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Anyone else with Inguinal Endo?
I’ve had endo for best part of 16yrs, numerous laps, hysterectomy. After suffering the most horrendous right sided pain my last lap in Sept found Inguinal Endo, with something like a 0.07% rarity! As well as this i was diagnosed with IC last July and that seems to b rearing it’s ugly head again. Just
I’ve had endo for best part of 16yrs, numerous laps, hysterectomy. After suffering the most horrendous right sided pain my last lap in Sept found Inguinal Endo, with something like a 0.07% rarity! As well as this i was diagnosed with IC last July and that seems to b rearing it’s ugly head again. Just
Gempot
in
Endometriosis UK
4 years ago
ADVICE NEEDED PLEASE
I'm currently on Zoladex injections and Tibolone, awaiting a hysterectomy. I had my 5th injection last week. I haven't heard anything from the hospital about my hysterectomy operation date. Just getting worried that im going to get to the 6th injection and still not heard anything. How long did people
I'm currently on Zoladex injections and Tibolone, awaiting a hysterectomy. I had my 5th injection last week. I haven't heard anything from the hospital about my hysterectomy operation date. Just getting worried that im going to get to the 6th injection and still not heard anything. How long did people
lorraine1981
in
Endometriosis UK
4 years ago
Advanced Endo
Hi I’m a 30 years+ endo sufferer. After repeated laps I had a full hysterectomy last Feb due to a groin flair and adenomyosis. I am still having significant groin pain to the pint I could cry. For the last year or so I have been seen by orthopaedic who keep saying nothing is wrong even though I explained
Hi I’m a 30 years+ endo sufferer. After repeated laps I had a full hysterectomy last Feb due to a groin flair and adenomyosis. I am still having significant groin pain to the pint I could cry. For the last year or so I have been seen by orthopaedic who keep saying nothing is wrong even though I explained
Thompson36
in
Endometriosis UK
4 years ago
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Induced menopause
Hey, 2 years ago I had to have a hysterectomy due to recurring abnormal cervical cells. Because of my severe endo my consultant was hoping to keep my ovaries but I had to have one removed as it was stuck to my womb. I still have my right ovary but get a lot of pain in my right side lower abdomen and
Hey, 2 years ago I had to have a hysterectomy due to recurring abnormal cervical cells. Because of my severe endo my consultant was hoping to keep my ovaries but I had to have one removed as it was stuck to my womb. I still have my right ovary but get a lot of pain in my right side lower abdomen and
Pinkmadmoo
in
Endometriosis UK
4 years ago
Should I have a hysterectomy?
I have several fibroids and an enlarged uterus. My gynaecologist has offered two options: uterine artery embolisation or a hysterectomy, removing the only the uterus and leaving the cervix, ovaries and fallopian tubes. I am (nearly) 37 and do not want children. The fibroids were so bad, I had to be rushed
I have several fibroids and an enlarged uterus. My gynaecologist has offered two options: uterine artery embolisation or a hysterectomy, removing the only the uterus and leaving the cervix, ovaries and fallopian tubes. I am (nearly) 37 and do not want children. The fibroids were so bad, I had to be rushed
hunnypot93
in
Healthy Happy Woman
4 years ago
Goodbye womb you served me well!
So this morning I will be having my hysterectomy. I am terrified. I have to be honest. I’m convinced I am going to die. That’s my anxiety for you! My womb although it’s riddled with stage 4 endo has safely carried 3 beautiful children and sadly lost 1 beautiful angel 💔 I’m not sure if I’ve fully
So this morning I will be having my hysterectomy. I am terrified. I have to be honest. I’m convinced I am going to die. That’s my anxiety for you! My womb although it’s riddled with stage 4 endo has safely carried 3 beautiful children and sadly lost 1 beautiful angel 💔 I’m not sure if I’ve fully
Kat_86
in
Endometriosis UK
4 years ago
Acid??
Hi has anyone similar experience. I'm 10mon post op from subtotal hysterectomy ovaries and omentum. Have large incisional hernia and suffering with acid, nausea and white coated tongue. I'm on 1mg hrt. Could this be Gerd? Acid reflux or candida?? I don't want to take antifungal meds as means have stop
Hi has anyone similar experience. I'm 10mon post op from subtotal hysterectomy ovaries and omentum. Have large incisional hernia and suffering with acid, nausea and white coated tongue. I'm on 1mg hrt. Could this be Gerd? Acid reflux or candida?? I don't want to take antifungal meds as means have stop
Jacqui1737
in
My Ovacome
4 years ago
Has anyone experienced this?
Good evening everyone, I have been having some health issues like really bad cramping, by left ovary, I had a partial hysterectomy years ago, so I no longer have my uterus but I do have ovaries , and pressure on vaginal area, I went to doctor they did bloodwork and it came back and he said my Liver enzymes
Good evening everyone, I have been having some health issues like really bad cramping, by left ovary, I had a partial hysterectomy years ago, so I no longer have my uterus but I do have ovaries , and pressure on vaginal area, I went to doctor they did bloodwork and it came back and he said my Liver enzymes
Alaskagirl67
in
NRAS
4 years ago
Could I have endometriosis, US says A-OK
Hi guys Ok, at a loss, can anyone help. I had my son 10 years ago. Spent 17 days after with so called retained product yet no outward signs. Blood test and US confirmed it and had a d&c. For about 6 years had no period but chronic period pains. That changed to a kind of light spotting/end of period clotting
Hi guys Ok, at a loss, can anyone help. I had my son 10 years ago. Spent 17 days after with so called retained product yet no outward signs. Blood test and US confirmed it and had a d&c. For about 6 years had no period but chronic period pains. That changed to a kind of light spotting/end of period clotting
Goth8133
in
Endometriosis UK
4 years ago
Ongoing pain
Hi everyone Hope your all coping ok at the moment. Have just had another terrible period after not having one for 7 months again. I’m 50 and have had all the tests to point me in the direction of menopause and yet the useless gyne Drs can’t help. So I have decided to stop seeing them. Have endometriosis
Hi everyone Hope your all coping ok at the moment. Have just had another terrible period after not having one for 7 months again. I’m 50 and have had all the tests to point me in the direction of menopause and yet the useless gyne Drs can’t help. So I have decided to stop seeing them. Have endometriosis
Greenlady48
in
Endometriosis UK
4 years ago
Endometriosis
Hi After 25yrs being fobbed off by doctors and specialist with bad period pains and stabbing pains up the rectum (hot poker) I eventually insisted seeing someone again as I had pain in my bladder stomach etc .The gynaecologist I saw was the first man that actually took me serious and said he needed
Hi After 25yrs being fobbed off by doctors and specialist with bad period pains and stabbing pains up the rectum (hot poker) I eventually insisted seeing someone again as I had pain in my bladder stomach etc .The gynaecologist I saw was the first man that actually took me serious and said he needed
Nia7
in
Endometriosis UK
4 years ago
Adenomyosis
I have recently found out I have adenomyosis. This was found during an operation to remove both ovaries and fallopian tubes. My consultant says a hysterectomy is the only cure (which I have no objection too)! In the meantime, she's told me I should not go on HRT as that will make the adenomyosis
I have recently found out I have adenomyosis. This was found during an operation to remove both ovaries and fallopian tubes. My consultant says a hysterectomy is the only cure (which I have no objection too)! In the meantime, she's told me I should not go on HRT as that will make the adenomyosis
MARMMAR
in
Pelvic Pain Support Network
4 years ago
Deceptyl side effects
Hi all, I’ve been having the deceptyl injection for 7 months plus Tibolone for the side effects. I have been having bad lower pelvis pain and pain at intercourse. Doctor says it could possible be atrophy , has had any one had this? She has recommended a hormonal cream, I have been using replenish but
Hi all, I’ve been having the deceptyl injection for 7 months plus Tibolone for the side effects. I have been having bad lower pelvis pain and pain at intercourse. Doctor says it could possible be atrophy , has had any one had this? She has recommended a hormonal cream, I have been using replenish but
Chicken2012
in
Endometriosis UK
4 years ago
How do you feel about HRT and endometriosis after ovary removal?
Hi all, I am 41 and have had severe endometriosis since I was a teenager. 4 years ago I had a hysterectomy and endometriosis excision but kept one ovary. Everything was great for ages, still is really, I'm in 90% less pain but now I have a large endometrioma cyst on my remaining ovary which I'm having
Hi all, I am 41 and have had severe endometriosis since I was a teenager. 4 years ago I had a hysterectomy and endometriosis excision but kept one ovary. Everything was great for ages, still is really, I'm in 90% less pain but now I have a large endometrioma cyst on my remaining ovary which I'm having
Bettyheslop
in
Endometriosis UK
4 years ago
Bevacizumab
Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of carbonation and permission I had a hysterectomy 3weeks ago with my last 2 cycles of chemo I will be started in Bevacizumab, what are people's experience of this drug.
Hi I've got stage 4 high grade serous ovarian cancer. I have had 4 cycles of carbonation and permission I had a hysterectomy 3weeks ago with my last 2 cycles of chemo I will be started in Bevacizumab, what are people's experience of this drug.
Ova-whelmed
in
My Ovacome
4 years ago
After surgery
I had a hysterectomy end of July because I had andometriosis and endometriosis I have had four infections or that's what they think it is I get this horrible pain in my pelvis and groin I've been left with horrible backache Pain in my groin and pelvis on and off and my legs hurt and everything is
I had a hysterectomy end of July because I had andometriosis and endometriosis I have had four infections or that's what they think it is I get this horrible pain in my pelvis and groin I've been left with horrible backache Pain in my groin and pelvis on and off and my legs hurt and everything is
Bailey1981
in
Endometriosis UK
4 years ago
25 year Endometriosis sufferer
Evening all, I have had endometriosis for quite a number of years, have had numerous laparoscopies and been on a few contraceptive pills. my endo completely blocked both fallopian tubes making it impossible to have children without IVF intervention. 4 cycles later I had twin boys delivered by C-section
Evening all, I have had endometriosis for quite a number of years, have had numerous laparoscopies and been on a few contraceptive pills. my endo completely blocked both fallopian tubes making it impossible to have children without IVF intervention. 4 cycles later I had twin boys delivered by C-section
SarahC78
in
The Endometriosis Foundation
4 years ago
Hysterectomy during covid 😰😭
So I’m having a hysterectomy next week. He’s removing everything except an ovary. Excising more of my Endometriosis. Removing my cervix as I also have Adenomyosis and hopefully unwebbing everything which is stuck together. I’ve been waiting for over a year. This will be my 3rd surgery for stage 4
So I’m having a hysterectomy next week. He’s removing everything except an ovary. Excising more of my Endometriosis. Removing my cervix as I also have Adenomyosis and hopefully unwebbing everything which is stuck together. I’ve been waiting for over a year. This will be my 3rd surgery for stage 4
Kat_86
in
Endometriosis UK
4 years ago
Bloated post op
Hi I am now 4 and a half weeks post op I had a laparoscopic removal of endometriosis around the bowel and also a hysterectomy They advised me I could be bloated for a while afterwards but I’m 4 and a half weeks after op now and I’m so bloated still I am that bloated it’s really uncomfortable to breathe
Hi I am now 4 and a half weeks post op I had a laparoscopic removal of endometriosis around the bowel and also a hysterectomy They advised me I could be bloated for a while afterwards but I’m 4 and a half weeks after op now and I’m so bloated still I am that bloated it’s really uncomfortable to breathe
cathhomer
in
Endometriosis UK
4 years ago
It's just life
I don't mean to seem negative even though I know I will come across as such. Because I want to talk about the things we all fear, the things we hide behind a smile. The truth. Life can be good and bad. I read about people encouraging other's not to lose hope in love & they will find their other half
I don't mean to seem negative even though I know I will come across as such. Because I want to talk about the things we all fear, the things we hide behind a smile. The truth. Life can be good and bad. I read about people encouraging other's not to lose hope in love & they will find their other half
Hidden
in
Mental Health Support
4 years ago
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