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Radiation & Underactive Bladder
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
brilliant17
in
Advanced Prostate Cancer
4 months ago
Does NSAIDS reduce ADT effectiveness?
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
jackwfrench
in
Advanced Prostate Cancer
4 months ago
Robert
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Robert was diagnosed with Parkinson’s in 2018 PSP in 2021 progression was slow at first. Last year Robert was walking with a cane and dragging his feet. In September he began to fall daily sometimes more. He got weaker every day and finally allowed me to call a rescue. What followed was a whirlwind
Wrski
in
PSP Association
9 months ago
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Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Fisherman2
in
Advanced Prostate Cancer
4 months ago
BILLY NEEDS HELP
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
billyboy3
in
Advanced Prostate Cancer
4 months ago
Vitamin D again: High-dose vit D to attenuate bone loss in patients with prostate cancer on ADT, phase 2 RCT result
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
Maxone73
in
Advanced Prostate Cancer
4 months ago
Pancreas problems after RT for prostate
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
Nomojo56
in
Pelvic Radiation Disease Association
4 months ago
Wondering if anyone can relate to these symptoms
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
Nomojo56
in
Chronic Pancreatitis Support
4 months ago
Estrogen for Bone Health in PCa patient.
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
I am under treatment for Prostrate Cancer since mid 2019. Gleason 9-10 when detected with 250 PSA. Pet CT showed all contained in prostrate but with one ECE and seminal vesicles involvement. No spread visible to lymph nodes or anywhere in the body. Treatment was conventional ADT using Firmagon for 4
binati
in
Advanced Prostate Cancer
2 months ago
Brachytherapy boost HDR vs LDR +/- ADT
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
A bit of my background: 50 years old, Gleason score of 4+3, a PSA of 11, decipher is low, and possible extracapsular extension. 1) I know what LDR and HDR do, but what are the differences in terms of their long-term side effects? 2) Should I include ADT for a better outcome and what percentage improvement
Infamous9597
in
Advanced Prostate Cancer
2 months ago
DEXA sooner that 2 years?
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
RugbyVLS
in
Advanced Prostate Cancer
4 months ago
Light Therapy Celeste
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Photopharmics is getting ready to recruit for phase 3. For those interested: https://photopharmics.com/innovative-research-inclusive-trials-and-new-funding-drives-hope-for-people-with-parkinsons-disease/
Pegcity
in
Cure Parkinson's
9 months ago
After ADT
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Catmama5
in
Advanced Prostate Cancer
4 months ago
when is enough enough
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
Thesledge
in
Advanced Prostate Cancer
4 months ago
Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
4 months ago
"FAN-( )UCKIG-TASTIC RESULTS"
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
NanoMRI
in
Advanced Prostate Cancer
4 months ago
HRT question
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Amikatari
in
Menopause and Perimenopause Support
4 months ago
Please advice
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
old64horn
in
Advanced Prostate Cancer
2 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
4 months ago
Side effects from Xtandi monotherapy?
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
SViking
in
Advanced Prostate Cancer
4 months ago
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