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1 year in remission (LGOC)
An awesome update, I had a CT at Christie’s a week last Saturday and it’s still all clear. So phew I’m now a year in remission. I will now just have a blood test in 3 months, my last CA125 was 5 but I should point out that it was only 37 at diagnosis and it was rife, including spots on my colon and a
An awesome update, I had a CT at Christie’s a week last Saturday and it’s still all clear. So phew I’m now a year in remission. I will now just have a blood test in 3 months, my last CA125 was 5 but I should point out that it was only 37 at diagnosis and it was rife, including spots on my colon and a
Flower2011
in
My Ovacome
4 years ago
brachytherapy without radiotherapy for endometrial cancer.
Hi All, recovering from hysterectomy. I have grade 2 stage 1b endometrial cancer. I have been offered radiotherapy on its own or brachytherapy on its own. My understanding is brachytherapy has less side effects on bowel and bladder. Has anyone any experience of this they could share? I worry to that
Hi All, recovering from hysterectomy. I have grade 2 stage 1b endometrial cancer. I have been offered radiotherapy on its own or brachytherapy on its own. My understanding is brachytherapy has less side effects on bowel and bladder. Has anyone any experience of this they could share? I worry to that
endo3
in
Pelvic Radiation Disease Association
4 years ago
Hrt for Endo plus Levothyroxine advice
Hi, I’ve had a thyroidectomy last year and in the meantime been diagnosed with severe endometriosis & had an excision op followed by hysterectomy in March this year & further excision of the endometriosis in the rectovaginal area. I’ve kept one ovary with the hope that I don’t have to take the hrt but
Hi, I’ve had a thyroidectomy last year and in the meantime been diagnosed with severe endometriosis & had an excision op followed by hysterectomy in March this year & further excision of the endometriosis in the rectovaginal area. I’ve kept one ovary with the hope that I don’t have to take the hrt but
MajawithaJ
in
Thyroid UK
4 years ago
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Pain relief after abdominal hysterectomy please
Can anyone tell me what pain relief is given immediately and in the coming hours after an abdominal hysterectomy please?? Open surgery not keyhole thanks trying to find out the ins and outs in having mine 2 weeks today also stories please be honest about the after pain and any advice.....pain relief
Can anyone tell me what pain relief is given immediately and in the coming hours after an abdominal hysterectomy please?? Open surgery not keyhole thanks trying to find out the ins and outs in having mine 2 weeks today also stories please be honest about the after pain and any advice.....pain relief
Hidden
in
Endometriosis UK
4 years ago
Partial hysterectomy
Is there a such thing as partial hysterectomy and what happens??
Is there a such thing as partial hysterectomy and what happens??
zoec18
in
Endometriosis UK
4 years ago
Cyst after hysterectomy
Hi everyone, I had a hysterectomy over a year ago and have bee great . It should have been a surgery that removed my ovaries too as that was what was causing the problems. I’ve been having back and stomach pain for a few weeks now and all tests were clear so I went for an ultrasound to see if it was
Hi everyone, I had a hysterectomy over a year ago and have bee great . It should have been a surgery that removed my ovaries too as that was what was causing the problems. I’ve been having back and stomach pain for a few weeks now and all tests were clear so I went for an ultrasound to see if it was
KimPV
in
Endometriosis UK
4 years ago
Right side pain
I’m having the same pain I was having before my hysterectomy and not sure what’s going on, I had a 7cm mass on my right ovary which was drained first it was full of infection after it was drained it still didn’t go so had a full hysterectomy it’s now been 5 months but this is the 3rd time I’ve been
I’m having the same pain I was having before my hysterectomy and not sure what’s going on, I had a 7cm mass on my right ovary which was drained first it was full of infection after it was drained it still didn’t go so had a full hysterectomy it’s now been 5 months but this is the 3rd time I’ve been
KayST79
in
Endometriosis UK
4 years ago
Are my ovaries failing or is it something else?
Hi all, Has anyone here had a hysterectomy and kept their ovaries, but the ovaries have failed afterwards? I'm 7 months post hysterectomy and I've started having spotting and bad pain in my ovaries and hips. I also wake up really sweaty. My doctor mentioned my ovaries could be failing. Can anyone
Hi all, Has anyone here had a hysterectomy and kept their ovaries, but the ovaries have failed afterwards? I'm 7 months post hysterectomy and I've started having spotting and bad pain in my ovaries and hips. I also wake up really sweaty. My doctor mentioned my ovaries could be failing. Can anyone
bethm1983
in
Pelvic Pain Support Network
4 years ago
Scared
Hi all, not been on for a few years ,getting on with life after full hysterectomy 6 rounds of chemo and 25 sessions of pelvic radiation therapy ,lately have been having cramps and pain various locations ,very stressed having lost a beloved pet so scared it’s com e back any ideas or help
Hi all, not been on for a few years ,getting on with life after full hysterectomy 6 rounds of chemo and 25 sessions of pelvic radiation therapy ,lately have been having cramps and pain various locations ,very stressed having lost a beloved pet so scared it’s com e back any ideas or help
Harleeboo
in
My Ovacome
4 years ago
Just Had my Debulking Surgery
Well Hello... This Tuesday had the debulking surgery per the Dr. went really well. Had a complete hysterectomy with omentum then also had my appendix and gallbladder removed because they could. Waiting for labs, but what she thinks so far that it originated in my ovaries then went into my uterus then
Well Hello... This Tuesday had the debulking surgery per the Dr. went really well. Had a complete hysterectomy with omentum then also had my appendix and gallbladder removed because they could. Waiting for labs, but what she thinks so far that it originated in my ovaries then went into my uterus then
PCCDaisy
in
My Ovacome
4 years ago
Prostap. Usual pain has gone but sharp ovarian pain?
Hey guys.. I've not posted for a spell. I'm currently awaiting an appointment with my gynea surgeon with a view to a total hysterectomy, which has - understandably- been postponed due to the current Pandemic. In the inter-rim, my gyneachologist advised to continue with a further 3 months of Prostap.
Hey guys.. I've not posted for a spell. I'm currently awaiting an appointment with my gynea surgeon with a view to a total hysterectomy, which has - understandably- been postponed due to the current Pandemic. In the inter-rim, my gyneachologist advised to continue with a further 3 months of Prostap.
MandaBunny
in
Endometriosis UK
4 years ago
BC, METS, LYMPHEDEMA
I had a grapefruit size breast tumor in Fall 1992, considered terminal. Beat it. Bad Lymphedema in my arm & back and frozen shoulder. Beat them. Feb. 2016--13 tumors. Hysterectomy took out 6 uterine tumors, radiation killed Breast CA that had eaten my sacrum and one Breast CA at the top of my spine
I had a grapefruit size breast tumor in Fall 1992, considered terminal. Beat it. Bad Lymphedema in my arm & back and frozen shoulder. Beat them. Feb. 2016--13 tumors. Hysterectomy took out 6 uterine tumors, radiation killed Breast CA that had eaten my sacrum and one Breast CA at the top of my spine
seiler
in
SHARE Metastatic Breast Cancer
4 years ago
RV Endo - Hysterectomy /Ovaries query
Hi All, I'm after some feedback please. Is there anyone who has had a hysterectomy (kept ovaries), and found their endo has grown back to point of really suffering again and then gone back to have your ovaries out and noticed any improvement? I need a lap either way but wondering about ovaries as torn
Hi All, I'm after some feedback please. Is there anyone who has had a hysterectomy (kept ovaries), and found their endo has grown back to point of really suffering again and then gone back to have your ovaries out and noticed any improvement? I need a lap either way but wondering about ovaries as torn
vixstar84
in
Endometriosis UK
4 years ago
Cytology report
Hi everyone Can any one guide me please I don’t understand dr called me to say that the best option is to take the nodules out,I asked them to give any medication,they say no because your blood reports are normal. I don’t feel like my self one day constipation,body ache, head ache,another day diarrhoea
Hi everyone Can any one guide me please I don’t understand dr called me to say that the best option is to take the nodules out,I asked them to give any medication,they say no because your blood reports are normal. I don’t feel like my self one day constipation,body ache, head ache,another day diarrhoea
Bashu2
in
Thyroid UK
4 years ago
Possible Recurrence - Beyond scared
Hi All, I had OC in April, 2017. Surgery, full hysterectomy, then 6 rounds of tough chemo. I had stage 1c tumor w/ microscopic touching. Last chemo 9-2017. All of my CA-125 tests are around 9-12. May 2020, my CA-125 rose to 29.4. I panicked! Per the advice of my doctors, I waited 4 weeks and did the
Hi All, I had OC in April, 2017. Surgery, full hysterectomy, then 6 rounds of tough chemo. I had stage 1c tumor w/ microscopic touching. Last chemo 9-2017. All of my CA-125 tests are around 9-12. May 2020, my CA-125 rose to 29.4. I panicked! Per the advice of my doctors, I waited 4 weeks and did the
SDlady
in
SHARE Ovarian Cancer Support
4 years ago
ALREADY OBSESSING! First pre-protocol scan & review consultation for my second FET... How do I even begin to think about anything else?
So after my miscarriage last August, following my transfer in the July. I was in a really bad place emotionally and physically. So I knew I needed to wait and during that wait I also had surgery for my endometriosis / adhesions and uterine septum (which I didn't know I had until after the miscarriage
So after my miscarriage last August, following my transfer in the July. I was in a really bad place emotionally and physically. So I knew I needed to wait and during that wait I also had surgery for my endometriosis / adhesions and uterine septum (which I didn't know I had until after the miscarriage
JadeH92
in
Fertility Network UK
4 years ago
Decaceptyl and Escitalopram (Cipalex/Lexapro)
Hi all, In advance of bowel resection and hysterectomy in September, my gynae surgeon wants me to have a Decaceptyl 3 monthly injection. This should calm/reduce endo inflammation in area closest to my bowel and lowers risks of any damage when operating around the nerves which control my bowel, bladder
Hi all, In advance of bowel resection and hysterectomy in September, my gynae surgeon wants me to have a Decaceptyl 3 monthly injection. This should calm/reduce endo inflammation in area closest to my bowel and lowers risks of any damage when operating around the nerves which control my bowel, bladder
edonn
in
Endometriosis UK
4 years ago
30+ years of worsening dysmenorrhea
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Hi, I'm going to apologise in advance for the long one, but I guess I want to vent and see if anybody has experienced the same symptoms but had different treatment offered, or even a diagnosis? I half wonder if it's adenomyosis but until now just think it's "one of those things". What are my rights as
Farleygirl
in
Pelvic Pain Support Network
4 years ago
I'm not sure anymore!
Hi, hope ur all well and as comfortable as can be. I'm having second thoughts about being completely for have a full hysterectomy, I would really like another child but I've been talking myself out of it as I'm not sure I would be able to anyway, my husband and I were trying after I had a miscarriage
Hi, hope ur all well and as comfortable as can be. I'm having second thoughts about being completely for have a full hysterectomy, I would really like another child but I've been talking myself out of it as I'm not sure I would be able to anyway, my husband and I were trying after I had a miscarriage
Pureunicorn
in
Endometriosis UK
4 years ago
I am new to site. Just started with a gynae problem which may need hysterectomy. Have not seen Consultant yet. Any advice pls.
Gynae issue cancer
Gynae issue cancer
Dufay
in
Women's Health
4 years ago
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