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Experiences with
Hydroxycarbamide
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Hydroxycarbamide and Allopurinol
I collected my first
Hydroxycarbamide
prescription yesterday from the hospital pharmacy. I was also given another drug called Allopurinol. I wasn't told that I would have to take this in addition to the
Hydroxycarbamide
. Does anyone know if this is always given with Hydroxy?
I collected my first
Hydroxycarbamide
prescription yesterday from the hospital pharmacy. I was also given another drug called Allopurinol. I wasn't told that I would have to take this in addition to the
Hydroxycarbamide
. Does anyone know if this is always given with Hydroxy?
Connie46
in
MPN Voice
7 years ago
Vitamin pills
The
Hydroxycarbamide
made my haemoglobin drop so I am taking the iron. Some of these have made me feel a lot better already. Also healthy eating of course, very little sugar and caffeine, no dairy products. Good quality foods, organic. Lots of fruit and veg, some meat.
The
Hydroxycarbamide
made my haemoglobin drop so I am taking the iron. Some of these have made me feel a lot better already. Also healthy eating of course, very little sugar and caffeine, no dairy products. Good quality foods, organic. Lots of fruit and veg, some meat.
Searcher56
in
MPN Voice
7 years ago
Affect of viruses and infection on platelets.
I have been researching different influences viruses etc can have on platelets and have found some very lengthy technical data on them. I wanted to know more as to why my platelets were increasing after I increased hydroxyurea and found there may have been a correlation with having the flu 1 month prior
I have been researching different influences viruses etc can have on platelets and have found some very lengthy technical data on them. I wanted to know more as to why my platelets were increasing after I increased hydroxyurea and found there may have been a correlation with having the flu 1 month prior
fee13
in
MPN Voice
7 years ago
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My experience
I am currently using
hydroxycarbamide
(which has helped tremendously) but have now decided to make the transition to more natural remedies and readjusting my diet.
I am currently using
hydroxycarbamide
(which has helped tremendously) but have now decided to make the transition to more natural remedies and readjusting my diet.
Mojiallioke
in
Sickle Cell Society
7 years ago
Advice Please
There are two points I need advice on, the first is regarding the liquid
Hydroxycarbamide
that has been recommended for me. I have been waiting for this since the 17th July when I last saw my haematologist.
There are two points I need advice on, the first is regarding the liquid
Hydroxycarbamide
that has been recommended for me. I have been waiting for this since the 17th July when I last saw my haematologist.
Connie46
in
MPN Voice
7 years ago
Meniere's Disease !
I was diagnosed with ET Jak2 positive at end of march this year prior to this i had a couple of bouts of vertigo i have been taking
Hydroxycarbamide
500mg capsules and they seem to have my platlettes back to almost normal i have not been aware of any side effects except the odd day i still feel a little
I was diagnosed with ET Jak2 positive at end of march this year prior to this i had a couple of bouts of vertigo i have been taking
Hydroxycarbamide
500mg capsules and they seem to have my platlettes back to almost normal i have not been aware of any side effects except the odd day i still feel a little
violeta19
in
MPN Voice
7 years ago
Does anyone else with PV get achey thighs?
Just a quick query - I've been taking
hydroxycarbamide
(1.5g per day) and aspirin (75g per day) plus have had three venesections. All OK so far - platelets and white blood cells have decreased into the normal range, previously very high red cell count is now at the top end of normal.
Just a quick query - I've been taking
hydroxycarbamide
(1.5g per day) and aspirin (75g per day) plus have had three venesections. All OK so far - platelets and white blood cells have decreased into the normal range, previously very high red cell count is now at the top end of normal.
Disney71
in
MPN Voice
7 years ago
SCD treatments.
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
As far as I know there is no cure for SCD. The Haematologists in the UK, try to manage the painful episodes with strong opioids e.g. OxyContin, morphine, Tramadol etc. They also try to keep you well hydrated with bags of saline and also increase your haemoglobin numbers by blood transfusions. My GP
Feio
in
Living with Sickle Cell Disease
7 years ago
Comparisons Please for PV Treatments
Has the frequency diminished with higher doses of
Hydroxycarbamide
? Do you feel less tired with having less frequent venosections? I'm just trying to get a sense of what I can expect in year to come.
Has the frequency diminished with higher doses of
Hydroxycarbamide
? Do you feel less tired with having less frequent venosections? I'm just trying to get a sense of what I can expect in year to come.
reliabletony
in
MPN Voice
7 years ago
Celiac Artery Stenosis/Splenic Artery Aneurysm with ET - anyone else? ...
Morning all, I have posted on here a few times and read all your posts daily. I am struggling at the minute with this illness. Brief background - 46 years old and was diagnosed with MPN JAK + , most likely ET In November 2016. I have been told I am a complex case as the highest my platelets have been
Morning all, I have posted on here a few times and read all your posts daily. I am struggling at the minute with this illness. Brief background - 46 years old and was diagnosed with MPN JAK + , most likely ET In November 2016. I have been told I am a complex case as the highest my platelets have been
Janlol
in
MPN Voice
7 years ago
Metatone tonic
Hi all Does anyone take Metatone tonic if they are taking
Hydroxycarbamide
please?
Hi all Does anyone take Metatone tonic if they are taking
Hydroxycarbamide
please?
RosemaryHarper
in
MPN Voice
7 years ago
Is massage ok with ET? Plus ITA's?
I have ET JAK2+ and platelets 488. Age 55 yrs. Clogged arteries in legs and family history of heart disease put me in high risk category so I'm taking aspirin and hydroxyurea, 1000 mg for 4 days, 500 mg for 3 days. Unsure if I am having ITA's as had panic attack on Friday, heart pumping fast, strong
I have ET JAK2+ and platelets 488. Age 55 yrs. Clogged arteries in legs and family history of heart disease put me in high risk category so I'm taking aspirin and hydroxyurea, 1000 mg for 4 days, 500 mg for 3 days. Unsure if I am having ITA's as had panic attack on Friday, heart pumping fast, strong
fee13
in
MPN Voice
7 years ago
Was it Haematology or Mythology?
I had my long waited for follow up visit to my haematologist earlier in the week. I thought I had prepared well for the consultation, in that I prepared a carefully written sheet of current symptoms and concerns, and also some questions that I wanted to ask. I was actually looking forward to the appointment
I had my long waited for follow up visit to my haematologist earlier in the week. I thought I had prepared well for the consultation, in that I prepared a carefully written sheet of current symptoms and concerns, and also some questions that I wanted to ask. I was actually looking forward to the appointment
stillkicking
in
MPN Voice
7 years ago
New member intro, diagnosed with MF in 1996
Hi All, new member intro, diagnosed with MF in 1996, jak2+, currently on
hydroxycarbamide
(hydrea) and aspirin. Doing well.
Hi All, new member intro, diagnosed with MF in 1996, jak2+, currently on
hydroxycarbamide
(hydrea) and aspirin. Doing well.
Simon96
in
MPN Voice
7 years ago
Little critters 😩
I have ET and on
Hydroxycarbamide
, Asprin, oh and numerous other tablets.
I have ET and on
Hydroxycarbamide
, Asprin, oh and numerous other tablets.
Superwoman
in
MPN Voice
7 years ago
Newly diagnosed with two blood disorders
The Cll was to be a watch and see but for the PV
Hydroxycarbamide
was recommended. I have not started on the full treatment suggested by the specialist yet as I wanted more information, my GP had told me about the Cll but not the PV.
The Cll was to be a watch and see but for the PV
Hydroxycarbamide
was recommended. I have not started on the full treatment suggested by the specialist yet as I wanted more information, my GP had told me about the Cll but not the PV.
nanmc
in
MPN Voice
7 years ago
Newly diagnosed with two blood disorders
The Cll was to be a watch and see but for the PV for this
Hydroxycarbamide
/ HYDROXYUREA was recommended. I have not started on the full treatment suggested by the specialist yet as I wanted more information, my GP had told me about the Cll but not the PV.
The Cll was to be a watch and see but for the PV for this
Hydroxycarbamide
/ HYDROXYUREA was recommended. I have not started on the full treatment suggested by the specialist yet as I wanted more information, my GP had told me about the Cll but not the PV.
nanmc
in
CLL Support
7 years ago
Hydroxycarbamide newbie
Hi, I have just started
hydroxycarbamide
3 days ago and really appreciated reading some of your experiences. I have Jak2 positive etc etc & after 3 yrs of monitoring & venesections, I had a bone marrow biopsy which also revealed smouldering myeloma.
Hi, I have just started
hydroxycarbamide
3 days ago and really appreciated reading some of your experiences. I have Jak2 positive etc etc & after 3 yrs of monitoring & venesections, I had a bone marrow biopsy which also revealed smouldering myeloma.
Belgobrit72
in
MPN Voice
7 years ago
Ruxolitinib or Interferon
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs. I am classed as high risk as history of DVT and PE. I cannot take hydroxyurea as a have history of melanoma and have been on anagrelide which didn't reduce
Hi everyone I have PV diagnosed late last year and since then it's been a bit of a roller coaster of weekly Vx s and different cytoreductive drugs. I am classed as high risk as history of DVT and PE. I cannot take hydroxyurea as a have history of melanoma and have been on anagrelide which didn't reduce
Dianne-Guisborough
in
MPN Voice
7 years ago
HGB fluctuating what is typical-newbie
I was diagnosed with P. Vera, I have the JAK2 mutation; this was the end of April 2017. I am on Aspirin and hydroxyurea HU, plus diuretics for blood pressure and a statin. My HGB started at 22 and with weekly phlebotomy and the 500 mg HU it had gone down steadily to 18 over 4 weeks. However, today at
I was diagnosed with P. Vera, I have the JAK2 mutation; this was the end of April 2017. I am on Aspirin and hydroxyurea HU, plus diuretics for blood pressure and a statin. My HGB started at 22 and with weekly phlebotomy and the 500 mg HU it had gone down steadily to 18 over 4 weeks. However, today at
Johnsb
in
MPN Voice
7 years ago
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