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Experiences with
Hydroxycarbamide
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Enlarged spleen
I take
hydroxycarbamide
and asprin. Like many of us i have an enlarged spleen. I'd be interested to here from others that get spleen pain and what treatment you have had. Thanks
I take
hydroxycarbamide
and asprin. Like many of us i have an enlarged spleen. I'd be interested to here from others that get spleen pain and what treatment you have had. Thanks
Rich50
in
MPN Voice
7 years ago
I'm new here. I was recently diagnosed with ET. A question about onset of symptoms and fatigue.
Firstly, thank you to everyone for this forum, I have been quietly reading it for the last few days and have found it very helpful. For me the road that lead eventually to an ET diagnosis started with a visit to my GP towards the end of 2016, because I was suffering an odd collection of symptoms that
Firstly, thank you to everyone for this forum, I have been quietly reading it for the last few days and have found it very helpful. For me the road that lead eventually to an ET diagnosis started with a visit to my GP towards the end of 2016, because I was suffering an odd collection of symptoms that
stillkicking
in
MPN Voice
7 years ago
Newly diagnosed with PV
I have been experiencing PV symptoms for a couple of years - itchy skin and burning feet and I am now on
Hydroxycarbamide
2x500mg capsules a day.
I have been experiencing PV symptoms for a couple of years - itchy skin and burning feet and I am now on
Hydroxycarbamide
2x500mg capsules a day.
RosemaryHarper
in
MPN Voice
7 years ago
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Polycythemia vera
I have dignosed 3 monthe back , Polycethemia vera. My RBC were high to 8.0. I used only hydroxyurea 3, 2 and last 1 daily. My CBC showing now RBC as on lowest range and HCT as 41%. Doctor stopped HU med. for 15 . I m of 57 age male with no other disease except some IBS n GERD, digestive track related
I have dignosed 3 monthe back , Polycethemia vera. My RBC were high to 8.0. I used only hydroxyurea 3, 2 and last 1 daily. My CBC showing now RBC as on lowest range and HCT as 41%. Doctor stopped HU med. for 15 . I m of 57 age male with no other disease except some IBS n GERD, digestive track related
Riazahmad
in
MPN Voice
7 years ago
Herbal supplement - Melissa Dream
I take
hydroxycarbamide
, aspirin, lisinopril, simvastatin and omerprezol as and when I need it. My friend has brought the above supplements out to Gran Canaria for me and says that they really do work. I am not sure about taking them with the cocktail of drugs that I have already.
I take
hydroxycarbamide
, aspirin, lisinopril, simvastatin and omerprezol as and when I need it. My friend has brought the above supplements out to Gran Canaria for me and says that they really do work. I am not sure about taking them with the cocktail of drugs that I have already.
Mardigras
in
MPN Voice
7 years ago
Important info on hydrea
Hi everyone this attached document may help with info on Hydrea long term possible side effects. I have printed this out and keep it in my handbag in case I end up in hospital as many doctors are not aware of the unusual side effects you could get. I have had an impacted bowel many times which further
Hi everyone this attached document may help with info on Hydrea long term possible side effects. I have printed this out and keep it in my handbag in case I end up in hospital as many doctors are not aware of the unusual side effects you could get. I have had an impacted bowel many times which further
Pablo1
in
MPN Voice
7 years ago
New member needing support
He's just started on
hydroxycarbamide
and getting very sore bones. Scared the drug might trigger something worse. He's anxious which is unlike him. It's making me anxious too. Should we speak to the nurse?
He's just started on
hydroxycarbamide
and getting very sore bones. Scared the drug might trigger something worse. He's anxious which is unlike him. It's making me anxious too. Should we speak to the nurse?
MarybellM
in
MPN Voice
7 years ago
Vonn65
Hi I have just been diagnosed with essential thrombocythaemia and am taking
hydroxycarbamide
a little concerned about side effects .
Hi I have just been diagnosed with essential thrombocythaemia and am taking
hydroxycarbamide
a little concerned about side effects .
Vonn65
in
MPN Voice
7 years ago
Side Effects
I am having E. T. From July 15. I am taking Hydroxyurea 500 more than 18 months but my weight gain by 9kgs. I would like to know that it is good sign or not. Also suffering from Charmpes on six part of my body. Also increase my creatine. What to do
I am having E. T. From July 15. I am taking Hydroxyurea 500 more than 18 months but my weight gain by 9kgs. I would like to know that it is good sign or not. Also suffering from Charmpes on six part of my body. Also increase my creatine. What to do
Kmbp50
in
MPN Voice
7 years ago
ET and Sun Exposure
I am now on 2 x 500mg of
Hydroxycarbamide
and baby aspirin which seems to have stabilized my platelet count to around 320/350. I now only see my hemo every 3 months. On to my question....does anybody know if too much sun exposure with my condition is a bad thing?
I am now on 2 x 500mg of
Hydroxycarbamide
and baby aspirin which seems to have stabilized my platelet count to around 320/350. I now only see my hemo every 3 months. On to my question....does anybody know if too much sun exposure with my condition is a bad thing?
retromicky
in
MPN Voice
7 years ago
New
Started taking
hydroxycarbamide
, but unfortunately it did not agree with me, my consultant took me off them 2 weeks ago and i am seeing consultant this thursday to start another medication . Is it normal to feel so exhausted.
Started taking
hydroxycarbamide
, but unfortunately it did not agree with me, my consultant took me off them 2 weeks ago and i am seeing consultant this thursday to start another medication . Is it normal to feel so exhausted.
linphy
in
Leukaemia CARE
7 years ago
Prescription charges
I have been taking
hydroxycarbamide
since & have had 3 years taking interferon (I had 2 babies) . My question is regarding prescription charges in England......
I have been taking
hydroxycarbamide
since & have had 3 years taking interferon (I had 2 babies) . My question is regarding prescription charges in England......
Nickyanne
in
MPN Voice
7 years ago
Starting Hydroxyurea
As my platlets currently 908 have been slowly rising have been told I should start on Hydroxyurea. I'm 45 in good condition and don't really have any symptoms apart from feeling occasionally lightheaded. I'm just worried that this is going to introduce more problems than I currently have. I know it's
As my platlets currently 908 have been slowly rising have been told I should start on Hydroxyurea. I'm 45 in good condition and don't really have any symptoms apart from feeling occasionally lightheaded. I'm just worried that this is going to introduce more problems than I currently have. I know it's
Jasbak22
in
MPN Voice
7 years ago
Hydroxyurea and Backache
Hi everyone, Was diagnosed with ET last year at the age of 45 and started on daily aspirin and Hydroxyurea 5 times a week due to having 2 blood clots. Since increasing to 5 times a week I've had pain in the centre and lower of my back. It's one of those pains that just won't go away, painkillers are
Hi everyone, Was diagnosed with ET last year at the age of 45 and started on daily aspirin and Hydroxyurea 5 times a week due to having 2 blood clots. Since increasing to 5 times a week I've had pain in the centre and lower of my back. It's one of those pains that just won't go away, painkillers are
Janlol
in
MPN Voice
7 years ago
Hydroxyurea vs aspirin question
This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, in fairly good health and am active, despite a neuro-muscular disease - see below.) The oncologist here in the US prescribed low-dose aspirin and Hydrea (Hydroxyurea), which I started taking that day, i.e. I've been on it
This is my first post: I was diagnosed with ET two days ago. (Am male, age 62, in fairly good health and am active, despite a neuro-muscular disease - see below.) The oncologist here in the US prescribed low-dose aspirin and Hydrea (Hydroxyurea), which I started taking that day, i.e. I've been on it
Isoruku
in
MPN Voice
7 years ago
learning about ET
following this blood tests confirmed ET Jak2 Positive, my platelets were high at 843, after many hosp appts and treatment I have just been told they are now down too 455, I am on
Hydroxycarbamide
1000mg Monday-Saturday and 500mg on a Sunday, I also take clopidigrel daily, Can anyone tell me if these
following this blood tests confirmed ET Jak2 Positive, my platelets were high at 843, after many hosp appts and treatment I have just been told they are now down too 455, I am on
Hydroxycarbamide
1000mg Monday-Saturday and 500mg on a Sunday, I also take clopidigrel daily, Can anyone tell me if these
tina6
in
MPN Voice
7 years ago
What time of day to take Hydroxy?
I've got ET and started taking
Hydroxycarbamide
10 days ago. I'm taking it in the early morning with various other tablets. I'm now wondering whether this is a good idea. I have read on here that many people suffer from exhaustion as a side-effect.
I've got ET and started taking
Hydroxycarbamide
10 days ago. I'm taking it in the early morning with various other tablets. I'm now wondering whether this is a good idea. I have read on here that many people suffer from exhaustion as a side-effect.
ChrisAnnSen
in
MPN Voice
7 years ago
Dental Fillings and Hydroxycarbamide
I've just started on Hydroxy and went to the dentist for a filling. When I told him what I was taking he didn't want to give me a numbing injection as he didn't want to put more chemicals into my body. I was a big brave girl and had the filling done without it. (He'd assured me it wouldn't hurt as he
I've just started on Hydroxy and went to the dentist for a filling. When I told him what I was taking he didn't want to give me a numbing injection as he didn't want to put more chemicals into my body. I was a big brave girl and had the filling done without it. (He'd assured me it wouldn't hurt as he
ChrisAnnSen
in
MPN Voice
7 years ago
Breathlessness and Hydroxyurea
I have been on Hydroxyurea for PV for 3 years or so, and have now developed marked breathlessness which is beginning to get problematic. I am having cardiac investigation 24-hr holter), but just read Maz's response from some months ago about side-effects on the lungs from Hydrea: sounds like me! What
I have been on Hydroxyurea for PV for 3 years or so, and have now developed marked breathlessness which is beginning to get problematic. I am having cardiac investigation 24-hr holter), but just read Maz's response from some months ago about side-effects on the lungs from Hydrea: sounds like me! What
lucieboo
in
MPN Voice
7 years ago
Does anyone have any info whether Interferon is contraindicated if you have a history of PE or other thrombolytic event ?
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Hi I was diagnosed with Pv in September 2016. My platelets have constantly been rising -They are now 1,300,000 My haematologist commenced me on anagrelide 4 weeks ago but platelets still rising She has increased my anagrelide but said she would like to change me on to pegasys interferon but is
Dianne-Guisborough
in
MPN Voice
7 years ago
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