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Tri modality conclusion end of ADT nervous
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
A long journey.. Lutron , bicalutamide .. from start last year in June .. brachytherapy.. in October… 15 booster LiNac in Dec/Jan .. doctor ..in Japan said can stop hormone treatment but he sort of front loaded the ADT before radiation 5 months.My second opinion initially said to embrace adjuvant ADT
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
update on prolotherapy
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
Hidden
in
Neuropathy Support
10 months ago
update on prolotherapy and llltherapy
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
Hidden
in
Restless Legs Syndrome
10 months ago
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Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
6 months ago
More advice please
Hi everyone, Further to my previous posts, I saw private Endo last week who won’t prescribe T3 until Short Synacthen test is done for borderline low cortisol of 248 and reverse t3 blood test done to confirm poor t3 conversion (???). I have been told today by his secretary (after arranging the tests
Hi everyone, Further to my previous posts, I saw private Endo last week who won’t prescribe T3 until Short Synacthen test is done for borderline low cortisol of 248 and reverse t3 blood test done to confirm poor t3 conversion (???). I have been told today by his secretary (after arranging the tests
Koababy20
in
Thyroid UK
6 months ago
CBT-I (Cognitive Behavioral Therapy Insomnia) for Parkinson's Insomnia
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
staceysack
in
Cure Parkinson's
8 months ago
GGT level
Hi, I was told that in 2015 I had a fatty liver from having a scan for suspected gall stones. I wasn't told much more and no advice or follow up given. Last year I started getting pain and a kind of tight feeling on my right side just under my lowest rib. Gp did some blood tests and said nothing came
Hi, I was told that in 2015 I had a fatty liver from having a scan for suspected gall stones. I wasn't told much more and no advice or follow up given. Last year I started getting pain and a kind of tight feeling on my right side just under my lowest rib. Gp did some blood tests and said nothing came
Vavoomm
in
British Liver Trust
6 months ago
HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
6 months ago
stopping HRT
Coming off hrt after 12 yrs post oopherectomy /hysterectomy to see if it helps me feel better . Has anyone else done this ? Also on synthroid , will coming off estrogen patch and testosterone compound affect my dosage ?
Coming off hrt after 12 yrs post oopherectomy /hysterectomy to see if it helps me feel better . Has anyone else done this ? Also on synthroid , will coming off estrogen patch and testosterone compound affect my dosage ?
MarteeAnn
in
Thyroid UK
6 months ago
If PSA is Suppressed by Doublet ADT, Will Salvage IMRT Cause a PSA Rise?
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
103532
in
Advanced Prostate Cancer
4 months ago
At what point for scan ?
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
Hi. Currently just had # 4 chemo. Live in Canada so PSMA has never been done . Bone scan and CT scan. I'm wondering at what point it would be good to get a scan ( they already said it would probably be a CT scan as that's all we have in my province and eventually another bone scan which He has to fly
positive-thinking
in
Advanced Prostate Cancer
6 months ago
hrt and levothyroxine
hi I’ve just been given hrt and in the panic of wondering what new hell awaits me, I haven’t thought how does the patch work with my levothyroxine cos even if I apply the first patch four hours after my levothyroxine it will still be there the next day ? Help or am I over thinking it
hi I’ve just been given hrt and in the panic of wondering what new hell awaits me, I haven’t thought how does the patch work with my levothyroxine cos even if I apply the first patch four hours after my levothyroxine it will still be there the next day ? Help or am I over thinking it
Bobby25
in
Thyroid UK
6 months ago
Lupus and Radiotherapy
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25 years. I was diagnosed with Prostate cancer around sixteen months ago and have been on Hormone therapy for fourteen months. I was offered Radiotherapy around nine months ago , but due to the possible side
jamesroybuck
in
LUPUS UK
6 months ago
MO recommendations at Mayo, Moffitt?
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
Hello - After 7 months of ADT (Lupron/abi) my MOs are not offering anything but continuation until my PSA fails, so I'd like to network more; so please let me know whom you think are the best at these two places. Thanks in advance.
jackwfrench
in
Advanced Prostate Cancer
6 months ago
Which Estrogen Patch dose to use?
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
This plot shows the median serum estrogen (E2) concentration (in pg/mL) versus total Weekly Estrogen patch dose (mg/wk) from five different references ranging from 2000 to 2019. The data set from Smith et. al (2019) is for castrate-resistant prostate cancer men (CRPC), who are not taking ADT. Overall
janebob99
in
Prostate Cancer Network
6 months ago
Advice on hormonal treatment?
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
hi all, 10 days post-lap here. Unfortunately ended up losing my left ovary and tube - had 4 endometriomas on it, 1 of which was 8cm, and this was all adhered to my rectum. So the surgeon said it needed to come out. I’m waiting for a post-op appointment but the consultant said the endo will likely come
Apprentice_Hag
in
Endometriosis UK
6 months ago
Newbie - Is this Normal? Should I have Treatment?
Good morning! I'm a newbie here and i'm just unsure as to whether I should accept what my GP is telling me and put up with it or go private. A bit of history - I'm 46, female, overall good health historically but diagnosed with Premature Ovarian Deficiency (Early menopause) in my early thirties.
Good morning! I'm a newbie here and i'm just unsure as to whether I should accept what my GP is telling me and put up with it or go private. A bit of history - I'm 46, female, overall good health historically but diagnosed with Premature Ovarian Deficiency (Early menopause) in my early thirties.
Ruthio77
in
Thyroid UK
6 months ago
Question in Preparation for pBAT
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
For those who have experience with BAT: I’m getting ready to start my first 30 day cycle of pBAT this week. But I have a concern about my high SHBG (sex hormone binding globulin) level, which is 79 nmol/L. With Eligard ADT in the background, my pBAT program calls for 8 injections of T propionate
Ichthus316
in
Fight Prostate Cancer
6 months ago
PROSTOX Tests
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Is Conventionally Fractionated Radiotherapy (CFRT) mentioned on https://mirakind.org/prostox-testing/ the same as Intensity-Modulated Radiation Therapy (IMRT)? Specifically, does the CFRT test indicate if I am at high or low risk for IMRT? If the result of SBRT test indicates high risk, can I opt for
Infamous9597
in
Advanced Prostate Cancer
2 months ago
Similar question to Ezzedine. PSA rising
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
March 19 I was diagnosed with Gleason 9 prostate cancer. PSA was 0.9 (it turns out I have a non secreting prostate. I had 37 sessions of EBRT and 3 years zoladex. Whilst under ADT and for 1 year after ADT conclusion my PSA was 0.01 (indecipherable) Then a year ago my PSA was 0.02, then 0.03 and last
arry4424
in
Prostate Cancer Network
6 months ago
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