patients."[/i] A short report here: https://ascopubs.org/doi/full/10.1200/JCO.20.00491 Jackie
I think the most surprising thing in this report is that not everyone responds - [i]"The overall response rate at that time was 84% in treatment-naïve patients and 88% in relapsed or refractory patients."[/i] A short report here: https://ascopubs.org/doi/full/10.1200/JCO.20.00491 Jackie
Jm954
Administrator
in
CLL Support
4 years ago
Hives/Rash
I take sub cutaneous IG weekly since June and 420mg of
Ibrutinib
daily since mid July this year. Everything was fine until this happened starting Monday I am unmutated and 11q deleted. Prior to taking
ibrutinib
my wbc was 300 and lots of swollen nodes.
I take sub cutaneous IG weekly since June and 420mg of
Ibrutinib
daily since mid July this year. Everything was fine until this happened starting Monday I am unmutated and 11q deleted. Prior to taking
ibrutinib
my wbc was 300 and lots of swollen nodes.
Murman
in
CLL Support
4 years ago
Effect of Acalabrutinib on the T cell function
Does Acalabrutinib also increses the number and function of T cells the way
ibrutinib
does ? https://pubmed.ncbi.nlm.nih.gov/28714866/
Does Acalabrutinib also increses the number and function of T cells the way
ibrutinib
does ? https://pubmed.ncbi.nlm.nih.gov/28714866/
ikahan
in
CLL Support
4 years ago
3 years on Ibrutinib
My ALC is slowly going up after 3 years on
Ibrutinib
. It is now 4.5 up from 2.6. I have no other symptoms. How high does my ALC have to go for me to start another treatment, that is, if I still have no other symptoms such as swollen glands or enlarged spleen? MRD is positive, 53%.
My ALC is slowly going up after 3 years on
Ibrutinib
. It is now 4.5 up from 2.6. I have no other symptoms. How high does my ALC have to go for me to start another treatment, that is, if I still have no other symptoms such as swollen glands or enlarged spleen? MRD is positive, 53%.
Bmarbler
in
CLL Support
4 years ago
What is usually first line of treatment?
I was offered trial with 2 options you dont get to pick
Ibrutinib
, obinutuzumab, venetoclax Or
Ibrutinib
, obinutuzumab I am hearing from the group that these are second line of treatment. I have not been treated and my retired doc just recently said I was watch and wait.
I was offered trial with 2 options you dont get to pick
Ibrutinib
, obinutuzumab, venetoclax Or
Ibrutinib
, obinutuzumab I am hearing from the group that these are second line of treatment. I have not been treated and my retired doc just recently said I was watch and wait.
showdog
in
CLL Support
4 years ago
Fasting and Ibrutinib
Continued taking
Ibrutinib
each day . Wasn’t too difficult but threw off my sleeping patterns a bit. So fast forward to Monday morning - I lost a total of 8.6 lbs. Will be going for a blood test on Friday Wish me luck 🍀
Continued taking
Ibrutinib
each day . Wasn’t too difficult but threw off my sleeping patterns a bit. So fast forward to Monday morning - I lost a total of 8.6 lbs. Will be going for a blood test on Friday Wish me luck 🍀
steve_canada
in
CLL Support
4 years ago
Cracked nails
I would like to thank the person or persons who suggested to use Hard As Nails to help nails from cracking when using Imbruvica/
Ibrutinib
. I started using it and it is helping . I also found out that Vitry nail care for nail repair is also good but more expensive.
I would like to thank the person or persons who suggested to use Hard As Nails to help nails from cracking when using Imbruvica/
Ibrutinib
. I started using it and it is helping . I also found out that Vitry nail care for nail repair is also good but more expensive.
Kmegood
in
CLL Support
4 years ago
Younger, Fit Patients With CLL: Goal Remains Undetectable Minimal Residual Disease and Time-Limited Therapy
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing
ibrutinib
/rituximab, followed by
ibrutinib
to disease progression vs 6 months of FCR among patients withCLL younger than age 70.
This article looks at the interim analysis of E1912, a U.S. randomized phase III trial comparing
ibrutinib
/rituximab, followed by
ibrutinib
to disease progression vs 6 months of FCR among patients withCLL younger than age 70.
Jm954
Administrator
in
CLL Support
4 years ago
How to manage increased diabetes on ibrutinib?
My dad 73 years old started with Ibrutininb treatment for relapsed CLL on 20 september after 10 days the sugar levels are going very high. Today fasting was 326 mg/dl (normal levels are 80 to 120). Though overall improvement is seen in him but diabetes is remaining very high how to manage it? He takes
My dad 73 years old started with Ibrutininb treatment for relapsed CLL on 20 september after 10 days the sugar levels are going very high. Today fasting was 326 mg/dl (normal levels are 80 to 120). Though overall improvement is seen in him but diabetes is remaining very high how to manage it? He takes
RituBhatnagar
in
CLL Support
4 years ago
Teeth pain
Dears, I am on
Ibrutinib
for 3 months now and besides losing 17kg, I also got several issues - at the same time - with my teeth; between pain, infection and dental caries. So do you think it is resulting from the
Ibrutinib
(the teeth issues surging all together)?
Dears, I am on
Ibrutinib
for 3 months now and besides losing 17kg, I also got several issues - at the same time - with my teeth; between pain, infection and dental caries. So do you think it is resulting from the
Ibrutinib
(the teeth issues surging all together)?
AshGS
in
CLL Support
4 years ago
VenR in Relapsed CLL: 4-Year Results and Evaluation of Impact of Genomic Complexity and Gene Mutations from MURANO 3 study
Salvage therapy with
ibrutinib
after VenR achieved high response rates. Genetic mutations and GC affected MRD rates and PFS"[/i] Much more detail here: https://ascopubs.org/doi/full/10.1200/JCO.20.00948 Jackie
Salvage therapy with
ibrutinib
after VenR achieved high response rates. Genetic mutations and GC affected MRD rates and PFS"[/i] Much more detail here: https://ascopubs.org/doi/full/10.1200/JCO.20.00948 Jackie
Jm954
Administrator
in
CLL Support
4 years ago
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