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Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Effectiveness of ADT
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
jeetu_g27
in
Advanced Prostate Cancer
4 months ago
PGAD relief tips
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Lolliesandcakes
in
Pelvic Pain Support Network
4 months ago
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Why is this so hard, someone to talk to
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Coffeeshop
in
Anxiety and Depression Support
7 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
4 months ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
4 months ago
Update recent PSMA
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
kainasar
in
Advanced Prostate Cancer
4 months ago
CV and Bone Health when ADT is a treatment option.
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Hawk56
in
Advanced Prostate Cancer
4 months ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
4 months ago
Treatment options
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
mtechguy
in
Advanced Prostate Cancer
4 months ago
What is done in this case ? ADT not working
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
Alfy47
in
Prostate Cancer Network
4 months ago
Ibs or celiac
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
Girlpower98
in
IBS Network
7 months ago
XTANDI(Enzalutamide) Granted European Commission Approval for Use in Additional Recurrent Early Prostate Cancer Treatment Setting
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
...well...the title speaks for itself XTANDI is now the first and only novel hormone therapy available for the treatment of high-risk biochemical recurrent non-metastatic hormone-sensitive prostate cancer in the European Union (EU) XTANDI can be given alone or in combination with androgen deprivation
Maxone73
in
Advanced Prostate Cancer
4 months ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
2 months ago
Hormone Replacement
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
Anyone in there 70's using HRT for osteoporosis? I have been reading a lot of information concerning this.
KincaidPete
in
Osteoporosis Support
4 months ago
Some advice please
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Sunnyyellowlady
in
Thyroid UK
4 months ago
magnesium supplements
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Grumpyfairy
in
MPN Voice
4 months ago
darolutamide monotherapy experience?
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
ron_bucher
in
Advanced Prostate Cancer
4 months ago
3 Abiraterone tabs in place of 4.
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
85236442968
in
Advanced Prostate Cancer
4 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
7 months ago
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