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Bladder Cancer Update and More. UPDATE.

Ern007 profile image
61 Replies

Back in January I was diagnosed with problems with my spine as below.

"x rays shows OA throughout

loss lumbar lordosis"

I posted at the time being my spine is affected, would that affect me being able to have a spinal (Epidural) when I have a Cystoscopy?

I said at the time I would consult my GP and she what she thought.

I saw her yesterday and she honestly did not know. She went through the x Ray on my back and in places spondylosis was severe but near where a spinal injection would be given, that's not as severe as T11 and L1 whatever that means.

Her answer was - It will be down the the head Anaesthetist who will decide could a spinal go ahead or did I have to have a GA. She was hopeful I would still be able to have a spinal.

She hid her best to help, but I see her point.

I am due a cystoscopy but heard nothing yet - Fingers crossed I will get a Flexy first, all clear will be great, if not with go for a TURBT Cystoscopy.

The difference is a flexy tube is smaller and dose not require either GA or Spinal.

If anything found with flexy camera then will be a TURBT to remove and or take biopsies. That will mean a spinal Fingers crossed or a GA.

I am not even sure if my BCG treatment has finished, will have to try and find that out.

Sorry for long post.

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Ern007
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61 Replies
HelNel7 profile image
HelNel7

Thinking of you, Ern - I hope you get a resolution as soon as possible, uncertainty is always difficult to deal with xxx

Ern007 profile image
Ern007 in reply toHelNel7

Thank you Helen. I am hoping to hear soon. I am hoping for a flexy, then no anesthetic at all bar a bit of local is needed . You are so right, it's the waiting xxx

Handel profile image
Handel

Hello Ern. Thinking of you while you're waiting. I had good results from my 6 monthly scan following removal of a tumour in my lung!! However ..... they found 'severe coronary artery disease" - so like you, I'm waiting!! Hopefully you'll not need an injection or general anaesthetic. You've gone through so much though. Wishing you all the best.

Love and hugs. Jan xxxx

Ern007 profile image
Ern007 in reply toHandel

Thank you Jan - If I had to I would wish a spinal. with lung and heart problems don't really want a GA - Maybe I will have a clear flexy then no problem. I hope you also find out soon, I have had CHD for years and am still here, Lucky you have that scan Jan.

Lots of hugs to your xxxx

Handel profile image
Handel in reply toErn007

Thanks Ern. We're a right pair aren't we!! Hope everything goes well with you.

All the very best. Jan xxx

helenlw7 profile image
helenlw7

I can’t remember whether I replied to your original posts or not, but I was due to have knee replacement surgery by epidural because my neck is a bit wonky, but it was cancelled because I was in hospital for another issue and before surgery the anaesthetist came and told me I would have to have aGA because I have spinal stenosis. Good luck. Good luck with your cystoscopy.

Ern007 profile image
Ern007 in reply tohelenlw7

I can't remember either Helen - I was waiting for some word, I remember posting I would ask my GP - My neck is wonky, I have degeneration of cervical disc. The spinal problems low down are more recent. loss lumbar lordosis - Doctor unsure about spinal or , so it's wait and see. Thank you and I hope you get your knee sorted,

helenlw7 profile image
helenlw7 in reply toErn007

Well I’m on the waiting list again for the same orthopaedic surgeon who has experience of working with steroid dependent people, but I don’t think it’ll be done any time soon because I’ve still got an open wound on my hip, which was infected twice while in hospital and the risk from infection is too great.

Ern007 profile image
Ern007 in reply tohelenlw7

Thank's not good at all. I was help up with COVID twice. Not on is it Helen? Hope your recovers soon , really is bad luck that

HungryHufflepuff profile image
HungryHufflepuff

waiting and not knowing is tough. Hopefully it will work out and you can have the flexy and not need a general anaesthetic. Keeping my fingers crossed for you 🤞

Ern007 profile image
Ern007 in reply toHungryHufflepuff

Thank you HungryHufflepuff - It will I think be a flexy, if nothing found. Yipee - If there is, means a TURBT to remove it, like in 2021, So yep, fingers crossed.

Oshgosh profile image
Oshgosh

every thing crossed for you xx

Ern007 profile image
Ern007 in reply toOshgosh

Thank you Oshgosh. xx

SharonMcKnight profile image
SharonMcKnight

P:rayers my friend.....

Ern007 profile image
Ern007 in reply toSharonMcKnight

Thank you Sharon, they are welcome,

rosco59 profile image
rosco59

I hope it all goes well and you have the best possible outcome. Christine x

Ern007 profile image
Ern007 in reply torosco59

Thank you Christine x

stravinsky1 profile image
stravinsky1

🤞 you can have the epidural

Ern007 profile image
Ern007 in reply tostravinsky1

Thank you stravinsky1

B0xermad profile image
B0xermad

Fingers crossed for you and the outcome ,I hope you don't have to wait for long to get a resolution from the hospital

Ern007 profile image
Ern007 in reply toB0xermad

Thank you B0xermad - They are pretty good, but can be skow,

Numptybrain profile image
Numptybrain

I can sense your tension and dilemma. I too can’t have GA’s too risky and my spine is also a mess so I’d have the same issue, it would be far safer for an epidural for me but could they actually perform it?

I really hope you get answers soon and they can manage the epidural.

Good luck Ern, I’m thinking of you

Wendy xx

Ern007 profile image
Ern007 in reply toNumptybrain

Thank you Wendy - Last couple of epidurals have been OK, but at times it took a long while to get the needle in. With luck they may decide a spinal risk is less that a GA, if as you say it would be an option.xx

Abutilo profile image
Abutilo

Hi Ern yout query about T11 and L1 they split the spine into different regions, c -cervical,, neck area, t - thoracic chest area and l - lumber lower area. They then number the discs within each area. I think thoracic is 1 to 12 and lumber 1 to 5. Hope this helps. I wish you well with your treatment. Keep posting he painting s they really brighten my day.., Sue

Ern007 profile image
Ern007 in reply toAbutilo

Thank you Sue I wonder what it meant, I will def keep posting, I am on something different to post Sunday evening,,

Abutilo profile image
Abutilo in reply toErn007

I look forward to Sunday's painting. Sue

Ern007 profile image
Ern007 in reply toAbutilo

Thank you, I can promise it will be different,

Bingo88 profile image
Bingo88

Good morning Ern007. Well sadly your no better informed than before you seen the doctor. Just hope it's the easier option for you and you get the all clear my friend. Brian

Ern007 profile image
Ern007 in reply toBingo88

Thank you Brian3. She explained it would be up to the senior. It's a matter of wait and see,.

Bingo88 profile image
Bingo88 in reply toErn007

Yes. That's no good for you with not knowing. Let's hope it's the less invasive procedure

Ern007 profile image
Ern007 in reply toBingo88

I hope for that Brian, I am due a letter very soon.

Izb1 profile image
Izb1

Fingers crossed you can have the flexi it will make everything so much easier for you x

Ern007 profile image
Ern007 in reply toIzb1

Thank you Izb1 - That would be the best outcome , by miles x

Nula2 profile image
Nula2

Hi Ern, like everyone has said everything crossed that you get a spinal. What a lot to take in! Not sure how you remember everything, your medical problems are so many and so diverse! But I wish you well my friend❤️xxx

Ern007 profile image
Ern007 in reply toNula2

Thank you Nula2 - I seem to remember although my memory is not that good. I had an op to remove my wisdom teeth, again I went for the spinal. No pa A, surgeon would not give me one anyway, I had an Hernia op with a spinal and it went good, Thank you for your good wishes xxx

Nula2 profile image
Nula2 in reply toErn007

🤞🤞xxx

Issy22 profile image
Issy22

Dear Ern I pray they don’t find anything and give you an all clear result. Try to stay positive. All the best, thinking of you. ❤️

Issy x

Ern007 profile image
Ern007 in reply toIssy22

Thank you Issy22 - yep best outcome would be a flexy with no need to proceed to a TURBT. x

Issy22 profile image
Issy22 in reply toErn007

Hopefully Ern fingers crossed 🤞

Cloudancer profile image
Cloudancer

Thinking of you and hope that what is best for you happens x

Ern007 profile image
Ern007 in reply toCloudancer

Thank you Cloudancer, x

Wheezes profile image
Wheezes

hi Ern, sorry to hear about your worries. The anaesthetist will have a discussion with you prior to the procedure. They don’t take unnecessary risk and they want you to be calm at the time of the procedure. Try and not think about it now, just make notes of the questions you want to ask your anaesthetist, or even take someone along with you!

Please remember you are 007, you are a special human being and strong and respected!

Take care x

Ern007 profile image
Ern007 in reply toWheezes

Thank you Wheezes - If it's not a flexy Anne comes with me, the anaesthetist are brilliant and will do the best thing, for all my procedures and op, I have never had a GA, just hope that continues x

Ergendl profile image
Ergendl

Hoping all goes well for you and you get the outcome you most want.

Ern007 profile image
Ern007 in reply toErgendl

Thank you Ergendl..

watergazer profile image
watergazer

thanks for the update. Fingers crossed for your answers x

Ern007 profile image
Ern007 in reply towatergazer

Thank you watergazer, I am hoping for the Flexy, that would be the best outcome,

sassy59 profile image
sassy59

Just back from our break and want to say that I hope everything works out well for you. You deserve good things Ern and I’ll keep everything crossed for you. Take care xxx❤️

Ern007 profile image
Ern007 in reply tosassy59

Thank you Carole - I am now just in waiting mode, if they just want to see what is what, that will mean a flexy and that would be good. Hope your break went well. xxx

sassy59 profile image
sassy59 in reply toErn007

👍🤞🏼❤️xxxx

sunshineday profile image
sunshineday

Sorry to hear of all the uncertainty Ern, hoping that you'll be able to have the Flexy and everything will go well. Thinking of you and 🙏 for successful outcomes. Joy xx

Ern007 profile image
Ern007 in reply tosunshineday

Thank you Joy, I am so hoping for a flexy at least as the first option. xx

Alberta56 profile image
Alberta56

Hope all goes well, Ern, and you get the treatment you would prefer. xxx

Ern007 profile image
Ern007 in reply toAlberta56

Thank you Chris - I hope I get a flexy and hope it's clear, I am not sure if I have another course of BCG to come. I hope I have, it helped. xxx

Alberta56 profile image
Alberta56 in reply toErn007

🤞🤞🤞 Fingers crossed for you. xxx

Ern007 profile image
Ern007 in reply toAlberta56

Thank you Chris XXX

Thinkhealthy profile image
Thinkhealthy

hope it all goes well xx

Ern007 profile image
Ern007 in reply toThinkhealthy

Thank you - Thinkhealthy xx

Dottie11 profile image
Dottie11

Thinking of you. xxx

Ern007 profile image
Ern007 in reply toDottie11

Thank you Dottie. I hoping no news now, is good news xxx

Dottie11 profile image
Dottie11

Yes I really hope so too.xx

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