Scared: Hi all, not been on for a few years... - My Ovacome

My Ovacome

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Scared

Harleeboo profile image
8 Replies

Hi all, not been on for a few years ,getting on with life after full hysterectomy 6 rounds of chemo and 25 sessions of pelvic radiation therapy ,lately have been having cramps and pain various locations ,very stressed having lost a beloved pet so scared it’s com e back any ideas or help

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Harleeboo profile image
Harleeboo
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Lyndy profile image
Lyndy

I know you are feeling sick with worry at the moment but take it from me, you need to face this head on and ask for a review. Hopefully it will be nothing, in which case you can get on with your life but if it is back you will have the chance to get on top of it in good time. I waited just slightly too long and ended up in a whole lot of trouble.

You will get lots of support from everyone here if you are facing treatment again.

It’s really hard when you are already upset with all that’s happened but be brave! xx

Harleeboo profile image
Harleeboo in reply toLyndy

Thanks know I have to meet it head on ,will ring oncologist tomorrow x

Tulips66 profile image
Tulips66

Hi Harleeboo, unfortunately the worry is always there once you have been diagnosed. I was only diagnosed last year and even though I had a CT scan last month & there's NED when I get a pain or slight twinge anywhere I start fretting. I am not sure how long it is since your diagnosis & treatment but have you still been getting regular CT scans, if not maybe you should ask your GP to check your CA125 levels ( even though I understand some women's CA125 levels can still be low with OC) mine were a huge indicator at nearly 2,500. If yours turn out to be high ask your GP to set up a CT scan for you & hopefully it will be clear. As you know you can't waste time with this disease you have to act as soon as you can & I just hope all will be ok for you & then you can put your mind at rest. Wishing you all the best X

Harleeboo profile image
Harleeboo in reply toTulips66

Thank you ,had blood test today ,oncologist calling tomorrow 😌☺️

Harleeboo profile image
Harleeboo in reply toTulips66

Three and half years ago ,always like you say every little twinge but it’s really got to me at the moment which has been very stressful .Yes have regular checkups

Tulips66 profile image
Tulips66 in reply toHarleeboo

Good luck tomorrow hope you get good news . I will be thinking of you X

Harleeboo profile image
Harleeboo in reply toTulips66

Bloods ok ,oncologist thinks gastric/digestive and ask g p So that’s next step 🤔

Tulips66 profile image
Tulips66 in reply toHarleeboo

Hi again, I know you still don't have any answers but I think if your oncologist thought there was something seriously wrong he would have you in straight away so I hope you can relax a bit & hopefully your GP will get to the bottom of your cramps & pains & get you sorted soon. Let me know how you get on won't you. Take care Xx

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