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Can Nubeqa (Darolutamide) be used instead of normal ADT drugs for localized PCa?
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Hi all. Australia has just given the green light to lower the cost of this so-called wonder drug from a staggering $40K (AUD) to a low $30. It seems that this drug has fewer side effects than the usual ADT drugs and from what I can gather does a pretty good job of preventing the growth and spread
Mike58
in
Advanced Prostate Cancer
9 months ago
Sex hormones
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
Does anyone know if 26.3 (16-124) is lower than ideal? My testosterone was bottom of range but now ok with HRT. I’m trying to get to the bottom of my low cortisol and whilst this is in range, wondered if it should ideally be higher like your thyroid? Many thanks
CornishChick
in
Thyroid UK
9 months ago
Weird optical lights/constant bad headache
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
Hi everyone ❤️ OK for a while now I've been having bad headaches just thought it was apart of everything I've been going through... Struggling with thyroid medication, and being diagnosed with primary hyperparathyroidism. About 3 weeks ago I started seeing weird optical lights and strange light disturbances
birkie
in
Thyroid UK
11 months ago
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Permanent Lung Scarring from Pneumonia
Does anyone on here have experience of permanent lung scarring (in this case caused by flu/bacterial pneumonia)? How long did it take for the scarring to develop or the extent to become known - was it months or weeks from onset of pneumonia? Some of you may have seen my other post about my dad currently
Does anyone on here have experience of permanent lung scarring (in this case caused by flu/bacterial pneumonia)? How long did it take for the scarring to develop or the extent to become known - was it months or weeks from onset of pneumonia? Some of you may have seen my other post about my dad currently
Pookyal
in
Lung Conditions Community Forum
2 years ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
9 months ago
Bummed, PSA went up 0.08 in a Week! Am I failing ADT?
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Ok being dramatic Rising PSA? So damn soon? 15 months in Gleason 8/9 Low Volume High Grade History Dx 07/01/2022 Firamagon @28 days Zytiga with prednisone daily Metformin 500 mg daily Completed 6 Sessions of Docetaxel by 01/06/2023 Davinci RP w/ PLNR surgery 03/14/2023 No Supplements
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Should I be concerned about a PSA of 0.53 after SBRT treatment for one spot.
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
After 18 months of undetectable PSA (after ADT & 44 IMRT treatments) , my PSA started to rise this summer and was 2.66 at it's highest. My RO send me for a PSMA- Pet scan and he found one spot on T-10. 5 treatment with SBRT in Oct - Nov and now on Dec 6th my PSA was tested to
0.53.
Should
VCinTx
in
Advanced Prostate Cancer
9 months ago
Leg Pain - 4th Week on Lupron
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
Hi Friends, I'm on 4th week of ADT (Lupron+Abiraterone). Yesterday I started feeling right upper leg pain in the quads area. I'm not sure whether it's bone or muscle pain. But it's getting worse. I can barely walk. At first I was thinking may be I strained it. But I didn't do anything different than
FightCancer101
in
Advanced Prostate Cancer
9 months ago
PSMA PET Scan - Help Interpreting Report?
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
Hello, My husband had his first PSMA PET scan done today, and I am hoping someone who understands PSMA PET reports can help us interpret/understand the results as well as what to expect or ask for in terms of any further testing and/or treatment? My profile is updated with his history, but in a nutshell
FaithOverFear104
in
Advanced Prostate Cancer
9 months ago
No indication for Docetaxel ?
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
Helo All, thanks in advance for your usual help. Almost five years in this journey. RP in 2019, followed by SRT plus ADT for 6 mo. First recurrence in 2021, had RT in LN plus ADT for 8mo. Second recurrence in january this year, started ADT again plus Erleada in July. PSA undetectable last month. Zoladex
CarlosBrasil
in
Advanced Prostate Cancer
10 months ago
After some advice
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
I'm 57 yo post menopausal woman with hypermobility and POTS (POTS only diagnosed in 40's after much pushing with medical profession). I take HRT and meds for POTS. I'm suffering with a number of tendonitis issues and wonder if anyone has any advice about this? At the moment it's achilles tendonitis
Lizzog
in
Ehlers-Danlos Support UK
10 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
10 months ago
PSMA Results
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Prostate Cancer And Gay Men
10 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
10 months ago
Hello - my 'Mum' has Idiopathic pulmonary fibrosis
Hi. My auntie who I have had a close mother-daughter type relationship for all my life (I'm 50, she's 80) started showing strong symptoms in late 2021 and was diagnosed last year with Idiopathic pulmonary fibrosis. She is now housebound on 24hr oxygen therapy with carers coming in and lots of visits
Hi. My auntie who I have had a close mother-daughter type relationship for all my life (I'm 50, she's 80) started showing strong symptoms in late 2021 and was diagnosed last year with Idiopathic pulmonary fibrosis. She is now housebound on 24hr oxygen therapy with carers coming in and lots of visits
Daisywendy
in
Lung Conditions Community Forum
2 years ago
Docataxel
My MO is advising Chemotherapy since I am Mcrp. . The MO said that no Adt will work . I have been reading that most people take Adt along with Docataxcel. I would love to prolong my life. I have concerns about QOL and what are the percentages of this treatment working with and without ADT? Thank
My MO is advising Chemotherapy since I am Mcrp. . The MO said that no Adt will work . I have been reading that most people take Adt along with Docataxcel. I would love to prolong my life. I have concerns about QOL and what are the percentages of this treatment working with and without ADT? Thank
spolyu
in
Advanced Prostate Cancer
10 months ago
urinary restriction
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
Finished IMRT/ SBRT radiation to lymph nodes last week. Since then Ive begun have early AM restricted urinary flow - Very narrow stream. Rad Onc suggested tamsulosin or ibuprophen. MO, tamsulosin. Any work around for the early AM problem that I could take overnight? Ibuprophen has to be taken all
kainasar
in
Advanced Prostate Cancer
8 months ago
Treatment for perimenopausal symptoms and PBC
Hi, A year ago I had my first bout of very strange and severe anxiety and depression linked to perimenopause. I am 48. A blood test showed my oestrogen level had significantly dropped. After a couple of months I seemed to re-stabilise and didn’t need HRT. I had been taking a supplement, recommended by
Hi, A year ago I had my first bout of very strange and severe anxiety and depression linked to perimenopause. I am 48. A blood test showed my oestrogen level had significantly dropped. After a couple of months I seemed to re-stabilise and didn’t need HRT. I had been taking a supplement, recommended by
Turquoise2075
in
PBC Foundation
10 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
10 months ago
HRT question. Sorry, totally off topic but I need an answer quickly!
Oh cripes! I started HRT 8 days ago. (Estrogen patches and utrogestan). I'm on cycle day 21 and I've started my period this evening. What do I do now?! Do I carry on taking utrogestan until I've completed 2 weeks?
Oh cripes! I started HRT 8 days ago. (Estrogen patches and utrogestan). I'm on cycle day 21 and I've started my period this evening. What do I do now?! Do I carry on taking utrogestan until I've completed 2 weeks?
WitchingHour2point0
in
Thyroid UK
10 months ago
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