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Hypomyelination and congenital cataract
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thinning hair and skin problem with IBS
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
I have had IBS(D) for more than 40 years which has gradually got worse over the years , more pain all over my abdomen radiating under right and left ribs ! I have had cat scans ,colonoscopies and blood tests over the years all normal ; I notice in the last few years my hair is getting thinner and
Mascot68
in
IBS Network
2 months ago
Bladder Cancer Update and More. UPDATE.
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Back in January I was diagnosed with problems with my spine as below. "x rays shows OA throughout loss lumbar lordosis" I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy? I said at the time I would consult my GP and
Ern007
in
Lung Conditions Community Forum
4 months ago
Fulvestrant side effects and updates
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
After 4yrs of silence and no medications against my oncologist advice, my breast cancer is back. Atleast I was spared from horrible side effects for those times. My 2023 January Ct scan showed mets again in mu lungs, liver and some other areas. It progressed slowly as I was going through so much financial
JonaC38
in
SHARE Metastatic Breast Cancer
4 months ago
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Thank you for all the support and bye for now
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Warning this is very long and contains some sensitive information that might be triggering for some. Hello lovely people, hope you are all coping ok and having a comfortable day. I have been quite active on here for a few months telling my story of living with endo since I was very
Poppyg16
in
Endometriosis UK
4 months ago
Eligard and loss of taste
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
I have been on Eligard since the end of December 2023 and finished 28 IMRT sessions for my Gleason 9 non-metastatic PC Besides the usual loss of libido, fatigue and hot flushes, I have also experienced a diminished ability to taste. I also have this change in my tongue and mouth with a yukky taste.
7OaksTom
in
Advanced Prostate Cancer
4 months ago
Autovaccination seems a hot topic lately: Mt. Sinai autovaccination technique to turn cold prostate cancer hot (Phase 1)
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
Maxone73
in
Advanced Prostate Cancer
4 months ago
Anyone have side effects from omenectomy?
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC tumor - I’m one year NED so far). I also have endometriosis too, so I’m hoping this helps stop that pain too. My procedure, together with a hernia
Hailun
in
My Ovacome
4 months ago
Ascites coming back,primary peritoneal
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal cancer almost two years ago after ascites discovered and drain needed. Initially thought was stage 3c and as it had affected a lymph node it was then
SupportingmyMum
in
My Ovacome
4 months ago
Blood Test
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
I had a blood test done 2/3 weeks ago it was supposed to be about the Anastrazole tablets 1mg levels that I take one a day following B/Cancer 2018 that following that I had to shield 4 the year of 2020 as I was at high risk E.T.C of getting the stuff with me having to watch what I was eating with that
bungi1961
in
IBS Network
4 months ago
Cataracts and Lazy eye
Hi every one, I am due to have cataract surgery in a few months. I will be having my left eye done first which is a Lazy eye.Has anyone had this done and does it improve sight in that eye.
Hi every one, I am due to have cataract surgery in a few months. I will be having my left eye done first which is a Lazy eye.Has anyone had this done and does it improve sight in that eye.
Lizzyanne567
in
Glaucoma UK
1 year ago
Just been told…I have a Brain Tumour
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of tongue and activity in left tonsil )6that I had a clear MRI …..( PET scan in 2 weeks). Had a few tears of relief thinking about losing 8 teeth /
EllieMay7
in
Acoustic Neuroma Support
4 months ago
Is anyone familiar with the GUN trial?
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
Hello, sorry for all the questions. My 59 year old husband was recently diagnosed and we have so much information coming at us, fast and furious. Yesterday he was offered an opportunity to participate in the GUN trial. So far the information we have about his cancer: CT scan inadvertently found the
EvFC
in
Advanced Prostate Cancer
4 months ago
Advice
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
Good afternoon. Yesterday I visited my ancologist after a city scan, who showed a slight increase in metastases in the liver after 3 months of treatment with Ibrance and Fulvestran. The doctor referred me for a consultation with a radiologist-ancologist. Does anyone have experience with radiation to
yevgeniakoretskaya
in
SHARE Metastatic Breast Cancer
4 months ago
Not PCa but related. Imuno therapies keeps getting better.
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
On April 4, 2024, Candel Therapeutics, Inc. (the “Company”) issued a press release announcing positive interim data from its randomized phase 2 clinical trial of CAN-2409 in non-metastatic pancreatic cancer. A copy of the full press release is attached as Exhibit 99.1 to this Current Report on Form
Scout4answers
in
Advanced Prostate Cancer
4 months ago
Rise in WBC
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
Hello to all, My husband has CLL, he has also been treated for metastatic melanoma which from his latest CT scan is NED. He will receive his last immunotherapy infusion next week. We are beyond grateful. However his blood work taken yesterday showed and increase in his WBC from 14.5 last month to the
313313
in
CLL Support
4 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
4 months ago
here we are again
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
my husbands blood work did not come back good after being great for over 5 years on Imbruvica. Oncologist ordered a Pet Scan since he has never had one. Just CT scans. And more comprehensive blood work. To say I’m a mess is an understatement. We thought imbruvica was the answer to our prayers for it
CLLWife
in
CLL Support
4 months ago
New delivery system (works well in vivo): from Spain with love, new nanoparticles
there's a lot being studied for drugs delivery... "The research team analyzed the molecular structure of these materials and the dynamics behind the secretion process, both in vitro and in vivo. In an animal model of CXCR4+ colorectal cancer, the system showed high performance upon subcutaneous administration
there's a lot being studied for drugs delivery... "The research team analyzed the molecular structure of these materials and the dynamics behind the secretion process, both in vitro and in vivo. In an animal model of CXCR4+ colorectal cancer, the system showed high performance upon subcutaneous administration
Maxone73
in
Advanced Prostate Cancer
4 months ago
Stage 4 lung cancer - treatment
Hi all, would really appreciate any thoughts , insight or experiences. My grandad was diagnosed with stage 4 lung cancer June 2023, he is 77 but prior to diagnosis was very fit and well, performance status zero. His treatment plan was to have Cisplatin and Pemetrexed (chemotherapy) and Pembrolizumab
Hi all, would really appreciate any thoughts , insight or experiences. My grandad was diagnosed with stage 4 lung cancer June 2023, he is 77 but prior to diagnosis was very fit and well, performance status zero. His treatment plan was to have Cisplatin and Pemetrexed (chemotherapy) and Pembrolizumab
Clark74517796
in
The Roy Castle Lung Cancer Foundation
4 months ago
Prostate cancer cases worldwide likely to double by 2040, analysis finds
Hopefully this report leads to more investment in treatment . "The number of men diagnosed with prostate cancer worldwide is projected to double to 2.9 million a year by 2040, with annual deaths predicted to rise by 85%, according to the largest study of its kind. " "Prostate cancer is already a
Hopefully this report leads to more investment in treatment . "The number of men diagnosed with prostate cancer worldwide is projected to double to 2.9 million a year by 2040, with annual deaths predicted to rise by 85%, according to the largest study of its kind. " "Prostate cancer is already a
PSAed
in
Advanced Prostate Cancer
4 months ago
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