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Is a hysterectomy inevitable?
I had my follow up consultation yesterday following extensive surgery (endo removed throughout the abdomen 'everywhere', a 10cm endometrioma, appendix, scar tissue, both tubes). Only diagnosed at 35 due to infertility investigations. Stage IV. I guess I was 'lucky; in that I didn't realize before and
I had my follow up consultation yesterday following extensive surgery (endo removed throughout the abdomen 'everywhere', a 10cm endometrioma, appendix, scar tissue, both tubes). Only diagnosed at 35 due to infertility investigations. Stage IV. I guess I was 'lucky; in that I didn't realize before and
Chicken1001
in
Endometriosis UK
3 years ago
1 year Post Hysterectomy
I am just over 1 year post hysterectomy (everything removed) due to cysts, fibroids and stage 4 endometriosis. I had a good 6 month run of feeling better, only issue being exhausted all the time. From around January the old symptoms started making their way back which I found a little surprising
I am just over 1 year post hysterectomy (everything removed) due to cysts, fibroids and stage 4 endometriosis. I had a good 6 month run of feeling better, only issue being exhausted all the time. From around January the old symptoms started making their way back which I found a little surprising
Random_Brunette
in
Endometriosis UK
3 years ago
Anyone veen diagnosed with endo on diaphragm? If so what are the symptoms?
So ive had a hysterectomy but suffered beforehand with coughing up blood sickness and a catching feeling by right rib alongside the other symptoms. When I had my hysterectomy I had endo all over pelvis, bowel and masses in my stomach wall. But they couldn't check inside bowel or any further time wise
So ive had a hysterectomy but suffered beforehand with coughing up blood sickness and a catching feeling by right rib alongside the other symptoms. When I had my hysterectomy I had endo all over pelvis, bowel and masses in my stomach wall. But they couldn't check inside bowel or any further time wise
Thecrazypugglelady
in
Endometriosis UK
3 years ago
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Has anyone tried progesterone cream after a hysterectomy?
As I think my endo has returned after my hysterectomy and my oestrogen levels are high, I was wondering if it’s worth trying natural progesterone cream to balance the oestrogen. Has anyone had any success with easing endo symptoms this way or am I wasting my time?
As I think my endo has returned after my hysterectomy and my oestrogen levels are high, I was wondering if it’s worth trying natural progesterone cream to balance the oestrogen. Has anyone had any success with easing endo symptoms this way or am I wasting my time?
Nikkky
in
Endometriosis UK
3 years ago
reactivation of endometriosis
Has anybody else had endometriosis reactivation after full hysterectomy, like myself i am shocked and gutted been in so much pain for 2 yrs now
Has anybody else had endometriosis reactivation after full hysterectomy, like myself i am shocked and gutted been in so much pain for 2 yrs now
tiberius37
in
Endometriosis UK
3 years ago
Endo bowel symptoms after hysterectomy
Just wondering if anyone has had a similar experience to me and what the outcome was. Also, any advice on where to go from here is much welcome. I’ve had chronic pelvic pain and bowel issues for years, which has resulted in various investigations and procedures. I’ve had a few conditions diagnosed during
Just wondering if anyone has had a similar experience to me and what the outcome was. Also, any advice on where to go from here is much welcome. I’ve had chronic pelvic pain and bowel issues for years, which has resulted in various investigations and procedures. I’ve had a few conditions diagnosed during
Nikkky
in
Endometriosis UK
3 years ago
Broken and Lost - awaiting urgent hysterectomy at 34
Today broke me!! My surgeon phoned for an over the phone consult (thanks covid) if you know my story I’ve been waiting since 2017 for a hysterectomy due to stage 4 or as I call it decimated stage Endo. I haven’t even met him in person since I was ‘urgently’ referred Nov 19! And he’s called twice both
Today broke me!! My surgeon phoned for an over the phone consult (thanks covid) if you know my story I’ve been waiting since 2017 for a hysterectomy due to stage 4 or as I call it decimated stage Endo. I haven’t even met him in person since I was ‘urgently’ referred Nov 19! And he’s called twice both
Endo_Jaded
in
Endometriosis UK
3 years ago
And now I'm just aggressive and pissed.
Seeing my post from Monday, know that my mental state has gone from panicked to depressed to sad and ultimately bad. But I'm done. **** trying to be happy so others will stop asking if I'm ok. We all know I'm not. I'm taking control and getting out of bed and cleaning my damn house. I'm done crying
Seeing my post from Monday, know that my mental state has gone from panicked to depressed to sad and ultimately bad. But I'm done. **** trying to be happy so others will stop asking if I'm ok. We all know I'm not. I'm taking control and getting out of bed and cleaning my damn house. I'm done crying
AnxiouslyZen
in
Anxiety and Depression Support
3 years ago
Surprise diagnosis, big op looming, scared and relieved
Having suffered since i was 11, but blessed with 3 children, i was rushed to hospital last Wednesday with suspected appendicitis or an ectopic pregnancy following Marina coil 1 1/2 months ago. Turns out i have endometriosis stage 4, adenomiosis and bilateral endometriomas which are stuck round the back
Having suffered since i was 11, but blessed with 3 children, i was rushed to hospital last Wednesday with suspected appendicitis or an ectopic pregnancy following Marina coil 1 1/2 months ago. Turns out i have endometriosis stage 4, adenomiosis and bilateral endometriomas which are stuck round the back
Macdunc29
in
Endometriosis UK
3 years ago
? If going back on HRT will help me?
After a Hysterectomy for fibroids & endometriosis 30 years ago (aged 40 years) I started on HRT because of menopausal symptoms kicking in after a couple of months. I felt good on it. After about 5 years I was said to have Atypical Ductal Hyperplasia (potential for abnormal breast cells) after having
After a Hysterectomy for fibroids & endometriosis 30 years ago (aged 40 years) I started on HRT because of menopausal symptoms kicking in after a couple of months. I felt good on it. After about 5 years I was said to have Atypical Ductal Hyperplasia (potential for abnormal breast cells) after having
JAE69
in
Thyroid UK
3 years ago
Recovery fro Full Abdominal Hysterectomy
It’s 4wks since my surgery and feeling loads better but can still only walk for about 30-40 mins before my tummy/abdomen starts to ache, this maybe because I’m a bit over weight and have an apron tummy also my abdomen/tummy is still numb. Is this normal? I get a pain when I go to the toilet for a wee
It’s 4wks since my surgery and feeling loads better but can still only walk for about 30-40 mins before my tummy/abdomen starts to ache, this maybe because I’m a bit over weight and have an apron tummy also my abdomen/tummy is still numb. Is this normal? I get a pain when I go to the toilet for a wee
Kemali
in
Healthy Happy Woman
3 years ago
I’ve started Prostap and hrt I feel horrible
This is the first time I’ve had hrt with prostap and I just feel so bloated towards the end of the day and my belly pain feels horrible like a have a brick heavy pressure lower belly, normally when just on prostap it gets rid of thoses pains I’m fed up I don’t know what to do anymore!! My consultant
This is the first time I’ve had hrt with prostap and I just feel so bloated towards the end of the day and my belly pain feels horrible like a have a brick heavy pressure lower belly, normally when just on prostap it gets rid of thoses pains I’m fed up I don’t know what to do anymore!! My consultant
Hidden
in
Endometriosis UK
3 years ago
Prostap vs Hysterectomy
I'll try to keep this brief. I'm 45 next month. 4.5 years ago I had my second surgery to remove adhesions/ endo and it was major surgery. Everything that could be stuck together was. After 4 months the pain returned so reluctantly they agreed to give me prostap long term along with HRT. I had been on
I'll try to keep this brief. I'm 45 next month. 4.5 years ago I had my second surgery to remove adhesions/ endo and it was major surgery. Everything that could be stuck together was. After 4 months the pain returned so reluctantly they agreed to give me prostap long term along with HRT. I had been on
silliebillie
in
Endometriosis UK
3 years ago
cystoscopy And not trusting the doctors
I am supposed to be having cystoscopy procedure tomorrow (a camera inserted into my bladder) my doctors have made a mistake saying I am only taking 60mg ticagrelor twice daily I am taking 90 mg twice daily plus my 75mg of aspirin both thin the blood and I bleed and bruise heavily. The camera inserted
I am supposed to be having cystoscopy procedure tomorrow (a camera inserted into my bladder) my doctors have made a mistake saying I am only taking 60mg ticagrelor twice daily I am taking 90 mg twice daily plus my 75mg of aspirin both thin the blood and I bleed and bruise heavily. The camera inserted
Annemarietheknitter
in
British Heart Foundation
3 years ago
Diagnosis at 24
Hi all new to this group. Had a lap Saturday as I’ve been suspected endo for years, they didn’t find endo however said the extent of my adeno was quite advanced for my age and usually seen in middle aged women. I also had some scar tissue removed from my bowel anyone else heard of this? I’ve had mirena
Hi all new to this group. Had a lap Saturday as I’ve been suspected endo for years, they didn’t find endo however said the extent of my adeno was quite advanced for my age and usually seen in middle aged women. I also had some scar tissue removed from my bowel anyone else heard of this? I’ve had mirena
Adeno2020
in
Adenomyosis Advice Association
3 years ago
Menopause and endo
Hi all, I'm interested in how people have found endo and menopause? I'm 48 with severe Stage 4/5 endo with bowel and right ovary/fallopian tube impaction but only ever had one diagnostic lap - considering surgery....for possible hysterectomy etc BUT Have found the last 6-9 months much of my regular
Hi all, I'm interested in how people have found endo and menopause? I'm 48 with severe Stage 4/5 endo with bowel and right ovary/fallopian tube impaction but only ever had one diagnostic lap - considering surgery....for possible hysterectomy etc BUT Have found the last 6-9 months much of my regular
Gio73
in
Endometriosis UK
3 years ago
Hospital Update
Good morning fellow lupies went to hospital appointment yesterday had a biopsy taken which was a very painful experience as they had to do it up and through my cervix - had another ultrasound and the consultant showed me a have a large cyst like mass right in the middle of one ovary, the pain I have
Good morning fellow lupies went to hospital appointment yesterday had a biopsy taken which was a very painful experience as they had to do it up and through my cervix - had another ultrasound and the consultant showed me a have a large cyst like mass right in the middle of one ovary, the pain I have
svfarmer
in
LUPUS UK
3 years ago
Help pls !!
Help pls ladies I dnt understand the terminology in the letter could u help figure it out for me pls it says the pouch of Douglas is obliterated by a plaque which extends from the torus uterinus with mild thickening of bilateral uterosacral ligaments I have appt with endometriosis surgeon ( specialist
Help pls ladies I dnt understand the terminology in the letter could u help figure it out for me pls it says the pouch of Douglas is obliterated by a plaque which extends from the torus uterinus with mild thickening of bilateral uterosacral ligaments I have appt with endometriosis surgeon ( specialist
Endo-battle
in
Endometriosis UK
3 years ago
Recovery time for robotic excision of DIE and hysterectomy?
Hi there, I am reasonably new although I have been lurking a bit and I am also fairly seasoned on other forums. Although it was suspected for a while that I might have Endo as I have Adenomyosis (also previously bad dose of Fibroids) it was only just diagnosed last month. I am scheduled to have robotic
Hi there, I am reasonably new although I have been lurking a bit and I am also fairly seasoned on other forums. Although it was suspected for a while that I might have Endo as I have Adenomyosis (also previously bad dose of Fibroids) it was only just diagnosed last month. I am scheduled to have robotic
Innaminn
in
Endometriosis UK
3 years ago
I've lost all hope.
I am so fed up and at the end of my rope. I have been trying to get treatment for over five years now. There have been several GPs (due to the first one leaving the practice and Covid necessitating using who you are given). There have been several gynaecologists and scans. I get told one thing and
I am so fed up and at the end of my rope. I have been trying to get treatment for over five years now. There have been several GPs (due to the first one leaving the practice and Covid necessitating using who you are given). There have been several gynaecologists and scans. I get told one thing and
Missy100
in
Endometriosis UK
3 years ago
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