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End of my patience really unsure what to do feel completely alone and like nobody is listening Consultant confusing me what is wrong with me
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
I posted once before about starting injections whilst I wait for my hysterectomy I am 42 and my periods have been an issue my whole life heavy/painful etc except for when I was pg/breastfeeding my 3 kids it was the best period free time of my life. Things got very bad after I did not go back on the pill
LovelyLou81
in
Endometriosis UK
9 months ago
If immediately stopping after two years taking Orgovyx how long before testosterone begins to rise?
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
SViking
in
Advanced Prostate Cancer
9 months ago
dilated left ventricle informed over the phone (heart failure) 1 week ago
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Hello everyone I am a 37 year old man with no signs or symptoms of any heart condition until now . aprox a month ago I was sent for a echocardiogram to check my heart (routine every 5years ) as my father has a pacemaker since the age of 50 and 5years ago had an aortic aneurysm. 5 years ago I had
Wallewoos
in
British Heart Foundation
11 months ago
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Just had Psma-pet scan... Confused
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
GSDF
in
Advanced Prostate Cancer
9 months ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
9 months ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
9 months ago
Help with bloods
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
I have an appointment today with my doctor to look at changing my HRT from Evrol Conti 50 and testosterone. I have started having bleeds (mostly dark/blood clots). They have done a scan and i've had a biopsy which is ok so they want to change my HRT. I wanted to see my levels so asked for bloods to
WendyW1964
in
Menopause and Perimenopause Support
9 months ago
Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
9 months ago
Tamoxifen
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
I have been on Tamoxifen for 5yrs I have been.having trouble with incontinence and a burning constant sensation in my vagina I.have had numerous urine tests always come back negative This went on for months with constant visits to the doctors with no.satisfaction In the end I paid to see a neurologist
galgo
in
My Breast Cancer Community
9 months ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
9 months ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
9 months ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
9 months ago
Far Infrared Heat Mat with Bone Mets
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
Morphea treatment - PUVA or triamcinolone injections?
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
eGFR down 14% since starting ADT
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
SierraSix
in
Advanced Prostate Cancer
9 months ago
Advice on Thyroid results?
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Hi all, my first post. I've had symptoms of hypothyroidism for several (6-7) years including extreme fatigue, weight gain (now 2 stone heavier), depression, achy muscles - I used to be so fit and healthy and now everything feels like a huge effort. Had several tests over the years for TSH and T4
Thyroid16
in
Thyroid UK
9 months ago
Can Endo cause leukocytes to appear in your urine?
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Hi you lovely lot! I’m 35 and was diagnosed with endometriosis last year. It’s nice to meet you. I had emergency surgery last year to remove an endometrioma that was discovered in hospital as I was unwell. During the laparoscopy it was found that all my pelvic organs were very inflamed and swollen
Yellowpanda
in
Endometriosis UK
9 months ago
New here !!
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Hello Not sure where to start. I had some blood tests done through Blue Horizon because of many symptoms I thought were hyperthyroidism. I had, two years ago, finally managed to get my weight just above 9 stone. Then over the course of a month went down to 8 stone 4. Drenching night sweats were awful
Wilderflower
in
Thyroid UK
9 months ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
9 months ago
Update after RALP ---- Need advice
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
[u]Dx in May 23:[/u] Biopsy results: PSA day before biopsy: 6.2 3 out of 10 confirmed cancer in peripheral zone right side GS: 2 x 3+3 and 1 x 3+4 (GP4 - 40%) . MRI in April 23 detected malignity tumor of size 1.2 cm, PI-RADS 4. No sign on pelvis area and neighboring lymph nodes. Clinical stage:
FMOH_N
in
Prostate Cancer Network
9 months ago
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